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Please help me

Sep 28, 2015 10:58 PM

Hello, I am new to this (within the last week or 2) I have been battling with chronic pain MDD, PTSS, DDD, carpal tunnel, OA in my lumbar spine, edema, I had a double cervical diskectomy in 2008. I still have negative affects from this surgery and no improvement of original problems. I have a double curvature of the spine. 27 degrees in upper spine and 12 degrees in lumbar. I suffer from chronic tension headaches and at least 2 migraines per month. I know that my timid personality has made it difficult for me to seek and get the type of care I need. I am working on this and am going to see a new doctor this week. How does one get beyond the mental health diagnoses to actually have the doctor take you seriously? I am 44 and the pain started worsening at 22. I have been told it's all my depression. Put on and taken off meds cold turkey. I am currently taking Prozac, Ultram, diazepam. I take a vitamin D supplement as I am deficient as well I take a stress B complex daily. Is there any advice anyone can give me on how to talk to a new doctor about this? I feel like Ive gone beyond the end of my rope. The pain is making my anxiety and depression worse. There is no position in which I can get comfortable. I have pain shooting down from lower back to feet. Constant aching of my shins and calves. Ultram does not touch my pain. Ibuprofen and a Valium generally helps my tension headaches which are daily. I would truly appreciate any words of wisdom or advice. Thank you very much ✌️❤️

Sep 28, 2015 11:26 PM

Anonymous, first and foremost, I'd like to welcome you to our community family. I want you to know that this is a SAFE place with many wonderful people. We are all here for different illnesses or diagnosis but we all share a common denominator and that is chronic, unbearable pain. We are all here to help support one another, give advise, listen, vent, laugh. It makes no difference what the situation, there are no judgements here. There is no need for you to fret, the people here are kind, always willing to help and understand. That is one of the most important things. And know this for sure, you are never alone. There's always someone a keystroke away ready to chat with you. Now, getting to your situation. I also have had anxiety and depression (before my pain issues started) and I have been quite timid in my earlier years. I have been in pain for 24 years but it became 24/7/365 22 years ago. I have been diagnosed with DDD, DJD, TMJ, CRPS/RSD, cervical spondalytic myelopathy, scoliosis, lordosis, SI Joint disfunction with fractures and a handful of other things I can't think of right now. I have a team of doctors who all work together to try to help me function. I've had 28 surgeries and there is nothing else that they can do surgically (besides replacing both knees and shoulders). I have a GP, Rheumatologist, Neurologist, pain management, physio, psychologist, etc. I go to pain management once a month and they do range of motion measurements to see how much function I've lost and give me medication. Now, I take Morphine, Oxycodone, Ativan, Zanaflex, Temazepam, Zoloft and Synthroid. I wish I didn't have to take any of it. I think that your doctor has things backwards. When you are in such pain, it adds to your depression and anxiety. It becomes a viscous cycle. When you go and see your new doctor,
Sit down and speak honestly. Remember, HE works for YOU!! If the doctor does not show respect, is dismissive or doesn't listen, find another one!! You deserve to have your problems heard and given the help you need. Explain that your anxiety and depression have worsened with the pain. They may want to change your medications. Explain that you are fearful because other doctors have taken you cold turkey off of medications instead of weaning you off. Your concerns should be heard.. They are completely valid!! I hope when you see this new doctor it goes smoothly and you are take. Good care of. Before you go, write down any questions you have. Be sure that you listen to the answers and if you don't agree or understand, ask for additional explanation. Try not to worry. There ARE still good doctors out there that will help you. I am sending you {{{Hugs}}} to help you through and know that I will keep you in my prayers. Keep in mind, if you need me, all you have to do is holler and I'll be here. I wish you all the very best of luck and I'll be thinking of you. Again, welcome. 💕🙏🏻🌻

Sep 28, 2015 11:28 PM

The best advice I can give you is to carry a diary with you, use any word but pain. Be very discriptive to each body part. Ask if they will start from the beginning as if you are an infant and all prior dia did not exist. Do not mention depression. But do have paper printed with every drug you have taken and how you reacted. Also, to me starting at the top of the body and getting the headaches addressed first is the way i would go. If you have been taking a variety of meds for depression and have been for over 15 yrs it may be time to take an extended vacation from them. My headache doc said that taking depression drugs sometimes can cause headaches and then after 7 or so years they tend to be useless. Also, look for triggers for the headaches. Mine are certain wall paints and the new lighting i can only use the old fashioned bulbs. I had my house repainted and half of mine went away. When I quit work and got outvof the lighting another major part of them quit. I was only left with the hormonal ones. Good luck

Sep 29, 2015 12:09 AM

Zetarlov, I agree with most of what you have offered in your advice. Two things that I don't agree with are not using the word pain or depression. I'll explain why. In order to build trust with your doctor you need to start by being totally honest. The problem is pain and there is underlying depression. When the list of medication is given to the doctor, the antidepressant will be among them. True, they are used for other things but their primary use is for depression. I think not being totally honest is starting off on the wrong foot. Almost like the patient had something to hide. I totally agree with the pain diary and knowing the triggers for the headaches, etc. but I just feel strongly about the rest. I know we all function differently with new doctors and have our own systems but, believe me, telling the doctor you are in pain isn't going to automatically have the doctor label you a "drug seeker" if that's your reasoning for not mentioning pain. I find your info on getting rid of the headaches very informative. I never thought about paint colors and certain lighting having an effect. I learned something today and I'm going to change the lighting in my room and perhaps some paint and see if I can get rid of some of my migraines. Thanks!! Hope you have a great night!! 🌻🙏🏻

Sep 29, 2015 12:35 AM

Also another thing to consider in paint is using low VOC paints as those funds can really get to a person's neurological system and because migraines, breathing problems etc etc.

Now to the depression, I agree that living in constant pain will cause depression. Anonymous, please like Alwayz said , remember the doc works for you. There are good doctors out there! It takes time to find them sometimes and sometimes you luck out and get a good doctor but in my case that's been rare. I totally understand being afraid of not being taken seriously. I went through that for s long time. Still sometimes, oh okay, almost always worry about it. But you are employing your doctor to work for you. In my opinion, the minute the doctor starts poo-pooing my diagnoses and my veracity, I'm firing them. Lol

I have more to say on this subject but in distracted right now with my pain levels and as most of y'all know i have a tendency to ramble on. (trying to curtail all that rambling lol).

Anyway please don't get discouraged in finding the right doctor it just takes time and patience and sometimes a few tissues (to deal with the aftermath of seeing those idiot doctors who are mean and inconsiderate).

Be kind to yourself, you deserve it.

Sep 29, 2015 3:53 AM

Thank you AlwayzInpain, Zetarlov, and Kitty!
This is all very good information. I truly appreciate the help. I've been using this app to chronichle pain in general but not in great detail. I also use another app to journal my moods. My thoughts are pretty scattered always. I tend to ramble on quite a bit. I know it overwhelms a doctor and am learning that perhaps trying to deal with the most important issues as available. Rome wasn't built in a day :) I read three articles yesterday, more like a blog. They are written by a doctor, the first article was about doctors profiling patients. I've always felt that was the case. The other article was about 7 things the patient needs to do in order to get what you need from your doctor. So with the advice I have received here and this information, hopefully I can make some headway with the new doctor. My ultimate goal is to be referred to an orthopedic doctor and or pain specialist. I will let you know how my appointment went. Thank you again. I hope that you all have a wonderful day and are able to get some relief. ✌️❤️

Sep 29, 2015 11:33 AM

Anonymous, I hope that your appointment goes smoothly and you are able to get to the doctors needed to help you get relief. I'm glad that you found us and that the information you got was helpful. Know that we all support one another here and welcome "newbies" with open hearts and arms. You never have to be alone with your thoughts no matter what they are. Nobody will ever judge you here. I'm sending you gentle {{{Hugs}}} to get you through and look forward to reading an update on how your appointment went.🌻🙏🏻

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