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Pelvic pain and general discomfort..vent..

Dec 27, 2016 12:26 PM

It's been a tough two days. I'm five weeks lost op incision is basically closed and surgical pain seems to be much lighter. Unfortunately, fibro pain is returning a d dealing with a new pain sensation of shocked and fire bites.
Today well last two days. My pelvic pain has been much more prominent. Today is just an uncomfortable day. Feeling tired and pain and contraction type issues.
I thought I did well by taking it much easier then I normally do during Christmas but I suppose not.
If anyone has any ideas trick or tips. They are welcome. I've not been able to get the heat pad yet. It's been difficult getting around today and my trios have to be fast and short. My folks are gone so it just me. Hope everyone is have a better day.

Dec 27, 2016 12:34 PM

Weather can have a major effect on fibro too. I don't know where you live but we just had a massive low pressure system move through and it left me in so much pain i couldn't get out of bed. Those are the most frustrating days because it's nothing i did wrong, can't control the weather.

Dec 27, 2016 1:45 PM

I forget about the Weather, I'm in the south and we have major weather fluctuation. It's super foggy today but still excited to be in the 80's. Thanks for the reminder.

Dec 27, 2016 5:45 PM

New, you have been on my mind and in my prayers. I am sorry to hear that your fibro is giving you such a hard time. You will always remain in my prayers, I sorry I haven't posted much but I have been lurking to check and see how everyone is doing. Prayer's my friend and love and support!

Dec 27, 2016 5:46 PM

Thanks, sjogrenspain I appreciate it and totally understand.

Dec 27, 2016 5:49 PM

If you want or need to talk anytime feel free to pm me, I get the notification for those. Much love my friend.

Dec 27, 2016 5:50 PM

Thanks...and the same goes for you. If you need to vent or are just bored..I'm available.. hooe things have not been to bad for you lately.

Dec 27, 2016 6:02 PM

Your welcome, and thank you New, I am Flairing some because of the back and forth cold to warm temperatures. Today we only got to 55 and Thursday is only going to get to 39 as a high. But other than the flair's from the weather change, I'm taking one day at a time.

Dec 27, 2016 8:31 PM

I've been dealing with pelvic pain for over twenty years (Interstitial Cystitis). Try to avoid acidic foods and drinks, drink lots of water (even though it makes you pee more). Also a big help is a supplement that contains Queracetin and bromelain which have anti-inflammatory effects. I take it every night (makes me sleepy) but it really does help. Loose clothing and a nice bath with baking soda to help to alkalize your body. Hope that helps, feel better!

Dec 28, 2016 9:59 AM

Newfibrogirl, I'm sorry you're flaring. I'm in the SE and or weather keeps yo-yoing from the 70's to the 40-50's, and I've been getting 2 weeks straight, especially in my joints. I wish the weather would stabilize one way or the other. Try and stay warm and as comfortable as possible. Hugs love and prayers you continue to heal well & without complications! 🙂💕🙏🌸

Dec 28, 2016 9:17 PM

Oh dear, that doesn't sound good at all.
Now that the pain from having the actual surgery is starting to subside, the pain and contraction type pains could also be from your nerves, veins, muscles and organs trying to settle after having soo much taken out from the surgery.....that they're trying to get accustomed to the space that was left, trying to reestablish blood/nerve contentions that were cut off due to the pressure from the tumors.
Sorry, I'm not sure if I've explained what I mean properly but I can't seem to find the right words to express what I mean, painsomnia has hit again!

If you're unsure if these pains and contraction issues should or shouldn't be happening ring you're discharge team or doctor and explain what's going on then they can either book you an appointment or say that these are normal post op pains as your body settles due to nerves and veins reconnecting and organs finding space that previously wasn't there due to the tumors squashing everything together.

Sending you positive vibes and warm healing hugs xx

Dec 28, 2016 9:21 PM

Thanks sezzy, I understand totally what you mean. The dr mentioned that I would have some of these pain. I'm heading back to PT next week and Im so nervous that the pain is gonna a lot worse at first. Thanks for your advice.

Dec 28, 2016 9:43 PM

After all the surgery your body is going to need to take things very slowly to begin with.
If you find what they're doing is putting too much pressure on you or the pain starts to become unbearable tell them to stop and to slow it down.
You know your body better than anyone else and yes there will be some pain as you start to retrain your body but not excessive amounts of pain because....
1. Stretching yourself too much could reopen freshly healed incisions.
2. You could cause more damage to muscles, nerve or organs if you push yourself too much to begin with.
3. Yes there should be some pain to begin with and throughout your healing journey but not excessive amounts of pain.
4. If you or PT push you too much your fibromialga could flare up soo much that you won't be able to do anything at all then you're back to square one and recovery will take a whole lot longer and end up being a lot more painful.

Dec 28, 2016 9:49 PM

Sorry I didn't meant to go on and type soo much but it seems I can't help myself 😵😵😵 lol.

I hope PT goes well and helps you without causing too much pain and remember to rest after it as well because it will tire you out.
They will probably give you stretches and exercises to do at home as well....do them but if it starts to hurt too much stop doing them and double check you're doing it right and if you are doing it right and continues to be too painful call PT up to make sure they've given you the right exercises xx

Dec 28, 2016 9:56 PM

No worries, and your right on all accounts. It's been over a month since I've done any real activity. I'm still working on learning how this new body works. But I feel pretty confident that these PT's will help me. I think my biggest hurdle is myself. To not stress myself out about any progress or lack there of. I've also have to work on being upfront with my pain.
The nurse in the hospital after my surgery said to me " I see now your the type of that will let me do whatever a d you'll still say it's ok. I'll have to watch you closely" and she is right.. I'm just pre programed to smile and say it's ok. Even if Im in agony. I do t know whats gin a happen during this next leg of my journey but I'm ready for it.

Dec 28, 2016 10:12 PM

Haha I'm the same with the preprogrammed smile saying it's ok then going home and crying my eyes out because it hurts like hell!

Remember slow and steady will help you to retrain your body and give you better long term results but going off too quickly could actually make things worse to how you started.

Keep us posted with how PT goes cause we're all behind you and want to give you as much support as we can xx

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