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pen pals and fibro... hope this is ok!

Sep 16, 2015 5:16 PM

I have several pen pals and thought it might be fun to have some that share this awful disease. We can definitely relate better!! Anyone interested ? Send me a message ☺ I'm 48 , married and live in north Dakota with 3 fur kids!

Sep 16, 2015 7:17 PM

Hi there...would love a fibro pen pal. I'm 42,divorced with three older kids and one fur kid.

Sep 18, 2015 4:18 AM

Hello there, I'm 50, Single and have 3 fur kids and would love to chat with y'all.. I'm in NY. Count me in. This community is basically an enormous group of pen pals that help each other through our worst times and celebrate with us through our best times. This group is a Godsend and I couldn't be more thrilled that I found it!!πŸŒ»πŸ™πŸ»

Sep 18, 2015 9:49 AM

I just joined and added this app. 41 divorced with 2 younger boys

Sep 18, 2015 9:50 AM

Oh and I live in NC

Sep 18, 2015 11:16 AM

52, too many fur babies to count, live in Jacksonville, Fl. Would love to chat. :)

Sep 18, 2015 8:23 PM

ShariLynn, are we talking a pen pal topic column (like this, which would go on and on), private chat, or how? I haven't done pen pals in decades.

Sep 19, 2015 3:39 AM

I live in Gimli Manitoba and was diagnosed with fibromyalgia 2013 April. Actually it took a a year for the final diagnosis because they wanted to be cautious. I have had is likely for over 20 years if I look back is my doctor agrees. I have Four pups and three cats they are what make me smile everyday

Sep 19, 2015 5:52 AM

I have 6 pups and 3 cats Sassy. :) (5 chihuahuas 1 blue heeler)

Sep 19, 2015 10:05 AM

I just found the thread again , woops! I was thinking snail mail, but private message is good to. It's nice to have some one who "gets" it. πŸ˜€

Sep 19, 2015 10:58 AM

Southern Indiana here. I was officially diagnosed with fibro in 2008 but suffered for many years prior to that. I also suffer from migraines, arthritis in hands, knees, feet, chronic fatigue syndrome, chronic sinusitis, depression, anxiety, PTSD from a very traumatic incident in my childhood. I have three grown children two in Oklahoma and my son here in Indiana. I have six wonderful grandchildren and 1 fur baby. I am glad I have found this site, for encouragement and support.

Sep 19, 2015 4:58 PM

I am 46, married, 1 adult child, 1 elementary child 2 dogs. Unable to work due to fibro and multiple spine issues, of course chronic daily pain. Loss of friends first from them thinking I was faking then because I always have to cancel or leave early and of course being broke. No family other than above mentioned. I relocted to the Seattle area and would be so nice to have someone to text with during the day. Maybe even find someone who we can cancel on each other to do things and occasionally actually accomplish getting together.

Sep 19, 2015 6:03 PM

48 divorced.. 3 grown kids 1 elementary 3 fur kids Titusville FL space rockets go up across river from me...

Sep 20, 2015 2:35 PM

Hey I'm a fibromyalgia warrior, 30, single and in Milton Keynes UK XXX

Sep 20, 2015 3:46 PM

Im 34 married with 4 kids, no fur kids. I was diagnosed with Fibromyalgia in oct 2013. I live in Salem, OR. My family is from ND, my grandma lives in Fargo.

Sep 20, 2015 4:29 PM

Sounds good to me to me to. I'm 34 and married with two children. Live in NJ. Have RA and fibro. Always nice to have people to talk with.

Sep 20, 2015 5:08 PM

Just been officially diagnosed with Fibro. I'm 42, male, and married with two kids. I live in St Andrews, Scotland - great for golf, not so good on the Fibro support. So I'm always up for trading experiences or strategies with people who 'get it.' Cheers folks.

Sep 20, 2015 6:47 PM

Melissa1981 we just moved from the Albany, OR area to Seattle. Small world!

Sep 20, 2015 7:10 PM

Shammagren yes very small world. We moved from Portland to West Salem last year.

Sep 22, 2015 6:19 PM

Guessing that I'm the only one from Australia on here!! Pen pals would be great i haven't had one since high school. I'm from Adelaide, South Australia. 47 diagnosed with fibro Sept 2014 but docs think I've had it for quite a while, I was previously very fit and active. Where once I had a slim trim 6pack I now have a couple of spare tyres!!..... I have one teenage girl one young boy and an overweight bull mastiff. If anyone is up for a chat. It's morning here. I'm only to happy to have a whinge with someone.

Sep 25, 2015 7:52 AM

I am 55 years I have lost all my family and friends through this pain no one believes me it took my doctor 4 years to tell me I have fibromyalgia which am still trying to find out what lt is every day the pain kills me am fed up off all the different tablets am taking.i use to be a happy person and fit know I don't like doing anything
Chris from Nottingham uk

Oct 17, 2015 6:18 PM

I read back through these today and started to cry. The amount of isolation and loneliness is devastating. This was a great topic I wish more would have been open to this.

Oct 18, 2015 1:00 AM

I'm Serena Sills. I'm 44 years old. I have fibromyalgia, partially ruptured discs in my back, sciatic issues, and loads of other crap. I had isolated myself for awhile from my friends because I didn't want to drag them down and felt like I had nothing to say and really couldn't do anything. I'm just starting to realize that even just visiting and playing cards is better than nothing, and it takes my attention away from my pain. I don't want to be that person that always complains about how they feel so I guessential that's why I stayed home. I'm really glad I found this site because I can talk to people on here and not feel guilty! 😊

Oct 18, 2015 1:01 AM

Oh, I live in Brazi, Indiana.

Oct 18, 2015 1:13 AM

I haven't had a pen pal in decades either Flappsy . Count me in. I live in Lufkin,Texas I ha 7 dog's, 5 rabbit's, and one cat. I live with my husband, daughter and her fiancΓ© and ba b y who will be 6 months old on the 22, my sister ,and a cousin. Whew" oh and I am 59.

Oct 18, 2015 1:58 AM

I want a pen pal but I don't have fibro. I have CRPS lol

Oct 18, 2015 2:23 AM

Me too. I have RSD in my ankle. An Illinois transplant into the San Francisco Bay Area. Hello pain family.

Oct 18, 2015 2:28 AM

Mine started in my ankle too.

Oct 18, 2015 2:31 AM

Jenna it doesn't matter if you have Fibro. There are dozens of dx across the app. What binds us together as a family is CHRONIC PAIN ****

Oct 18, 2015 2:32 AM

You're very right weezie :)

Oct 18, 2015 5:57 AM

Shammagren, Have you ever read about Ehlers Danlos syndrome? Asking bc most of us are diagnosed with fibro but the pain is more severe and your pain pattern looks very typical imho. If not, www.ednf.org great place for info, very under diagnosed caused of moderate to very extreme pain. Drs don't know much about it bc when many were in school they were taught prevalence was 1 in 250,000. Now it's believed to be 1 in 5,000 or more common, not such a rare disorder! Anyhow for many joint pain, possible laxity that may become excessive stiffness with age, fibro symptoms, accident prone, and many other symptoms. Just had to comment bc have only seen pain that bad and widespread with other eds ppl...

Oct 18, 2015 6:05 AM

Hi I'm Cami from Cali- I have 1 real munchkin, 4 canine fur babies that really saved my life, 2 cats that ignore everyone bc they hate the dogs, 1 husband bc I can't seem to convince him that he should let me have two lol. Kidding. Mostly...lol. I'd also love to talk to others in pain, maybe make a what works for me board? I'd like to make friends who understand and tell it like it is but aren't going to only say how much it sucks. It's a fine line bc we all need other to talk to who understand, and that's great and we all should vent, just want to talk about other stuff too :) . Have had pain all my life which became intractable pain about 16 years ago. I have Ehlers Danlos syndrome, degenerative disc disease at all levels, arthritis, fibro, and other issues but most are secondary to the eds. Had terrible pain mgt til last few years, then was great even had a few pain free hours, the insurance changed what needs are allowed last year, and now struggling to get back to better. I use a combination of meds and my "toolbox" stuff like heating pad, Epsom salt baths, meditation, distraction etc. how about you all?

Oct 18, 2015 9:55 AM

WOW... A lot of folks responding to this thread!!! It would be so great if there was a way that we could all get s notification when we have a message on a specific thread so that we never miss anything important. I try my hardest to be here every day to check in on all my peeps that I have grown so very fond of. This is my therapy. If I can come here and make one person smile, give someone hope or just make someone feel better, it makes my day better. I have just looked at my records and find that I have over a dozen dx or pain causing diseases (many of which cola not be fixed). I have to say that I am going to be goin in for nerve burning procedure in my cervical spine in the beginning of December. I'm scared but am willing to try it and see if it helps me (even if for just a while) because there isn't anything else that is working and with all the wires, laminotomies, hardware, herniated discs and scar tissue from 8 surgeries in that area alone, this may not work either. BUT... If I don't try, I'll never know. We'll just have to wait and see how it goes. In the meanwhile, I'm here, ready, more than willing and able to help out any way I can for those of you who need an ear to bend, a shoulder to cry on (use the right one, the left hurts more.. LOL!!!) or a hug. Love and prayers to all. πŸŒ»πŸ™πŸ»πŸ’•

Oct 18, 2015 10:15 AM

Alwaysinpain- did you see my post about the free PDF I'd found - the Intractable Pain Patients Handbook for Survival by Dr Tennant? It's free if you google it and like 70+ pages of great info on almost every option for treating pain between medicines and alternative treatments, picking dr, great stretches that really helps etc? I was at the end of my rope when I found it, also multiple pain issues at first told was MS but now told most from are Ehlers Danlos syndrome & include centralized severe intractable pain, cardiac adrenal syndrome (discussed In the pdf) multiple, joint dislocations & subluxations + many damaged/ torn ligaments and tendons, severe degenerative disc disease & im only in my 30's, cervical kyphosis, ankylosing spondylitis, osteophytes on my spine, fibro, trigeminal neuralgia (also called the suicide disease), TMJ, Reynauds disease, neuralgia (multiple issues), autonomic nervous system dysfunction inc. body temp plunging to 95.9 in. 72* room for no apparent reason/cyanotic finger & toes at times etc. and more. I really thought nothing would help and was told I'd tried about everything short of frying the nerves and I was ready to, no doubt. The advice in that book plus better pain mgt help kept me from having to. And I'd read a bunch and still found hope in this and learned a lot. Maybe it could help?

I'm having really intense pain from my lower back that's radiating down my rt leg and feels like a knife ripping my leg open, never ending burning ripping shredding nothing is touching, and so have to admit I may still have to resort to it. However managed to avoid it for 3 years because of that guide, and hoping the book im reading, found it on amazon for like $9 , How to Fix your Own Back actually helps me. The stretches are relieving at least some of the pain and what I knew to do from my many previous courses of PT was not helping so worth it too. Hope that helps you!!!!

Oct 18, 2015 10:18 AM

Ha oops that's the brain fog, I didn't realize same poster I feel soo dumb!

Oct 18, 2015 10:18 AM

In my defense I didn't sleep yet...(blush)

Oct 18, 2015 10:22 AM

Book I just bought on kindle may be good too, I'll let you know. It was like $2.99 or something so I gave it a shot, it's 'The Pain Cure Rx' by Dr Yass. I know it says generally pain is structural (surgical repair needed then) or connective tissue (stretching etc will help) inclined to think may be correct or on right track because I have particularly intense pain due to Ehlers Danlos, causes genetic defect in collagen, our main connective tissue. Just starting to read it though, so not sure if worth it but was a cheap gamble.

Oct 18, 2015 10:25 AM

I sure did and I responded to it and you to me... I'm getting it today and will let you know what I think of it. {{{Hugs}}}πŸ’•

Oct 18, 2015 11:11 AM

Thanks Cami I am going to check out that link

Oct 18, 2015 4:58 PM

Hi everyone. I would love a pen pal old school or online! I live in Ontario Canada. I am 43, married and have 1 very spoiled cat. I was diagnosed with Fibro in Jan 15. I have been suffering from different issues since the late 90's or later. I had mono in college, then chronic fatigue syndrome, depression, IBS, migraines, bi-polar disorder, sleep apnea, then NOT bi-polar disorder, pre-menstrual dysphoric disorder, arthritis, and now fibro. It seems that every time I go to the Dr we add a new problem these days. I would love having a pen pal. Let me know how all this is going to work. Great idea!

Oct 18, 2015 6:15 PM

I'm 45 married with 4 children and 1 grandson. 2 furbabies. I was diagnosed 2 years ago. I live in London Uk .

Oct 19, 2015 12:08 AM

Just wondering if we could maybe swap emails, if anyone is interested? Then at least we could do addresses etc so its a true pen pal and then we don't have all or private details on here for all to see. Or, Facebook. Then we can private message details. Just a thought as I'm a rather private person but I'd love a pen pal and sometimes I have loads to whinge, wine and complain about that could fill pages. I'm pretty sure most would get bored rather quickly.

Oct 19, 2015 12:33 AM

I agree with you, ouch it hurts. I'm very private about some things too and it would be nice to swap emails or Facebook :p

Oct 19, 2015 9:00 AM

Ouchithurts, I would never get bored... Look, anyone wants to chat with me, here is my e-mail address: Ladygirl94@aol.com feel free to hit me up if you need me!!

Oct 19, 2015 1:47 PM

I would love to be penpals! I have fibro, toxic encephalopathy, asthma, chemical sensitivity, interstitial cystitis, adenomyosis and some other stuff that I've forgotten about. Anyway, my email is kungfukittay@gmail.com
And i found my password, y'all!! :)
I can't wait to hear from y'all. I promise things aren't always crazy. I usually keep my crazy to myself Haha. But you all understand my pain.

Big hugs!

Oct 19, 2015 4:31 PM

I'm so glad a fee of you would like to be pen pals I've had to create a new email just for this. Thought it might be easier for my memory bank. Lol my email is ouchithurts12@gmail.com look forward to chatting with you all 😊😊

Oct 19, 2015 4:32 PM

That should read a few** go the morning fibro brain

Oct 19, 2015 8:01 PM

Hi, I am 44, married, had 2 children (one is deceased) the other is in high school. I have 3 cats, 4 dogs, rabbits, chickens, goats, and a cow. I was diagnosed with CRPS/RSD almost 8 weeks ago by my orthopedic surgeon and then I went to see a neurologist and he has not got back to me with a confirmation of that diagnosis, but he did say I had a nerve disorder. Supposed to hear from him later, more hurry up and wait!

Oct 19, 2015 9:02 PM

I hope everything works out well lost mom!!!

Oct 20, 2015 4:39 AM

My name is michele, I had 6 children and two went to the other side two years ago. I have been diagnosed with fibro and cfds since 1992. That's not what they called back then but none the less. I live in Tacoma Washington. I am 54 years young. I don't have a lot of friends as well, tried to make friends here and the just stole my meds. I gave up. I love to write and would love to be a pen pal.

Oct 20, 2015 9:45 AM

Michele, I am so sorry to hear that your suffering the loss of two of your children. I can't imagine what that must be like. {{{{Hugs}}}} and prayers from my heart to yoursπŸ™πŸ»πŸŒ»

Oct 20, 2015 9:58 AM

Michele, heart felt thoughts coming to you from across the ocean. A few of us have put our emails up and (I must admit I'm still in the process of adding them all to my contacts!), if you'd like to add yours I'm sure there's plenty of us who would love to email or write a traditional letter. It's a bit exciting I must admit. Brings back memories of my school days when I had pen pals in Indonesia, I would race home from school in anticipation of another letter. Looking forward to writing to you and whoever else of all you lovely ladies that wants to write as well 😊🌻

Oct 20, 2015 10:40 AM

I'm Jill, I'm 44 I have 2 human kids and 5 non human kids. 2 canine and 3 feline. I've been suffering from chronic pain for 22 years, other than DDD OA of the spine, still working on getting a diagnosis. Was told by 2 docs I have Fibro, then 2 doctors said it didn't exist. Was told by one doc within 10 minutes of my first appointment that my only problem was that I was bipolar. That shocked me. Anyhow I'm pretty boring, don't really have much to offer. I spend most of my time indoors with my kiddies. vikinglover71@live.com honestly I'm horrible at correspondence at times. I tend to isolate and avoid when I'm having a rough time. I will try, I don't have anymore real life friends. I live in a small farming town near Fresno California. βœŒοΈπŸ’œ

Oct 20, 2015 8:44 PM

I just realized I forgot to put my email on here. ga_essen@hotmail.com

Oct 20, 2015 11:48 PM

Hi I'm 46, married and live in Columbus ohio and would love a fibromyalgia pen pal. I have 3 grown kids, all of them are married and have kids of their own making me a grandma. I love being a grandma but hate staying in sooo much pain on a daily basis. I'v been married to my high school sweetheart going on 28 years on November 6th.

Oct 20, 2015 11:53 PM

Oh and my name is Brenda Jarmusz, I'm on facebook and my email address is Brendajarmusz69@yahoo.com. anyone is welcome to write me. I love prayers and hugs and I love sending prayers and thoughts and hugs. I hate to see people in pain. I care alot about people. That's why I became a nurse and I loved every minute of it. Until I was injured by a psychiatric patient who had also been in a car accident and had woke from being in a coma, finding out that he lost his parents in the car accident and his wife had been injured.

Oct 21, 2015 12:06 AM

Thank you alwayz, I have been consumed by grief for these two years. It simply can not be explained losing a child, more over two in the same year. I am now able to go on without constantly feeling like I can not breath without them. Bless you and yours

Oct 21, 2015 6:30 AM

I would love to do this. I am on board for snail mail. If anyone would like my address please let me know. My email is crisrich030876@gmail.com

Oct 21, 2015 7:35 AM

Moshell I am so sorry for your losses. I lost my oldest son in a work accident last summer. May your children rest in peace in Paradise.

Oct 25, 2015 7:26 PM

Anonymous 1971, I can relate to you when you said you isolate and ignore. I have a bad habit of doing the same thing. I use to love talking on the phone for hours and writing letters, then came the texting world and facebook, I loved it and you couldn't get me off it, but now since the extreme pain and fibromyalgia and fatigue, depression, I just haven't wanted to deal with anything or anyone. I hate talking on the phone etc. Until I found this group and realized that I'm not alone. I'm starting to make myself available more. I don't want to be alone in my thoughts and feelings anymore, I have been praying for an answer and I truly feel like this group is the answer, by being on here and talking to others is helping me to come out of my shell and be the fun people person I use to be.

Oct 26, 2015 7:07 PM

Wow....... What a response!!!!!!!!
Count me in too please. I'm 40years old with chronic pain , depression and anxiety fr a car accident iwas in 3 years ago. I have 3adult children, 2 grandchildren which are twins, and 2 fur babies. I live in NL with my husband, my youngest son and girlfriend. You don't hear fr my often but I am always hear reading your posts( which are incredible). My e-mail is aunnie7@hotmail.com

Nov 03, 2015 3:03 AM

Vintagebutterfly I'm in Havant UK, I'm 26, fancy a chat?

Anyone else who fancies a chat too

Lizardlace11@googlemail.com

I am in a relationship, I have a step daughter and 2 cats

Nov 03, 2015 8:21 AM

Amanda, I didn't see anything from you. I'll check again. Sorry my friend.. Just a bit distracted trying to study.

Jul 29, 2016 3:54 AM

Would love to join ur penpal list I'm 53 and have suffered for at least 10 years with fybromyalgia and depression I work full time but find it very hard to cope now ...look forward to hearing from you x

Jul 29, 2016 2:16 PM

Hi I'm 46, married with 3 children. I live in Wolverhampton, UK. I have fibromyalgia and anxiety disorder. I'm a hypochondriac and currently going through CBT sessions. Going through a lot of pains but afraid to take meds. Only taking paracetamol occasionally and propranolol plus diclofenac gel. Really interested in natural remedy and alternative medicine. So glad to join this community who understand what I'm going thru.

Jul 29, 2016 11:49 PM

Count me in, too!

Jul 31, 2016 4:53 AM

HAMI, HI.. im local Walsall UK. OMG l never realised that there are sooooo many people struggling with fibro out there, its fantastic to hear from others especailly overseas in warmer climates. I send gentle hugs to you all & understanding! These posts are really uplifting for me as l never discuss my symptoms with others apart from my husband. Ive been diagnosed for 8 yrs.

Jul 31, 2016 5:04 AM

Hi everyone I'm 30 and can't sleep I can't take this anymore

Jul 31, 2016 5:16 AM

Hi cvilla, i know its hard when you cant sleep due to pain & other symptoms etc. Just remember you are not alone - gentle hugs.

Jul 31, 2016 7:32 AM

I'm in! I would love an old fashioned pen pal. I'm married, three stepchildren, newly diagnosed. Love reading and gardening. I'm also a type 1.5 diabetic/ LADA sufferer. Have depression and PTSD. I live in beautiful South Wales in the UK. Anyone Interested? Send me an email at Isamar.carrillo@gmail.com

Aug 01, 2016 1:51 AM

Hi I'm in Somerset uk - diagnosed with fibro this year and it seems to be getting worse - having to take 6 month resting massive life changes - really fed up with it all
I have three grown up boys, two beautiful grandchildren plus four step grandchildren and Arthur our westie
My email is franstockwell15@live.co.uk
X

Aug 03, 2016 10:42 AM

Cvilla I have been up for 2 days straight now with pain, foot cramping and terrible PTSD triggered by a so-called friend. I have taken my Ativan and clonapin and still can't sleep. Now I am getting eaten by mosquitoes and am in Zika counties in Florida I hope that's not it. You can text or call me in the middle of the night, if I am asleep my phone is off 561 374 48 80

Aug 05, 2016 11:44 AM

Hello everybody, this is a great discussion and I am glad to see that new friendships are forming. However, I would like to suggest not posting your phone numbers (or even email addresses) publicly but rather send your contact information over private messages to each other. Although this is a very kind and supportive community, somebody crazy can join at any time and grab your phone numbers and start bothering you... Hopefully it will never happen but I would like to make you aware that this could happen. All those who would like to have their phone number or email address removed from this discussion thread, can send a brief email to support@paincompanion.com and we will replace your number/email with "Please send me a private message to exchange contact details". Please don't forget to mention your username in the email, so we know which post to edit ;-)

For all those who are using the CatchMyPain app and are wondering why they have never seen the private messages feature: Private messaging is only available in our new Pain Companion app. You can login using your CatchMyPain credentials and all your pain diary entries are available in the new app too. You can get the Pain Companion app here:

iPhone: https://appsto.re/ch/i5DV6.i

Android: https://play.google.com/store/apps/details?id=com.sanovation.paincompanion

Kind regards,
Daniel

Aug 08, 2016 8:30 PM

Can someone send me a PM if they are interested in being my pen pal? I am 20, have fibro, hypermobility syndrome, IBS, GERD, and chronic migraines. I live in Wisconsin, USA and am a student, direct sales consultant, have 4 cats, play ukulele, love to read and write.

Aug 09, 2016 1:15 AM

I'd love to have a pen pal.
Warning, I forget most everything and everyone who isn't in front of me. And I forget my own experiences which causes me to guess and get it wrong. Friends and family believed that was because I'm not truly ill.

I have fibro, ibs, arthritis, other back and knee issues ++ Had a really bad MS flare last week (?) and now only know what happened because I wrote the experience and texted it to myself.

I'm 60 with grown kids. Getting a Portuguese Water Dog in a couple of months. From SF Bay Area, now live with my wonderful youngest daughter and her family in Roy, UT.

Aug 09, 2016 3:06 AM

Hi. I'm 52, married. 5 grown up kids, 2 fur babies. I live in UK. I'd love pen pals. I've had Fibromyalgia for over 20yrs and now can't work and have to use a wheelchair outside. I have other medical ailments which I won't bore you with, which adds too my pain and fatigue. Bye :-)

Aug 09, 2016 5:27 AM

Hi julieanne, l've had fibro 8 yrs & im also 52yrs old living in west midlands u.k. l'm married with 3 daughters & 3 grandsons & lm currently off work for the last month due to fibro etc.... I am keen to establish pen pals in u.k & abroad. This site has become a personal friend to me as when l'm struggling with my symptoms l can now read that im not alone. You confirmed that you have had fibro for 20 yrs & now using a wheelchair, how on earth have you coped all these years? Gentle hugs ...Genie2012

Aug 09, 2016 6:19 AM

Hi Genie2012. Nice to hear from you. I live in Selsey West Sussex. Moved here in April from London as I'm sure the pollution wasn't helping me. You learn to cope with it. I was working full time up until 2 years ago. Had to leave as not only was my pain and fatigue interfering with my work, but fibro fog is taking my memory too. There have been many days where I've thought, what's the point. I have no life now. But my kids and my wee doggies keep me going. There are people worse off than me! Yes this group is great. Not nice to know there are others suffering aswell, but nice to know we are not alone. πŸ˜€ xx

Aug 21, 2016 10:38 PM

I'm 43, married with 1 boy 17 and 2 girls 16 and 15. I have fybro diagnosed a little more of a year. I also have artthritis in knees and feets since i'm 12, i too have migranes, anxiety and depression. I just found this place 2 days ago and i'm really happy to share with people that knows what i'm going through

Sep 24, 2016 8:37 PM

ShariLynn - my daughter lives in Fargo.

Oct 06, 2016 2:28 PM

Hi. I would love to have a penpal who has fibromyalgia.....i have a husband of 25 years. He is the best....i have 2 cats and 1 dog.

Oct 06, 2016 5:31 PM

Well I don't have fibro, i have degenerative disc disease, herniated discs and osteoarthritis. But i would love yo have a pen pal. I am 26 and i am a stay at home mum. I live in Brisbane Australia.

Oct 06, 2016 7:11 PM

When do we start talking to our pen pals?

Dec 25, 2016 3:14 AM

Melissa 1981...
Are you located anywhere near
the Frida Center for fibromyalgia

Dec 25, 2016 3:15 AM

It's near Portland, OREGON.

Dec 25, 2016 3:16 AM

Don't we need to exchange addresses for our snail mail letters?

Dec 25, 2016 3:35 AM

Oh yes, I am 60 years young with a son & a mentally ill spouse (borderline personality). He is quite functional, has a good job at which he excels...(that is for a different blog). My son is 25 and learning adult role slowly. He is a computer gamer & does not get enough sleep so he has fibro symptoms. Is it okay to put our address in a private message spot as shown on the menu?

Dec 25, 2016 7:40 AM

35, in yorkshire.. uk... great idea for gibro penpals

Dec 27, 2016 4:30 AM

Anyone pens with a belgium women of 30 years

Dec 27, 2016 5:11 AM

Saskiaterrmote sprichst du Deutsch? I am learning, also have fibro (or something) and would love to chat.

Dec 27, 2016 7:54 AM

I'm 44, married with 2 daughter and an adorable grandson I have fibro and a host of other issues and I'm pretty much home bound.... Tears tears tears... I'm always open to a new friend if your wanting a new pen pal please pm me! Anyone in this thread that wants a pen pal please pm me!

Dec 27, 2016 9:39 AM

Julie K can we use snail mail? I am in Fresno, California USA. I don't know costs for international mail. I miss getting letters in the mail. I have all kinds of stationary I never use. Is it a go? I would love to hear from you get to know you. I will send private message with my address if you are imterested.

Dec 27, 2016 9:53 AM

I am. I live in SC... But I do know that international mail cost $1.20 or $1.25 ...just sent some Christmas cards internationally!!! It was so much fun doing a Christmas card swap with friends from here!!!!!

Dec 27, 2016 9:56 AM

Is that South Carolina USA? If so no problem. I will private msg with my address.

Dec 27, 2016 9:57 AM

Yes ma'am... With my southern drawl... Lol

Dec 28, 2016 9:02 AM

Anytime you wanna message, im here, nice to have people to talk to that understand what I'm going through. Seems to be even harder as a man to find people because more women get fibro

Dec 28, 2016 12:44 PM

Once I get to my destination I will gladly start a pen pal snail mail like I did for the Christmas Cards. Am traveling today though so it may be a day or two before I can get it organized. :)

Jan 06, 2017 12:23 AM

I would love to have a pen pal! I'm 20 and I love I'm new york. Never married and have a furbaby!

Jan 06, 2017 10:03 AM

Sissy
If you would send me a private message with your name and mailing address I will gladly add you to the pen pal list.

Jan 06, 2017 10:06 AM

Also would love a pen pal lol xx

Jan 06, 2017 10:23 AM

MyscticMum
I just posted a new message on how to be a pen pal. But basically I just need you to send me a private message with your name and address on it so I can get you added to the list.

Jan 06, 2017 12:13 PM

I would love a pen pal this is so cool

Jan 06, 2017 12:34 PM

Newbie. I just need you to send me your info in a private message. To send me a private message Just click on my name. It should bring up another screen and under my profile picture is the option to send a private message.

Jan 06, 2017 4:28 PM

I clicked on your name and it keeps pulling up a picture of your pain chart and doesn't let me do anything from there

Jan 06, 2017 4:36 PM

Click once on Mimikay here, then on her profile screen select the box to send a private messageπŸ˜€

Jan 06, 2017 4:42 PM

Hmm.. I tried to send newbiefibro a private message but got a message saying they were using an older version of the app and couldn't receive private messages?

Anyone know what that's about? Newbie - what app are you using? The pain companion or the Catch My Pain?

Jan 06, 2017 4:51 PM

I just downloaded pain companion I can do it now it was cause I had the older app

Jan 06, 2017 4:57 PM

Yea! Got your message.

Jan 07, 2017 4:49 PM

Hi- I'm 47. 4 grown kids - recent empty nester :(
I think I have fibro. I've told my dr for years about the pain and muscle spasms.... she just nods her head . I have migraines ( about 3 a week) what does it take to get a diagnosis?? !

Jan 07, 2017 5:31 PM

Are you seeing a Rheumatologist? For many of us it took a Rheumatologist to get a diagnosis. I think this app will help you as it gives you a way to track your pain.. And a way for your doctors to actually see your pain through the graphs and your notes.

I also deal with migraines. I found a great app to track them. It has helped me to figure out some of the triggers etc. It's called Migraine Buddy if you are interested.

Jan 07, 2017 5:58 PM

I am not seeing a rheumatologist- Just regular md- but I will look into a rheumatologist. Thank you!
Yes I use migraine buddy as well. Very helpful app!
Thanks fir your reply. I'm so glad I found this app:)

Jan 07, 2017 6:08 PM

Gosh it took 12 years to get my gp to send ne to a Rhumy and diagnosed..... keep pushing the doctor. Yes migraines are part of it. Do you have long hair? I did have but cut it pixie style much better now not so many migraines. Glad you found this app such wonderful people here xx

Jan 07, 2017 6:22 PM

My Pain clinic intervened with my migraines after my car accident - they did nerve blocks in the back of my head (sorry - I can't remember what it was called.. ) Between that and my physical therapist doing dry needling its helped my migraines a lot.

Jan 07, 2017 6:28 PM

Nope - I have short hair. :)
Thanks for all
The info. I'm just coming off a 2 day flair with migraine and sore muscles.
The more I think about it - things have been going on for about 5 years. Ugh,
Thanks again!

Jan 07, 2017 6:47 PM

I'm new to my diagnosis! I'm 54 divorced 3 children 3 grandchildren. Had all the symptoms of for about 6 yrs. looking forward to having someone share my journey with who understands and can provide advice and guidance.

Jan 07, 2017 11:51 PM

If you are looking for Penpals please send me a private message with your name And address so I can get you added to the list.

Jan 08, 2017 12:06 AM

How do I send a private message?

Jan 08, 2017 12:28 AM

Just click on my name. It should bring up my profile pic and under it a clickable link that says to send a private message. You just click on it. If you are using the Catch My Pain version of the app you might need to download the pain companion version.

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