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Poem to share

Feb 22, 2015 10:00 AM

Regarding Fibromyalgia-

It sneaks up on me
This thing
Plaguing my body, my soul
Tricking me on my "good" days
"Maybe it won't be back"
But its always there
Waiting to show itself to me
Stinging, burning, stiffening,
Weak, worn, wicked

Feb 22, 2015 12:48 PM

Yes! It's just like that poem! Spot on!!!

Feb 23, 2015 12:41 AM

That's an amazing poem.. You hit the nail on the head!!!!

Feb 23, 2015 8:44 PM

That's a great poem !

Feb 23, 2015 9:00 PM

It comes on you when you least expected. sometime you don't know if it gone or coming LOL

Feb 23, 2015 10:45 PM

I've has that myself, shady. Although in my instance, I always know that it's coming. I have not had a pain free day in over 20 years. It is unrelenting and 24/7/365.... Sometimes I sit here in my room and cry and pray and try to bargain that I would settle for just 15 minutes with no pain. just to remember what that feels like. I can't even imagine what a pain level of less than 7.5 feels like any more. It's very frustrating and it can really do a number on your head and your whole life in general. The good thing is this app, the wonderful people I have found here and the fact that I no longer feel like I am all alone. It has been a Godsend to me that I am here and have met so many of you and that it is a safe, judgement free zone. It doesnt matter if you want to ask questions, follow up on someone else's treatment and pain, vent, laugh, cry, etc. I have had a total of 9 hours sleep in the last 5 days and I am so exhausted that I feel like I'm drunk or on some other planet. I can't think, carry on a normal conversation, the fibro fog is very intense because I'm so tired and I think I'm going to shut everything down, get into my new chair and try to force myself to sleep.. All of you who are stayin up for whatever reason, I hope that you have a peaceful night and I will check in with you all again tomorrow. Bless you all.

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