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Penpals and CRPS/RSD . . . I badly want to have some penal with this condition . . .

Jul 31, 2016 11:14 AM

My name is Ema, I am 40 and I live in England in the UK. I have 5 physical disabilities and a severe mental illness and so I'm classed as being complex. I have an 11yr old chocolate Labrador and 2 cats, my female feline is 12 and my black and white cat is 7. I really need to chat to someone regularly with CRPS/RSD,

Jul 31, 2016 11:34 AM

ThelceQueen2012, I'm sorry to hear that you have been Plagued with RSD/CRPS. I have had it for several years now. I am 51, live across the pond in the USA and live in chronic pain 24/7/365. I always had anxiety and depression issues from the time I was a young girl but now it's gotten really bad and with all of the autoimmune issues I have, it has gotten worse. I've had 30 surgeries over the last 23 years and the RSD/CRPS has settled into all the areas that I have been operated on and a few areas that I've not had anything done to. It's a hideous disease and it breaks my heart to hear when someone is diagnosed with it. This community family is a great place to meet new people and learn from them and compare notes and treatment plans. We are very supportive of one another and take each other's hand when someone needs a lift. There are several of us here that do have this terrible disease and I'm sure that you'll be meeting them soon. I wish you the best and hope that you settle in and get to know us. {{{Hugs}}}💕🙏🏻🌻😊

Aug 01, 2016 1:05 PM

Hello Queenie ⚘⚘⚘
Welcome to the community 🤗
Whereabouts in the uk are u sweetie? 🐫 i live in Basingstoke Hampshire in the south 🌹
So nice to meet u x

Aug 01, 2016 6:15 PM

Hey Lula below
Thank you. :-)
I'm from Southend-on-Sea in Essex. I lived in Alton in Hampshire for a couple of years in my 20's.

Aug 01, 2016 6:17 PM

I'm really sorry Lulabel, stupid autocorrect, grrr!!!
It's so nice to meet you too x

Aug 01, 2016 10:43 PM

I live in Australia and have crsp (the craps) abd fibro....

Aug 02, 2016 1:20 AM

Hello there, I just turned 38 years old and I have RSD/CRPS and Ankylosing Spondylitis. As of recent :) I have been diagnosed with many things over the years and some have proved inaccurate and some have come back. Welcome!

Aug 02, 2016 3:01 AM

Hi Queenie ⚘
Thats cool... i take my son to the orthodontist in Alton this Thursday! Its a lovely little town. Do u have any family this way hunni? 🌹

Aug 02, 2016 7:58 AM

Hey Ema, how are you?

Aug 02, 2016 9:42 AM

I have RSD, Fibromyalgia, and Chronic Pain Syndrome. Rsd for 16yrs, fibro for 2ys.... it sucks. I did find a really good balance for years and was pretty happy. So it is possible. But then fibro and other health issues tipped me over and I'm struggling again. I'm hoping I'll find that nice balance soon! This is a great place for support!!

Aug 03, 2016 9:36 AM

Gardener, I have RSD as well as fibro and DDD, with depression,anxiety and PTSD. I was diagnosed almost 2 years ago and walk with a cane. I had it under control with dilaudid and Fentora/subsys but I can't afford that anymore. After my move and falling off of a step ladder, I really have been in excruciating pain. I wish all of you the best. Bob Marley's nephew did a documentary he is trying to get on Netflix since his aunt has RSD. Google it's quite interesting.

Aug 03, 2016 6:33 PM

Hi Lulabel, no I'm afraid not, my family are all based in various areas of Essex, however I was a residential student at the Lord Mayor Treloar Specialist College of Education.

Aug 15, 2016 1:16 AM

Hell Queenie 🌷
Sorry i missed this from 11days ago 😲...im from Staines... Ali G country... i actually live on the 'westside' 🤘

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