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Pelvic Floor Therapy for Incontinence

May 28, 2015 5:16 PM

I've had pelvic floor dysfunction since about 2008. What is that? All the muscles in the pelvic floor region (from the genitals to behind the anus/rectum, including going down the insides & front of both thighs) that help to control bladder, bowel, & sexual function are simply not working as they should. It can cause pain down into the upper legs, pelvic organs, and buttocks.

Predominately I suffer with bowel and blade incontinence as well as pain and sexual dysfunction. Starting in 2012. I began pelvic floor therapy for bowel incontinence. I had to repeat the therapy again in 2013 and had regained control. That is until I started therapy for urinary incontinence three weeks ago. Everything was going well until the therapist started therapy on maces behind the bladder, last week. Since then I've had 5 episodes of bowel again.

I saw the Urogynecology doc today. He said I am a very difficult case because I have so many issues going on. He informed me that due to the "backfire" of the treatment (rx) causing bowl dysfunction again we have to stop therapy. He said normally they implant a bladder /bowel neurostimulator for patients with both symptoms but because I have nerve damage so close to the S2-S5 area they can't do it. He said everything is now on hold until I go to Mayo. He's now of the same opinion as two other doctors that I may have MS, which will also block typical tx methods. He said if it isn't MS, he believes it's something affecting multiple nerves in my body... Hence all the chaotic issues & symptoms.

I'm just a little down. I can't get one issue handled before another starts. I had to make an appt with Ortho tomorrow because I can hardly put weight on the forefoot of my left foot since yesterday. It's happened twice before since something popped in that foot about a month ago. It's the same leg as the bone spur on knee so my walking is all amuck causing knee pain. Trying to compensate with the right leg I almost fell last night...my weak side. See how screwy my body does me! Lol I can't help but laugh because it seems like something Lucy (I love Lucy) would have performed!

Thanks for listening. Have a blessed night!! 🙏🌼

May 28, 2015 6:10 PM

Thank you for sharing such a personal experience. I am sure the information will help many.

May 28, 2015 8:11 PM

Thank you LMB. I was totally blind to pelvic floor issues for the first three years of my symptoms. What I've learned and pass along may, as you said help others. I hope so. Predominately, women suffer from PFD. But men can too, especially if they've had prostate issues or cancer.

Since I've joined this community I have learned of many other medical conditions, some which may or does apply to me personally, some that apply to family or friends. Sharing experiences and diagnosis information helps others. Like the info you shared on migraines today; I didn't know that about men & cluster headaches; or when someone said I might be having cervicogenic headaches. This group means a lot to each other, knowledge, confiding to others who understand, and friends. Where would we all be without each other? Suffering in silence and loneliness, without a clue of what the symptoms might be. Thanks, and I hope you have a peaceful night of sleep. 🙏🌼

May 29, 2015 8:36 AM

Anyone interested in learning more...

http://m.hopkinsmedicine.org/vascular/conditions/pelvic/ is a site about pelvic congestion syndrome (another pelvic issue I have).

Pelvic Floor Dysfunction - Interstitial Cystitis Association... www.ichelp.org/page.aspx?pid=361

is... http://www.mayoclinic.org/medical-professionals/clinical-updates/general-medical/treating-patients-with-pelvic-floor-dysfunction&ved=0CC0QFjAG&usg=AFQjCNEoUh2L6SKh95DijPupqTK6YQ-LtQ&sig2=6Ynhr_yM0giB_Q9Ut1bCvQ

the links don't work just Google pelvic floor dysfunction & pelvic congestion syndrome. 🙏🌼

May 31, 2015 10:42 AM

Flappsy, Did they explain why they can't use the neurostimulator?? The reason I was wondering is because they also help with nerve pain, They could do the implant of the leads just above where the nerves are giving you issues and that should help with both the nerve problems you're having with your back and also with your urinary/bowel issue. I'm not certain why they can't do it but I guess they have reasons. I was just wondering if they told you the reason they couldn't

May 31, 2015 10:59 AM

AlwayZ, one reason is because they don't want to mask any symptom that may affect Mayo getting to the rot of it all. The second reason is because although it was helping my bladder the first 2 times the therapist changed the placement and method the 3rd time and it reversed the bowel improvement and bladder. I'm coughing real bad and since the 3rd episode of tx I'm now wearing pads to protect my clothes. Oh fun! The doctor said because of this he doesn't think an implanted stim would be good for me but would likely worsen everything. That seems to be the road in on right now. I'm trying to stay positive... 🙏🌼

May 31, 2015 11:10 AM

I'm sorry.... I hope I didn't make you feel worse by asking such questions. I feel so badly. I know you are a very strong lady and I know that even being strong, doesn't mean we can always keep ourselves upbeat. I know that you will stay strong and I know that you know you are never alone. I will always be here for you, Flappsy. I wish there was a way I could give you my phone number. It would be so much easier for you to chat with me if you needed to and you wouldn't have to be typing. I'm sending you gentle hugs and I am praying for you as always. Something along the way has to get better. I hope it does for you and soon.

May 31, 2015 11:58 AM

No you didn't make me feel worse! I'm just feeling so weak today I haven't even got dressed let alone showered. Since yesterday my ability to type words leaves me backtracking half the time to correct. All my jobs required typing so I should know a keyboard! Lol it's probably the dementia. I guess the upside to that is at some point I won't know I'm doing or saying anything wrong or different... Lol 🙏🌼

May 31, 2015 12:07 PM

Flappsy I know that you are very disappointed, that you are having to stop your treatment. But I can also understand that it could mask some of your symptoms when you finally get in to Mayo Clinic. That would not be good for you as long as you have been waiting to be seen by them. It's kind of a catch 22. I'm sorry about your foot hurting you hope it gets better soon. Hopefully you won't have to wait much longer and can get some much needed answers. Will be praying for you.

May 31, 2015 3:51 PM

I'm sure that's it weezie, but it's hard when they give you meds or tx that helps and then something backfires and you stop. Then all the pain starts up again, followed by broken sleep or insomnia. I'll get through it, especially with all the support here. Thanks!! 🙏🌼

Jun 09, 2015 10:24 PM

Flappys, after reading your first comment I am wondering if you hhave any Tarlov cysts.Your symptoms are a lot like mine were. Most doctors ignore them aand they do cause a variety of problems.

Jun 10, 2015 2:35 AM

How is your foot doing Flappsy ? I know how them stopping your treatment for your pelvic floor is going to be more painful at first hopefully you want have to wait long before you get into Mayo Clinic and they can restart them up. I know that me saying that means nothing because you are already having to deal with the pain again. I wish I could help more. Love and hugs sent your way.

Jun 10, 2015 8:39 AM

Zetarlov, thanks for the info on the cysts. I've never heard of them but will check them out. My last myelogram (10/2014) didn't show anything. But I'm sure, as one of my docs said, when I get to Mayo I'll be run through a gamut of tests and examinations from various specialities.

Weezie my for is feeling better but if I stand or walk too much it flares up. I'm having an MRI Friday to check the tendons ligaments and muscles. Doc also said if there is a mild fracture it will show up on the MRI. Thanks for asking.

Hope everyone has a good day! 🙏🌼

Jun 16, 2015 11:08 AM

I have a warning for you. 99% of the docs out there say the cysts cause no pain, but i had surgery for mine by a doctor in Dallas, and am doing 95% better. When those of us go to docs we go with information in hand, or they brush you off as a loon.

Jun 16, 2015 11:29 AM

Zetarlov, I read up on the charts but as of now none of my MRIs of Myelograms show me having one. If it's there maybe Mayo will find it. Thanks for the info! 🙏🌼

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