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People who have MS...

Aug 22, 2016 7:48 PM

Hi everyone. I just wanted to know when did your symptoms begin and do you recall about how old you were when the symptoms started. I have been dealing with chronic pain of my back, legs and arms since 2012. It started right after I turned 30. I have been dealing with chronic migraines since about the age of 8. My feet, legs, mid thighs, fingertips, and buttocks were numb 24/7 for exactly 10 months. The numbness went away, but the pain remained and has progressively gotten worse. MS runs in my family and I'm afraid I have it. One symptom that scares me the most is a tight sensation like something is squeezing my sides around my rib cage. And it hurts to breathe. If anyone could share their experience with how it started for them I would appreciate it so much.

Aug 22, 2016 8:13 PM

TyGamer, I do not have MS but I DO experience the problem you describe with the ribcage. There's pain in my sternum and it radiates all around the ribcage making it difficult to get a decent breath and it is quite painful. When I had it checked out, I was told I had Costochondritis and those are the classic symptoms. My sternum actually pop or cracks (most folks aren't aware that there's a joint there) and it doesn't feel really good when it does. Although sometimes it will release the tightness for a short while. I hope you get the answers you need. If MS runs in your family, they can do an MRI and if you have it, there will be lesions on the brain (I don't know a lot about it but I'm certain that someone who does will pop along soon and let you know and will correct me if I'm wrong.) By the way, they couldn't do the MRI for me due to wires in my spine. So I don't know what other tests they're going to run to check for it. Best wishes and sending you {{{Hugs}}}πŸ’•πŸ™πŸ»πŸŒ»πŸ˜Š

Aug 22, 2016 8:34 PM

Thank you so much Alwayz! I appreciate your reply. I'm just trying to think of everything I can do to make sure my doctors are doing what the should to diagnose me and to see how others are coping and if we are experiencing some of the same things. This app is such a God send.

Aug 23, 2016 3:59 AM

Hello TY ⚘
I have been dx with MS for 14 years but my symptoms go back in my history to when i was about 15... (thats 30yrs now) omg when did i get so old lol!

What u r describing sounds very much like 'MS HUG'... It feels like someone is sitting on ur chest...stopping u from breathing. I used to get it all the time. Mine was all around, but it can be a partial feeling around the torso. It was painful and scarey at its worse! But mind over matter... its just a feeling of tightness and not actually damaging. I will post a link in the next chat box ok hunni x

Aug 23, 2016 4:15 AM

Lulabel, I knew that if I was mistaken, someone would come and post what the situation really is. Thank you for that and for teaching me something new. I've learned so very much in this forum. πŸ‘ŒπŸΌπŸ’•πŸ˜πŸ«

Aug 23, 2016 7:55 PM

TyGamer, welcome to our community family! I've had multiple symptoms of MS for three years. They ran an MRI and it showed I have changed in my frontal lobe, but could not say it was our wasn't MS. So they did a spinal tap. It came out fine. The doc sent me to Mayo clinic for further tests, and it turns out I have a problem with the 8th cranial nerve causing the dizziness & imbalance, along with dementia/memory loss. My neurologist and the docs at Mayo said they cannot say I don't have MS, as I have multiple symptoms, but it sometimes takes years to get it diagnosed. At this point I'm pretty sure mine is multiple different diagnoses that when out together like like MS. At least I hope so. I hope you are seeing a doctor, and track every odd symptoms no matter how short or long it lasts. The neurologist told me to do this, because he said it's like putting a puzzle together to get the final diagnosis. Hugs love and prayers you find out sooner than later! πŸ™‚πŸ’•πŸ™πŸŒΈ

Sep 02, 2016 5:18 PM

Thank you everyone. I have my MRI scheduled for Monday so here's to them finding it. I know that's weird to say but I just want them to diagnose me so they can start treating me.

Sep 02, 2016 7:36 PM

Try, I too suffer from MS and Chronic Migraines. The headaches began in my early 20's with my MS symptoms beginning I suspect around the same time. However, my MS went undiagnosed for many years, and I was well into my 30's b/4 I was @ long last diagnosed. I continue to have these unrelenting headaches which appear to defy treatment. I hate the ER which I have to use far too often. I am fortunate in that in terms of support my healthcare team does a spot on job of keeping me in the loop. They call, text and pretty much can accommodate my ever present need for whatever. I have a whole spectrum of doctors from primary care, neurology, gastroenterology, immunology that follow me. For all of that I am forever thankful, but I do get down ever so often. Numbness and tingling comes and goes and travels to many of the areas you speak of, all I can tell you is to hang in there, you may have good and bad times but speaking out helps.

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