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Pelvic Pain

Nov 22, 2014 11:53 AM

Does anyone else have it?

Nov 22, 2014 8:38 PM

I have suffered with pelvic pain & pressure for nearly 6 years. After a year and a half seeing a GI specialist with bowel changes, I started bleeding, and having already had a hysterectomy & ovaries removed, I returned to the GYN surgeon. He found a large mass in my abdomen, and by the time they removed it I was already suffering fibromyalgia symptoms. After the surgery my pelvic pain & pressure worsened, so a colon surgeon sent me for a MRI with dye, which showed pelvic congestion of veins....aka pelvic congestion syndrome (PCS). I've had surgery to block off 11 pelvic veins, and though I am some better I still suffer the pain & pressure in the pelvic floor & upper thighs. Because of the mass damage I have pelvic floor dysfunction (PFD). Surprisingly, both men and women can have both, though more common in women. Good luck and May you find your answers sooner than I did.

Nov 30, 2014 8:13 PM

Thanks! Anyone else?

Nov 30, 2014 9:11 PM

I started having pelvic pain about 9 months ago. This is on top of everything else. I knew something was wrong, but the docs still can't say what this pain is caused by. I thought at first I'd got a water infection but tests have ruled that out. I've suffered with neck and lower back pain for 18 years. I have two slipped discs in neck and a bulge and tear in a lower disc. I have trapped nerves and have severe back muscle spasms. I was diagnosed with fibro and raynards syndrome last year. Would like to know what this pain is as I can't get in a comfy position at all now. Rest and sleep are near impossible. I am on a lot of meds for pain. I really didn't think I would feel,pain like this while already on long term pain killers. Feeling really down and fed up with it all. But hope for an answer soon. Hope you get sorted to.

Dec 02, 2014 8:47 AM

Look up Pelvic Congestion Syndrome (PCS). I was diagnosed by a GI doctor, who thankfully listened & was determined to find the cause of my continued pelvic & thigh pain. It hurts to stand or walk long still, but I've had improvement. I'd had a mass removed with major surgery 9-10 months earlier, but the pelvic pain had been present 2 years before surgery. He ordered a MRI with dye, which dye is very important in picking it up on the scans. I traveled 3 hours away to find a doctor with experience in treating PCS. I've had at least 80-90% improvement in most of the pelvic floor pain. However, because it and many problems went undiagnosed so long, I also have Fibromyalgia w/ the fog, IBS with Interstitial cystitis & Pelvic Floor Dysfunction (PFD). It primarily strikes women who've had children, but other women can get PCS as well as men (especially those whove had low abdominal surgery). Don't give up, but find a doctor who will listen, and a specialist with long experience. Good luck!

Dec 02, 2014 11:14 PM

Have you tried seeing a physical therapist? I had pelvic pain for a couple years, which manifested as bladder pain, pain with urination and sex, etc and it turned out I had pelvic floor dysfunction. It's actually quite easy to treat and I felt better within weeks.

Muscles in the pelvic floor can get really tense and over used and irritate other parts of our body nearby which causes pain.

Dec 03, 2014 2:16 AM

I've had pelvic pain but mine was caused from my sacroiliac joint

Dec 04, 2014 2:02 AM

Iv been suffering pelvic pain for a few yrs now and kept being put down to gynaecological..but after a internal camera exam she said its my bowels. .im just waiting on results of mri on my lumber spine no dye inserted. .i can't walk sometimes so hopefully get to the bottom of this x

Dec 10, 2014 4:55 PM

Sarah07, your symptoms are like mine, so painful I could barely walk. The vein specialist said if they'd not used the dye on my MRI, the pelvic vein congestion would have been missed. Hope they don't have to repeat yours with dye.

Dec 10, 2014 5:11 PM

I have pain in my stomach but pain in the pelvis (hip bone)?

Dec 11, 2014 12:28 PM

Hi, yep! I have endometriosis (endometrium grows outside of uterus in abdominal cavity), pelvic congestion syndrome (varicose veins on my uterus) and pelvic floor myalgia (pelvic floor muscles won't effing relax). Hey flappyslady - I haven't met anyone else with PCS!

There's so much going on in the pelvic area and it took me about ten years to get a diagnosis and ultimately surgery. I am still dealing with some undiagnosed hip pain that affects the whole left side of my abdomen, though.

Dec 14, 2014 10:58 PM

Libedon: what surgery did u have? What kind of treatment are
U doing for your Pelvic floor myalgia?

Dec 15, 2014 7:34 AM

I had a laparoscopy where my surgeon used excision and ablation to remove endometriosis and ligated the varicose veins on my uterus.

I actually did physical therapy for pelvic floor myalgia. It sounds super weird but basically they find trigger points in the pelvic floor and help release them. It's a lot of slow manual therapy and it was pretty painful at the beginning but it helped a lot.

Dec 15, 2014 9:20 AM

Libedon, they're referring for of therapy in January. It will be my 3rd round with one type, but now I also need to (treatment) for interstitial cystitis, and may need additional surgery for more pelvic adhesions. I scar externally with keloids. Internally is real bad, they find more every time, and they're always attached to major organs that cause malfunction. Good luck to everyone.

Dec 22, 2014 10:07 AM

I've also had pelvic floor physical therapy and it helped sooooo much! I barely have any noticeable pelvic floor tension anymore, and when I do get a little, I know how to treat it myself at home :)

Dec 28, 2014 12:27 PM

I've had pelvic pain, kind of a low-grade chronic crampy sensation, for 4 or 5 months now. I have poly cystic ovarian syndrome but this pain isn't like when a cyst bursts. I finally saw a GYN about it and he has ordered a pelvic ultrasound which is scheduled for mid January. I am anxious to learn the cause of this pain. I feel overwhelmed though -- the very last thing I need is yet another health problem!

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