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People with hypermobility

Mar 03, 2018 6:13 AM

Please can you tell me what your treatment is so I can have a talk to the doctor and see if he thinks it would work for me

Mar 04, 2018 3:26 AM

I'm currently using lidocane patches with Tramadol, but if you can try it, naltrexone in absurdly small doses (.05 yes, .05 mg or less) has been shown to work well in EDS patients. Suboxone willrelaxer even similar effects. My old doctor had me OD on suboxone insisting it was the right dose and would work like naltrexone does. Got to talk with an EDS pain expert and he did say that it will NOT work the same.

I also take muscle relaxers as needed. When something pops and the muscle siezes up that's needed fat more than some pain killer. The trick is learning when you need that versus a pain killer. I am also in physical therapy. Try to find a balance and vistibular physical therapist, as they have more experience building the kinds if muscles we need built and can help with some if the propioception issues. Of course an EDS expert is preferred, but there's only a few of them.

Also going to try injections next week. I can let you know how it goes.

Try to get a doctor that will do their research. You don't get good results with doctors not used to treating EDS. Even if you have HSD, its currently (supposed to be) treated the same as EDS Hypermobility type. The problem is our bodies tend to react to everything very different than your usual patient, so some medications you may barely react to, and some will hit you like a truck. Always insist to start low and go slow.

Mar 04, 2018 7:10 AM

Thank you
Please can u let me know How the injections go

Mar 04, 2018 12:04 PM

Sure, I go on Tuesday. Feel free to remind me if I don't reply.

Mar 08, 2018 1:38 PM

How did the injections go

Mar 12, 2018 8:20 PM

I take tizadine for my hyper mobility.
But I also have insomnia and it helps with that, and my fibromyalgia

Apr 24, 2018 7:53 AM

I saw a specialist physio. She helped me go from wheelchair during first pregnancy to being completely mobile (albeit still sore most days) with third child. For my hyper mobility is restrained when there is stronger and switched on muscles that are responsive. Also has to lean how to stand differently to reduce pain and wear on knee joints.

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