I have several pen pals and thought it might be fun to have some that share this awful disease. We can definitely relate better!! Anyone interested ? Send me a message ☺ I'm 48 , married and live in north Dakota with 3 fur kids!
Hello there, I'm 50, Single and have 3 fur kids and would love to chat with y'all.. I'm in NY. Count me in. This community is basically an enormous group of pen pals that help each other through our worst times and celebrate with us through our best times. This group is a Godsend and I couldn't be more thrilled that I found it!!🌻🙏🏻
I live in Gimli Manitoba and was diagnosed with fibromyalgia 2013 April. Actually it took a a year for the final diagnosis because they wanted to be cautious. I have had is likely for over 20 years if I look back is my doctor agrees. I have Four pups and three cats they are what make me smile everyday
Southern Indiana here. I was officially diagnosed with fibro in 2008 but suffered for many years prior to that. I also suffer from migraines, arthritis in hands, knees, feet, chronic fatigue syndrome, chronic sinusitis, depression, anxiety, PTSD from a very traumatic incident in my childhood. I have three grown children two in Oklahoma and my son here in Indiana. I have six wonderful grandchildren and 1 fur baby. I am glad I have found this site, for encouragement and support.
I am 46, married, 1 adult child, 1 elementary child 2 dogs. Unable to work due to fibro and multiple spine issues, of course chronic daily pain. Loss of friends first from them thinking I was faking then because I always have to cancel or leave early and of course being broke. No family other than above mentioned. I relocted to the Seattle area and would be so nice to have someone to text with during the day. Maybe even find someone who we can cancel on each other to do things and occasionally actually accomplish getting together.
Just been officially diagnosed with Fibro. I'm 42, male, and married with two kids. I live in St Andrews, Scotland - great for golf, not so good on the Fibro support. So I'm always up for trading experiences or strategies with people who 'get it.' Cheers folks.
Guessing that I'm the only one from Australia on here!! Pen pals would be great i haven't had one since high school. I'm from Adelaide, South Australia. 47 diagnosed with fibro Sept 2014 but docs think I've had it for quite a while, I was previously very fit and active. Where once I had a slim trim 6pack I now have a couple of spare tyres!!..... I have one teenage girl one young boy and an overweight bull mastiff. If anyone is up for a chat. It's morning here. I'm only to happy to have a whinge with someone.
I am 55 years I have lost all my family and friends through this pain no one believes me it took my doctor 4 years to tell me I have fibromyalgia which am still trying to find out what lt is every day the pain kills me am fed up off all the different tablets am taking.i use to be a happy person and fit know I don't like doing anything Chris from Nottingham uk
I'm Serena Sills. I'm 44 years old. I have fibromyalgia, partially ruptured discs in my back, sciatic issues, and loads of other crap. I had isolated myself for awhile from my friends because I didn't want to drag them down and felt like I had nothing to say and really couldn't do anything. I'm just starting to realize that even just visiting and playing cards is better than nothing, and it takes my attention away from my pain. I don't want to be that person that always complains about how they feel so I guessential that's why I stayed home. I'm really glad I found this site because I can talk to people on here and not feel guilty! 😊
I haven't had a pen pal in decades either Flappsy . Count me in. I live in Lufkin,Texas I ha 7 dog's, 5 rabbit's, and one cat. I live with my husband, daughter and her fiancé and ba b y who will be 6 months old on the 22, my sister ,and a cousin. Whew" oh and I am 59.
Shammagren, Have you ever read about Ehlers Danlos syndrome? Asking bc most of us are diagnosed with fibro but the pain is more severe and your pain pattern looks very typical imho. If not, www.ednf.org great place for info, very under diagnosed caused of moderate to very extreme pain. Drs don't know much about it bc when many were in school they were taught prevalence was 1 in 250,000. Now it's believed to be 1 in 5,000 or more common, not such a rare disorder! Anyhow for many joint pain, possible laxity that may become excessive stiffness with age, fibro symptoms, accident prone, and many other symptoms. Just had to comment bc have only seen pain that bad and widespread with other eds ppl...
Hi I'm Cami from Cali- I have 1 real munchkin, 4 canine fur babies that really saved my life, 2 cats that ignore everyone bc they hate the dogs, 1 husband bc I can't seem to convince him that he should let me have two lol. Kidding. Mostly...lol. I'd also love to talk to others in pain, maybe make a what works for me board? I'd like to make friends who understand and tell it like it is but aren't going to only say how much it sucks. It's a fine line bc we all need other to talk to who understand, and that's great and we all should vent, just want to talk about other stuff too :) . Have had pain all my life which became intractable pain about 16 years ago. I have Ehlers Danlos syndrome, degenerative disc disease at all levels, arthritis, fibro, and other issues but most are secondary to the eds. Had terrible pain mgt til last few years, then was great even had a few pain free hours, the insurance changed what needs are allowed last year, and now struggling to get back to better. I use a combination of meds and my "toolbox" stuff like heating pad, Epsom salt baths, meditation, distraction etc. how about you all?
WOW... A lot of folks responding to this thread!!! It would be so great if there was a way that we could all get s notification when we have a message on a specific thread so that we never miss anything important. I try my hardest to be here every day to check in on all my peeps that I have grown so very fond of. This is my therapy. If I can come here and make one person smile, give someone hope or just make someone feel better, it makes my day better. I have just looked at my records and find that I have over a dozen dx or pain causing diseases (many of which cola not be fixed). I have to say that I am going to be goin in for nerve burning procedure in my cervical spine in the beginning of December. I'm scared but am willing to try it and see if it helps me (even if for just a while) because there isn't anything else that is working and with all the wires, laminotomies, hardware, herniated discs and scar tissue from 8 surgeries in that area alone, this may not work either. BUT... If I don't try, I'll never know. We'll just have to wait and see how it goes. In the meanwhile, I'm here, ready, more than willing and able to help out any way I can for those of you who need an ear to bend, a shoulder to cry on (use the right one, the left hurts more.. LOL!!!) or a hug. Love and prayers to all. 🌻🙏🏻💕
Alwaysinpain- did you see my post about the free PDF I'd found - the Intractable Pain Patients Handbook for Survival by Dr Tennant? It's free if you google it and like 70+ pages of great info on almost every option for treating pain between medicines and alternative treatments, picking dr, great stretches that really helps etc? I was at the end of my rope when I found it, also multiple pain issues at first told was MS but now told most from are Ehlers Danlos syndrome & include centralized severe intractable pain, cardiac adrenal syndrome (discussed In the pdf) multiple, joint dislocations & subluxations + many damaged/ torn ligaments and tendons, severe degenerative disc disease & im only in my 30's, cervical kyphosis, ankylosing spondylitis, osteophytes on my spine, fibro, trigeminal neuralgia (also called the suicide disease), TMJ, Reynauds disease, neuralgia (multiple issues), autonomic nervous system dysfunction inc. body temp plunging to 95.9 in. 72* room for no apparent reason/cyanotic finger & toes at times etc. and more. I really thought nothing would help and was told I'd tried about everything short of frying the nerves and I was ready to, no doubt. The advice in that book plus better pain mgt help kept me from having to. And I'd read a bunch and still found hope in this and learned a lot. Maybe it could help?
I'm having really intense pain from my lower back that's radiating down my rt leg and feels like a knife ripping my leg open, never ending burning ripping shredding nothing is touching, and so have to admit I may still have to resort to it. However managed to avoid it for 3 years because of that guide, and hoping the book im reading, found it on amazon for like $9 , How to Fix your Own Back actually helps me. The stretches are relieving at least some of the pain and what I knew to do from my many previous courses of PT was not helping so worth it too. Hope that helps you!!!!
Book I just bought on kindle may be good too, I'll let you know. It was like $2.99 or something so I gave it a shot, it's 'The Pain Cure Rx' by Dr Yass. I know it says generally pain is structural (surgical repair needed then) or connective tissue (stretching etc will help) inclined to think may be correct or on right track because I have particularly intense pain due to Ehlers Danlos, causes genetic defect in collagen, our main connective tissue. Just starting to read it though, so not sure if worth it but was a cheap gamble.
Hi everyone. I would love a pen pal old school or online! I live in Ontario Canada. I am 43, married and have 1 very spoiled cat. I was diagnosed with Fibro in Jan 15. I have been suffering from different issues since the late 90's or later. I had mono in college, then chronic fatigue syndrome, depression, IBS, migraines, bi-polar disorder, sleep apnea, then NOT bi-polar disorder, pre-menstrual dysphoric disorder, arthritis, and now fibro. It seems that every time I go to the Dr we add a new problem these days. I would love having a pen pal. Let me know how all this is going to work. Great idea!
Just wondering if we could maybe swap emails, if anyone is interested? Then at least we could do addresses etc so its a true pen pal and then we don't have all or private details on here for all to see. Or, Facebook. Then we can private message details. Just a thought as I'm a rather private person but I'd love a pen pal and sometimes I have loads to whinge, wine and complain about that could fill pages. I'm pretty sure most would get bored rather quickly.
I would love to be penpals! I have fibro, toxic encephalopathy, asthma, chemical sensitivity, interstitial cystitis, adenomyosis and some other stuff that I've forgotten about. Anyway, my email is firstname.lastname@example.org And i found my password, y'all!! :) I can't wait to hear from y'all. I promise things aren't always crazy. I usually keep my crazy to myself Haha. But you all understand my pain.
I'm so glad a fee of you would like to be pen pals I've had to create a new email just for this. Thought it might be easier for my memory bank. Lol my email is email@example.com look forward to chatting with you all 😊😊
Hi, I am 44, married, had 2 children (one is deceased) the other is in high school. I have 3 cats, 4 dogs, rabbits, chickens, goats, and a cow. I was diagnosed with CRPS/RSD almost 8 weeks ago by my orthopedic surgeon and then I went to see a neurologist and he has not got back to me with a confirmation of that diagnosis, but he did say I had a nerve disorder. Supposed to hear from him later, more hurry up and wait!
My name is michele, I had 6 children and two went to the other side two years ago. I have been diagnosed with fibro and cfds since 1992. That's not what they called back then but none the less. I live in Tacoma Washington. I am 54 years young. I don't have a lot of friends as well, tried to make friends here and the just stole my meds. I gave up. I love to write and would love to be a pen pal.
Michele, heart felt thoughts coming to you from across the ocean. A few of us have put our emails up and (I must admit I'm still in the process of adding them all to my contacts!), if you'd like to add yours I'm sure there's plenty of us who would love to email or write a traditional letter. It's a bit exciting I must admit. Brings back memories of my school days when I had pen pals in Indonesia, I would race home from school in anticipation of another letter. Looking forward to writing to you and whoever else of all you lovely ladies that wants to write as well 😊🌻
I'm Jill, I'm 44 I have 2 human kids and 5 non human kids. 2 canine and 3 feline. I've been suffering from chronic pain for 22 years, other than DDD OA of the spine, still working on getting a diagnosis. Was told by 2 docs I have Fibro, then 2 doctors said it didn't exist. Was told by one doc within 10 minutes of my first appointment that my only problem was that I was bipolar. That shocked me. Anyhow I'm pretty boring, don't really have much to offer. I spend most of my time indoors with my kiddies. firstname.lastname@example.org honestly I'm horrible at correspondence at times. I tend to isolate and avoid when I'm having a rough time. I will try, I don't have anymore real life friends. I live in a small farming town near Fresno California. ✌️💜
Hi I'm 46, married and live in Columbus ohio and would love a fibromyalgia pen pal. I have 3 grown kids, all of them are married and have kids of their own making me a grandma. I love being a grandma but hate staying in sooo much pain on a daily basis. I'v been married to my high school sweetheart going on 28 years on November 6th.
Oh and my name is Brenda Jarmusz, I'm on facebook and my email address is Brendajarmusz69@yahoo.com. anyone is welcome to write me. I love prayers and hugs and I love sending prayers and thoughts and hugs. I hate to see people in pain. I care alot about people. That's why I became a nurse and I loved every minute of it. Until I was injured by a psychiatric patient who had also been in a car accident and had woke from being in a coma, finding out that he lost his parents in the car accident and his wife had been injured.
Thank you alwayz, I have been consumed by grief for these two years. It simply can not be explained losing a child, more over two in the same year. I am now able to go on without constantly feeling like I can not breath without them. Bless you and yours
Anonymous 1971, I can relate to you when you said you isolate and ignore. I have a bad habit of doing the same thing. I use to love talking on the phone for hours and writing letters, then came the texting world and facebook, I loved it and you couldn't get me off it, but now since the extreme pain and fibromyalgia and fatigue, depression, I just haven't wanted to deal with anything or anyone. I hate talking on the phone etc. Until I found this group and realized that I'm not alone. I'm starting to make myself available more. I don't want to be alone in my thoughts and feelings anymore, I have been praying for an answer and I truly feel like this group is the answer, by being on here and talking to others is helping me to come out of my shell and be the fun people person I use to be.
Wow....... What a response!!!!!!!! Count me in too please. I'm 40years old with chronic pain , depression and anxiety fr a car accident iwas in 3 years ago. I have 3adult children, 2 grandchildren which are twins, and 2 fur babies. I live in NL with my husband, my youngest son and girlfriend. You don't hear fr my often but I am always hear reading your posts( which are incredible). My e-mail is email@example.com
Would love to join ur penpal list I'm 53 and have suffered for at least 10 years with fybromyalgia and depression I work full time but find it very hard to cope now ...look forward to hearing from you x
Hi I'm 46, married with 3 children. I live in Wolverhampton, UK. I have fibromyalgia and anxiety disorder. I'm a hypochondriac and currently going through CBT sessions. Going through a lot of pains but afraid to take meds. Only taking paracetamol occasionally and propranolol plus diclofenac gel. Really interested in natural remedy and alternative medicine. So glad to join this community who understand what I'm going thru.
HAMI, HI.. im local Walsall UK. OMG l never realised that there are sooooo many people struggling with fibro out there, its fantastic to hear from others especailly overseas in warmer climates. I send gentle hugs to you all & understanding! These posts are really uplifting for me as l never discuss my symptoms with others apart from my husband. Ive been diagnosed for 8 yrs.
I'm in! I would love an old fashioned pen pal. I'm married, three stepchildren, newly diagnosed. Love reading and gardening. I'm also a type 1.5 diabetic/ LADA sufferer. Have depression and PTSD. I live in beautiful South Wales in the UK. Anyone Interested? Send me an email at Isamar.firstname.lastname@example.org
Hi I'm in Somerset uk - diagnosed with fibro this year and it seems to be getting worse - having to take 6 month resting massive life changes - really fed up with it all I have three grown up boys, two beautiful grandchildren plus four step grandchildren and Arthur our westie My email is email@example.com X
Cvilla I have been up for 2 days straight now with pain, foot cramping and terrible PTSD triggered by a so-called friend. I have taken my Ativan and clonapin and still can't sleep. Now I am getting eaten by mosquitoes and am in Zika counties in Florida I hope that's not it. You can text or call me in the middle of the night, if I am asleep my phone is off 561 374 48 80
Hello everybody, this is a great discussion and I am glad to see that new friendships are forming. However, I would like to suggest not posting your phone numbers (or even email addresses) publicly but rather send your contact information over private messages to each other. Although this is a very kind and supportive community, somebody crazy can join at any time and grab your phone numbers and start bothering you... Hopefully it will never happen but I would like to make you aware that this could happen. All those who would like to have their phone number or email address removed from this discussion thread, can send a brief email to firstname.lastname@example.org and we will replace your number/email with "Please send me a private message to exchange contact details". Please don't forget to mention your username in the email, so we know which post to edit ;-)
For all those who are using the CatchMyPain app and are wondering why they have never seen the private messages feature: Private messaging is only available in our new Pain Companion app. You can login using your CatchMyPain credentials and all your pain diary entries are available in the new app too. You can get the Pain Companion app here:
Can someone send me a PM if they are interested in being my pen pal? I am 20, have fibro, hypermobility syndrome, IBS, GERD, and chronic migraines. I live in Wisconsin, USA and am a student, direct sales consultant, have 4 cats, play ukulele, love to read and write.
I'd love to have a pen pal. Warning, I forget most everything and everyone who isn't in front of me. And I forget my own experiences which causes me to guess and get it wrong. Friends and family believed that was because I'm not truly ill.
I have fibro, ibs, arthritis, other back and knee issues ++ Had a really bad MS flare last week (?) and now only know what happened because I wrote the experience and texted it to myself.
I'm 60 with grown kids. Getting a Portuguese Water Dog in a couple of months. From SF Bay Area, now live with my wonderful youngest daughter and her family in Roy, UT.
Hi. I'm 52, married. 5 grown up kids, 2 fur babies. I live in UK. I'd love pen pals. I've had Fibromyalgia for over 20yrs and now can't work and have to use a wheelchair outside. I have other medical ailments which I won't bore you with, which adds too my pain and fatigue. Bye :-)
Hi julieanne, l've had fibro 8 yrs & im also 52yrs old living in west midlands u.k. l'm married with 3 daughters & 3 grandsons & lm currently off work for the last month due to fibro etc.... I am keen to establish pen pals in u.k & abroad. This site has become a personal friend to me as when l'm struggling with my symptoms l can now read that im not alone. You confirmed that you have had fibro for 20 yrs & now using a wheelchair, how on earth have you coped all these years? Gentle hugs ...Genie2012
Hi Genie2012. Nice to hear from you. I live in Selsey West Sussex. Moved here in April from London as I'm sure the pollution wasn't helping me. You learn to cope with it. I was working full time up until 2 years ago. Had to leave as not only was my pain and fatigue interfering with my work, but fibro fog is taking my memory too. There have been many days where I've thought, what's the point. I have no life now. But my kids and my wee doggies keep me going. There are people worse off than me! Yes this group is great. Not nice to know there are others suffering aswell, but nice to know we are not alone. 😀 xx
I'm 43, married with 1 boy 17 and 2 girls 16 and 15. I have fybro diagnosed a little more of a year. I also have artthritis in knees and feets since i'm 12, i too have migranes, anxiety and depression. I just found this place 2 days ago and i'm really happy to share with people that knows what i'm going through
Oh yes, I am 60 years young with a son & a mentally ill spouse (borderline personality). He is quite functional, has a good job at which he excels...(that is for a different blog). My son is 25 and learning adult role slowly. He is a computer gamer & does not get enough sleep so he has fibro symptoms. Is it okay to put our address in a private message spot as shown on the menu?
I'm 44, married with 2 daughter and an adorable grandson I have fibro and a host of other issues and I'm pretty much home bound.... Tears tears tears... I'm always open to a new friend if your wanting a new pen pal please pm me! Anyone in this thread that wants a pen pal please pm me!
Julie K can we use snail mail? I am in Fresno, California USA. I don't know costs for international mail. I miss getting letters in the mail. I have all kinds of stationary I never use. Is it a go? I would love to hear from you get to know you. I will send private message with my address if you are imterested.
I am. I live in SC... But I do know that international mail cost $1.20 or $1.25 ...just sent some Christmas cards internationally!!! It was so much fun doing a Christmas card swap with friends from here!!!!!
Newbie. I just need you to send me your info in a private message. To send me a private message Just click on my name. It should bring up another screen and under my profile picture is the option to send a private message.
Hi- I'm 47. 4 grown kids - recent empty nester :( I think I have fibro. I've told my dr for years about the pain and muscle spasms.... she just nods her head . I have migraines ( about 3 a week) what does it take to get a diagnosis?? !
Are you seeing a Rheumatologist? For many of us it took a Rheumatologist to get a diagnosis. I think this app will help you as it gives you a way to track your pain.. And a way for your doctors to actually see your pain through the graphs and your notes.
I also deal with migraines. I found a great app to track them. It has helped me to figure out some of the triggers etc. It's called Migraine Buddy if you are interested.
I am not seeing a rheumatologist- Just regular md- but I will look into a rheumatologist. Thank you! Yes I use migraine buddy as well. Very helpful app! Thanks fir your reply. I'm so glad I found this app:)
Gosh it took 12 years to get my gp to send ne to a Rhumy and diagnosed..... keep pushing the doctor. Yes migraines are part of it. Do you have long hair? I did have but cut it pixie style much better now not so many migraines. Glad you found this app such wonderful people here xx
My Pain clinic intervened with my migraines after my car accident - they did nerve blocks in the back of my head (sorry - I can't remember what it was called.. ) Between that and my physical therapist doing dry needling its helped my migraines a lot.
Nope - I have short hair. :) Thanks for all The info. I'm just coming off a 2 day flair with migraine and sore muscles. The more I think about it - things have been going on for about 5 years. Ugh, Thanks again!
I'm new to my diagnosis! I'm 54 divorced 3 children 3 grandchildren. Had all the symptoms of for about 6 yrs. looking forward to having someone share my journey with who understands and can provide advice and guidance.
Just click on my name. It should bring up my profile pic and under it a clickable link that says to send a private message. You just click on it. If you are using the Catch My Pain version of the app you might need to download the pain companion version.