Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

Playing pretend

Jun 12, 2019 2:47 AM

I’m so freaking tired of pretending I’m ok.

I say I’m fine when really I just want to throat punch the idiot explaining to me about how chronic pain, fibromyalgia and auto immune rejection disorder are all “psychosomatic manifestations of internalized negative emotions “. I kid you not.

If I was a Jedi, there’s a 100% chance I would have choked him - probably not to death, but he would have for sure been unconscious.

Ever get sick of pretending to be well?

Jun 12, 2019 7:59 AM

Hi FatiguedFighter sorry you're going through this. Yes I do get tired of pretending to be well. I have cut back a lot of what I use to do because partially I just don't want to have to act like there is nothing wrong with me. People just don't understand.

Jun 12, 2019 8:33 AM

Hi guys I’m actually feeling that right now. I know my fiancée and friends care but when I’m in a mood I just want to be in a mood.
Sometimes my pain gets in the way of certain things I want to do and it aggravates me..
But I got my back injection yesterday it about 4-5 for right now just wait to see if it hold a while before my follow up July 17.
I am just struggling with something not just sure what it is yet?
I’m want answers also to certain things I guess that what it is.
I guess I’m waiting to see when my results come in soon that I had done on my mammogram .
I hope that you all have a nice day hug to you all 🌈🙏🙏🙏❤️Shore )) ty for your prayers and support.. Akso welcome to all new comers ...hugs

Jun 12, 2019 8:35 AM

Is should I tell my fiancée about what I’m struggling with? Hug Shore

Jun 12, 2019 10:05 AM

OMG, I so feel you FatiguedFighter! I had 2 doctors I saw one time each who pretty much said that to me! If I was a Jedi I'd have used my laser beam! Lol😉

Like AnimalLover2 & many others, I had to give up activities because I'm tired of trying to explain why it's so hard and drains me just to try and be there. My daughter is upset with me because she'd planned a dinner for father's day. And then I told her I can't come because I'm hopping on one foot on a walker and she has 5 steps up to her porch that is 31" off the ground. She said she, her hubby and her dad could help get me up, and I bluntly stated her dad is still recovering cancer post-op and she & her hubby can't support my weight. Then she said they'd put boards down that I could go up, and I said, "what don't you understand about the surface must support 170+lb hopping on one foot? I don't need a board breaking on me causing more damage!" Yeah she's upset, but oh well.

Jun 12, 2019 10:29 AM

Hi Flappy lady friend and all .
Thanks for saying all these words to us it sure means a lot.
Bc, I sometimes feel I am not being herd at certain times still , but I am trying to let them know that .
I would just like answers to my ? to I think I would feel much better and less in pain if I got them.
I seeing a good friend on Thursday maybe this will perk me up who knows . Yes, I see my fiancée but just hard to tell him yet what really on my mind yet .
Maybe I will tell him later about what’s on my mind who knows.
Ty Flappy maybe you gave me the courage to speak up more also . Yup I’m like this community more and more . Ty guys and all . 🤗🤗🌈🌈❤️🙏🙏Shore Have a nice day

Jun 13, 2019 8:40 AM

FatiguedFighter, I hope you are having a better day today.🙂❤🙏🌼

Jun 13, 2019 3:43 PM

Weddin, don’t marry that man until you have told him 100% of everything. Chronic disease is the third person in the marriage. He needs to know. He needs to process it and he needs to be ok with your reality. You can’t hide something like this from your spouse, no one is that good at pretending.

You need someone who will celebrate with you, chill with you, break up the monotony and hold your hand when you are walking through your own personal Hell. He can’t be that man if you don’t trust him with the truth.

Jun 13, 2019 4:41 PM

Hi woah wait a second ,, he’s been there through everything for me . He has been holding my hands rubbing my back I’m in tears .
We are there for each other .
Through thick and thin . When I need him he’s there for me . He brings me to dr appointment and grocery and everything...
I was only upset that day I was write that and he was there for me through that to . So I am going to marry him no matter what .. I’m so very happy and so in love 😍 . Sorry I gtg now in tears . Hes my soul mate. We have been through everything. Hug gtg 🌈🌈Shore

Jun 13, 2019 4:50 PM

Hi btw he does Celebrate in every thing for me . He’s even going to move in with me .
He has issues of his own to like lupus and one right leg 🦵 . We do for each other .
He does care what and how I think and everything. I write and chat to him all the time . So I am marry him September , 6 ,2020 , I’m fully committed and so is he to each other ...
We are meant to be . 🙏🙏🙏🌈🌈Shore so yes I’m with him forever and he knows me inside and out more then any one else knows in fact .
)))) just had to tell you that ok . I am. Engaged and wearing the ring that used to be my Mom, she is in heaven now , Yes he even took me to grief counseling bc, he lost his parents as well..
So you there go later 🌈🌈🌈Shore we are in fact Soul Mates and in Love Forever......❤️❤️❤️❤️Hug just telling you that ...

Jun 13, 2019 4:52 PM

Hi also I Trust him Whole Heart 100perceent !!!!!!!!! My whole life I trust him... Shore gtg hug 🌈🌈

Jun 13, 2019 5:12 PM

Hi also when I said I need to tell him my fiancé a few things I did that day and he did hold my hands and he rubs my back..
We also have deep dark chats along the way . It was not just with him it was others I was also have trouble with telling things to friends and my family more also .
My fiancé has been there through everything more then my family has ever been after my parents passed away .
What I meant to say is this I’m have trouble tell him more what’s on my mind but I am slowly doing that and it does help me to tell him .
It’s the other like my family and other friends to tell them what’s on my mind ..
I tell more to my fiancé for sure ...
So just letting you know my fiancé mean the world. 🌎 to me my everything.. I hope that clears it up just a little more ..🙏🙏❤️🌈🌈..He brings me things takes me to a lot of places my dr appointment grocery store makes me dinner 🥘 . Does the Laundry even..
I’m just clarifying to you it was more with others and family telling things to .? Some fiancé but I’m slowly letting it out to him ...🙏🙏❤️❤️🌈🌎I hope that was ok clarified this to you ty Shore have a nice night..

Jun 14, 2019 12:28 AM

Hi just to let you know my guy is the most wonderful guy in the world 🌎 to me . I never want to let him go it would make me feel so sad all over the place ... just want to tell you that again . Hug have a nice day 🙏🙏🌈❤️Shore

Jun 14, 2019 11:20 AM

Shore, when I read what you wrote about it being hard to tell your fiancee things that were worrying you, I was concerned because you weren't able to talk to him (or others). And then when I read what FatiguedFighter wrote, I understood it to mean you shouldn't get married until both you and your fiancee could be 100% open with each other about everything. You've only been in our community a few months, but FatiguedFighter & I, and many others, have been here a long time. And we have seen relationships dissolve because the chronic pain person's loved one could no longer deal with the chronic pain & health issues. That's why she recommended that you open up and tell your fiancee (& doctors or family) what was on your mind; I said the same in a separate post (because reading what you wrote made it sound like you didn't know how to talk to the others). No one is saying not to marry him at all, but instead to make sure neither of you withhold things from the other. Chronic pain living is stressful enough without feeling like we can't be open with our partners in life. I think the fact that your fiancee and you both have your own physical challenges, it will be easier for you both to be more supportive of each other's needs. Sadly I've seen other friends on here suddenly find themselves rejected and facing their chronic pain filled life alone. I hope you can understand what we meant.

Hugs love and prayers to all for a good weekend!🙂❤🙏🌼

Jun 14, 2019 1:30 PM

Hi flappy I am going to marry my fiancée September 6 2020.. I was have a bad day that day and put my fiancé with others when I meant only friends and others .
He’s the best thing in my life and I trust him with my whole heart. ❤️ and soul.
Wehever I am in anxiety
mood he talk me down to earth. 🌍 from the high rafters so to speak.
We know about each other health and issues . We care so much that we are there for each other thick and thin along the paths journey.
He’s the one that opens me up to talk iswhat I meant to say the others it’s hard to talk to like my sisters I have two. They even live close to me.
I had to get an Power of Attorney just bc,’my sister and I were have trouble talking to each other about money issues.. It was from my parents money to me and my sisters also
.. ..I have two funds Regular Spending money and Medical..
I really like my power of attorney now ..
Now I can try and be with my 2 sisters is what I meant and was try to say ..
My fiancé even knows about them to. Also he has telepathy with me and sence my feelings with me also . He also has empathy so much for me .
When I hurt he does to with me he loves to make sure that I’m all alright and everything. Its with my sisters I’m still have issues with . Just was clear that up with you .🤗🤗🙏🌈🌈❤️have a nice day . Shore

Jun 15, 2019 8:02 AM

That's good! I think everyone I know has trouble with family here and there. 🙂❤🙏🌼

Ready to start relieving your pain?

Join Community