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Apr 05, 2015 8:07 PM

I've tried everything, none of any doctors can help. Please read my doctor letter below and help me diagnose! I been to so many doctors and no help so just any infomation that could help and I can talk to the doctor about.

DOCTOR LETTER

Im a 14 year old female. I have had pains although my body for 3 years. I would rate the pain 7/10. I believe I have chronic muscle and joint pain. The pains are in my joints and muscles. The pains are all over my body. They mostly occurred in my feet and legs, but also my arms and back. The pains have slowly got worse. They occur everyday. Everything about them is random. They always change. It's so random that sometimes it hurts to touch and other times it doesn't, the pain moves, the type of pain changes, the intensity and where it is. It's a combination of these things at once but it changes. Pains happen when walking, running, jumping etc but also sometimes when sitting down, or not moving. Sometimes they throbbing or ache. It's rare that I can walk without anything hurting. Lately I feel like my left arm is very weak, (I'm right handed) and hurts when I use the muscle. I also find that roughly where my large intestine is and under my ribs gets pain sometimes. I have glasses for things at school like reading or on my iPad or looking for desk to board because my eyes have trouble focusing. I also have lots of eye floaters and sometimes see small flashes of light (white/black). I don't know if this is related. I sit out on most pe lessons because I just can't join in. Mostly I just try to deal with it. Sometimes I have to limp. The doctor has given me supplements because I have some vitamin deficients. I also have orthotics because I have flat feet. I have been wearing them for 4 months and these is no improvement at all. I have been taking the supplements for 2 months and still no improvements. I have had blood tests, and they only show iron deficient and nothing for anything else. They don't show anything for arthritis either. I don't know how to describe the sort pain but I would say aching but the type of pain all ways changes. I get cramps when running sometimes as well. I am always thirsty and go to the toilet a lot. I also get a lot of cracking which is sometimes painful. It happens almost everything I move in an awkward position. Sometimes I also get tingling fingers and sometimes toes. My fingers get numb very easily. They go white then after about 10 mins they go purple or blue then red, and then back to normal. In the shower sometimes my skin gets these weird red blotches. They don't hurt or itch. My shower is quite hot, and they only appear a my lower back and left side of my stomach. Sometimes randomly I get this weird thing where my skin feels really sensitive. It hurts to touch, even just the lightest bit. I also get voodoo doll pain, which happens randomly anywhere. I find it hard to concentrate a lot sometimes. I just can't. I also get memory loss, just after I've thought of something or am about to do something and I can't remember it. This happens a lot, like all the time. I also get random really small muscle twitches. I normally get a small headache at the end of the day. I used to do netball and diving but have stopped because of pain. I have seen many doctors, specialists and no one knows anything. I have seen a peditrition, foot specialist, eye place for glasses, nutritionist and local doctors loads of times and nothing has helped.

Update November
Recently I've noticed lumps inside my nose. They don't hurt, but make it a little harder to breathe. I've also noticed that I feel like I've pulled all my muscles. Like I'm bruised all over. They hurt a lot doing simple things. E.g getting out of the car. And I've noticed that I have been getting bruises from doing nothing, they just appear. Or either I'm bruising really easily. They sometimes hurt and sometimes don't. On the 3/11 my hands were tingling for 6 hours. And afterwards in bed I felt like I had a dead arm. This wasn't caused anything. Sometimes I also wake up in the morning with a dead leg, without releasing and almost fall over. I've been getting lost of headaches as well. I get pulsing points randomly, recently. I have a ingrown wart on my foot and the doctor has iced it.

Update February
I've also noticed that my joints sort of lock. If I've had them bent for a while and them go to straighten them, mist hard and they fell stiff. When it straighten them they sort of click or crack. I've suddenly out of nowhere getting this jaw cracking, clicking and locking. It happens all day long, everyday. It happens when eating and if I put my head in a weird position. And it hurts and aches. I still have those lumps in my nose and they haven't gone away. I also now have two more ingrown warts which hurt and are all on my left foot. Have the other iced hasn't helped at all. I am getting a lot of headaches at the moment. I have one at the end of the day everyday or just randomly during the day. I still have all the above things and nothing has changed, I just hang more things. Something is always hurting constantly, but i have stop noticing it and pay more attention on other things.

Apr 05, 2015 8:14 PM

Please answer!

Apr 05, 2015 8:30 PM

Zam133, I'm sorry you're hurting and no doctor's been able to diagnose you yet. Unfortunately I can't either. Your symptoms listed fit nearly everything I'm familiar with. They even sound like my daughter's growing pain symptoms, which she suffered through from 12-15 yr of age. She also had juvenile arthritis. I wish I could do more to help.

I would advise you to keep tracking, but do it daily with specific date scriptive details, like sharp, sudden, pinching, squeezing, throbbing, etc. Try to go to a pediatric specialist hospital or to a rheumatologist that work with pediatric medicine. Don't give up. I've been fighting my own battle of unknown diagnosis with varying symptoms for over a year, following a major illness 5+ years ago. Stay strong and turn to this community for support.

I'll be praying for you. 🙏🌼

Apr 05, 2015 9:52 PM

Zam133 I am so sorry that you are going th rt u this at such a young age. I agree with Flappsy that you keep a journal everyday and note everything that is going on and what you were going. Take to the next Dr you see.maybe see a specialist in pediatric pain control. Will be praying for you.

Apr 05, 2015 11:35 PM

Zam133 I agree with the others who're commend a daily pain journal. I'm guessing you were already working on that since you found this app and it does seem like a good place to start. You do have a lot of information here and some varried symptoms which may or may not all be connected. Don't give up your search for an answer and treatment for the underlying cause. It easy for me to see familiar problems here and relate that to what I know but that doesn't mean it's what you have or the answer to everything but I am going to offer some suggestions anyway. Just know it's only a direction to look into not a diagnosis but have you looked into Lyme Disease? It isn't an easy one for all doctors to diagnose in fact it can be very difficult to find a knowledgeable doctor and blood tests aren't always reliable. But there are a couple of labs that specialize in Lyme and its coinfections as well as specialists who typically diagnose clinicly, that is based on symptoms and back that up with blood and fluid testing. Along with that it sure sounds like a blood panel and work up by an Endocrinologist might be in order.

While looking for the cause of all of this there are some things I can suggest trying to help alleviate some of the symptoms as well. Have you tried acupuncture for the joint pain and headaches? Essential oils, need to be high quality, in particular Oregano oil I think for the plantar warts? For the jaw, it sounds a lot like TMJ, try wearing a mouth guard to bed. Just a sport guard that can be molded in hot water is fine and cut it down on the sides and top it's just to hold your jaw in place and stop any grinding or clenching of your jaw at night. That's all I can remember at the moment but I'm happy to help with any more I can if you want to ask. Good luck.

Apr 05, 2015 11:41 PM

Zam, do you ever get burning sensations, especially in your arms and legs? Your description sounds similar to what I have, but I can't say for sure.
I am also a14 year old female, and have started using a cane to walk. Have you tried Kava Kava Root? It sometimes helps my body overall, especially when I chew up a pill, or mix a tea out of it.
Have you tried potassium for your leg? I get these weird toe spasms and it feels like all the pain in my body moves to my toe, and it tries to shove itself over and under the rest of my foot.
My body "pops" in weird ways. You described cracks, and I know any part of my body will sound like popping your knuckles, except for it is much louder.
My neurologist said he hasn't seen anything like what's happening to me. I have a mix of symptoms, the two that keep coming up are lupus and crps (Complex Regional Pain Syndrome)
Your description of feeling dead arms and legs is very familiar. I think that those were some of my first signs of my body becoming injured.
Have you found any medications that help? I take gabapentin to make everything a little less painful. It takes the edge of my burning limbs, but can have serious side effects.
One thing that got rid of my dad and sister's warts was iodine or betadine.
Right now I feel like a living science experiment, and I would do your own research if you can, and keep going to the doctor so that they can have more info to use for diagnoses.
Good luck!
T

Apr 06, 2015 1:01 AM

Zam, maybe you should check to see if your symptoms could come from hypermobility. I don't say that this is what you have, but maybe you can look in to it with your doctor. I have Ehlers-Danlos syndrome and I recognize a lot of your symptoms. The tingling sensation could come from a joint that's not completely in place (sub-luxation). And the feeling of your skin hurting could come from neuropathic pain, 'nerve pain'. That's when your nerves become irritated and they start to give pain signals to your brain even though it really doesn't hurt.
I hope you'll soon find out what causes your pain and that you can relieve it.
Good luck!

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