Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

PIP & fibromyalgia

Jul 07, 2016 4:05 AM

Hi does anyone claim this, I have DDD & fibromyalgia and have got an appeal. Just wondered if anyone else has gone through this. 😖😩😤

Jul 07, 2016 4:32 AM

Are you going through the appeals process?

Jul 07, 2016 1:47 PM

Me too how long is the wait normally, I've not sent my forms back yet. xxx

Jul 07, 2016 4:59 PM

Sorry haha, I'm in Liverpool in the uk. I'm sending my forms off tomorrow but wasn't sure how long this normally takes. It's all new to me. 😖

Jul 07, 2016 5:09 PM

I have fibro and get Pip. Told them about difficulties in my mobility and daily living, I got it uncontested. It's just a shame we get good days and bad days because they don't see it as continual illness.

Jul 07, 2016 5:13 PM

Hi Scrossy, thanks for letting me know but does that mean that they will not change there mind?

Jul 07, 2016 5:14 PM

I'm not really sure what to put in the forms that I didn't in the previous ones x

Jul 07, 2016 5:18 PM

I did an appeal for a neighbour (cancer) and I went into more detail and what he felt was wrong on their report, I contested and gave an example of why their opinion was wrong and how it actually affected him in daily life. Example he has mobility and can get around- so I told them about the affects the radiotherapy has on him which can sometimes leave him in bed etc

Jul 07, 2016 5:37 PM

Ok thanks for the advice x

Jul 07, 2016 6:28 PM

I have always been advised that you should always fill in the forms as though it's your worst day. With regard to the PIP form, it's useful to look up a guide online and then you can make sure the info you are giving actually answers the questions. I believe that you are unlikely to get the mobility component if you can walk 50yards or more, but you should get the daily living component if you struggle with washing and dressing etc. Hope that's helpful, good luck with it.

Jul 07, 2016 8:27 PM

I have those and many more dx. Denied, appealed with a lawyer. GA avg time is minimum 17-18 months, so the best we can guess is sometimes next year. Wish it weren't so!

Jul 07, 2016 11:55 PM

So sorry to hear that, maybe it's changed since my last application. It's certainly making me very worried about when I come up for renewal.
Good luck with your situation xx

Jul 08, 2016 1:22 AM

Thanks for all the help.

Jul 08, 2016 12:55 PM


Ready to start relieving your pain?

Join Community