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Feb 08, 2016 5:59 PM

Hello everyone
After being sick for 2 years and out of work because I am a pre-kindergarten teacher. I have finally been diagnosed with Sjรถgren's syndrome and fibromyalgia. The Rhuematologist started me on plaquenil 200mg twice a day I was wondering has this medicine worked for anybody else.

Feb 09, 2016 4:54 AM

Since I won't take prednisone, I use plaquinil instead. It has been a wonderful drug for me. Didn't know how well it worked for my sarcoidosis/, fibromyalgia until I had to go off temporarily so that my bones could heal for bone related surgeries. The result is that I'm currently in a major sarcoidosis flare up. Let me know if you want more information.

Feb 09, 2016 12:20 PM

Thank you for responses, did anyone have any bad side effects in the beginning?

Feb 09, 2016 1:03 PM

No. I had a crps 4 x normal and it eventually brought it down to normal. I don't remember any side effects, but I'm on a lot of meds and could have reacted, but I don't think so. I took it rather than prednisone. When the sarcoidosis first manifested itself, they put me on 90 mg. prednisone daily for three years.

I'm in a sarcoidosis flare up because I'm unable to take any inflammatories until my knee replacement heals. Will be glad when I can go back on because I'm suffering badly right now without it.

Feb 09, 2016 8:33 PM

Painedlady, I was dx with Sjogrens last year, fibro in 2012. My rheumy doc put me on 200 mg Plaquenil around May or June. My daily avg pain dropped from a 6-7 to a 3-4, and its helping my fibromyalgia pain in the muscles too.

At first my sjogrens symptoms were the dry eyes, nose, mouth, skin, and painful tongue splits. Then I developed an oral rash that wouldn't go away. When they biopsied tissue it came back sjogrens. Now I get tiny painful oral blisters that burn & sting & tingle, as well as getting joint pains & swelling. And my latest fibro/sjogrens flare (yes they come together) lasted nearly 2weeks, twice as long as they normally do. But before I was on Plaquenil the flares were really bad. I hope you have good warriors with the meds. Hugs, love, & prayers! ๐Ÿ™‚๐Ÿ™๐Ÿ’•๐ŸŒผ

Feb 09, 2016 9:06 PM

Anti inflammatories instead of inflammatory

Feb 09, 2016 9:55 PM

The side effects are just wearing me down on top of I think I'm having a flare. Ugh

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