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Poliandromic reumatism

Dec 07, 2016 3:24 PM

Hi community, has anyone been diagnosed with arthritis after preganancy? I am 36 and I have 2 children a 3 years old daughter and a 7 months old baby. 3 months after my baby was born I had many episodes of pain and stiffness in shoulders, hands, hips, feet, toes, anckles, elbows, kness and jaw. I 've been diagnosed with poliandromic reumatism. Doctor didn't know the reasons of this but got med to take hydrocloroquine. I am so scared of taking them for the side effects and for my breastfed baby. I wonder if anyone has had something similar or hear other experiences. Very thankful

Dec 07, 2016 4:09 PM

Macanena, I am not familiar with that diagnosis or the treatment. Have you researched the med at drugs.com or spoken to your child's pediatrician? Hopefully someone else has experienced to help you. Hugs love and prayers you can get relief without risking yours or your child's health! 🙂💕🙏🌸

Dec 07, 2016 4:48 PM

I'm on that med. Other name for it is Plaquinel. My illness is lupus same family as what you have Rheumatoid Arthritis. They often over lap. If you want to chat further let me know. You may have had it before but not know it. Or something like having a baby can trigger it.

Dec 08, 2016 3:43 AM

Thanks for your comments.
Gibber, How do you feel with the meds? Make it better or worse?

Dec 08, 2016 10:01 AM

Hi Macanena,
That's a hard question to answer. I'm on all sorts of meds, Plaquinel is just one of them. Unless I'd be doing a lot worse without I'm not doing well. It's very possible I could be doing a lot worse without. This disease is different for everyone and very unpredictable. As are how the meds work. One thing I can tell you is that Plaquinel takes months to work.
Are you nursing? Just asking because I'm wondering why you're not on some other meds as well? This is a progressive disease. Have you had blood work for it specifically, urine tests? Is your doc going to send you to a Rheumatologist? Good that your doc knows about it and has started treating it. Most fight for years to get answers as to what's wrong with them.
It's your immune system attacking you rather then protecting you like it's supposed to. You don't want to do anything that builds your immune system.
Most of us are on meds that suppress our immune system.
I'd give plaquinel time. It's likely you'll need other meds to go with it.
Start researching. You're going to need to be your best advocate.
Docs finally diagnosed me prescribed meds for it but told me nothing about it or the meds. I did a lot of research a head of time so when I was diagnosed, I knew about the disease and the meds. I'm thankful I did that.
You should get a baseline eye exam by an Opthalmologist actually before you start plaquinel but certainly asap if you're already on it.
If you don't already, you'll probably find some days are really bad while others are tolerable. Do you struggle with fatigued beyond a normal tired or even exhausted?

Dec 08, 2016 4:54 PM

That's very helpful.
I can manage the fatigue quite well now. I feel much better than I was 2 months ago . Pain is not so bad too, a bit achy but no paralysing like it was before. I still breastfeeding my baby, less but still. Times have been stressful , juggling with baby and a grumpy toddler. Its been hard. I'll do my homework and many thanks

Dec 08, 2016 5:37 PM

You're welcome. I can imagine it would be hard. Listen to your body rest when you can if you don't you can really set yourself back. I know that would be hard being a mother. Do you have help?

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