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Policy about Promoting Treatments and Medications

Dec 08, 2014 11:20 AM

Hello dear community members,

In the past, there have been complaints about community members who actively promote treatments or medications. Therefore, we would like to publish an official policy regarding such promotions:

Patients:
If you are a patient, you are very welcome to share your opinion about successful and unsuccessful treatments and medications. This is all about sharing insights with fellow patients which is perfectly ok. However, please keep in mind that although a specific treatment solved your problem, it does not mean it will solve the problems of everybody else. In other words, please do not excessively promote treatments and medications, otherwise you will seem like a provider (see below) ;-)

Providers:
We do NOT allow the promotion of specific treatments or medications by providers of such services or products. Even if you offer the service for free. We will delete all topics and posts which contain such promotional information and we will ban the authors from the community (don't worry, we will warn you first if we are not sure if you are a patient or a provider).

(Patients: Please let us know if you come across promotional posts).

Reasons for NOT allowing providers to promote their services and products:
- First of all, we can understand that providers think they have a very valuable solution which can help patients. However, if every provider would post in the community, it would become a place of advertisement and render the community useless. As far as we know, there is no miraculous service/product which will solve every pain problem and therefore would justify an exception to our policy. If somebody (finally) discovers the magical silver bullet, all of us would probably hear about it on the news and there would be no need to promote it in the community either ;-)
- If you are a provider who thinks that your treatment/medication is the silver bullet which will help every patient, you are either lying to yourself or to the patients. Many of us (I am a patient myself) had to learn the hard way that chronic pain is very complex and that there is no silver bullet which solves every problem. Trying to make someone believe the opposite is irresponsible and dangerous.

We hope that this policy sounds reasonable to all of you. Please let us know if it doesn't. Your feedback is very important to us.

Kind regards,
Daniel
CEO and fellow chronic pain patient

Dec 08, 2014 2:08 PM

Yes, seems reasonable.

Dec 08, 2014 3:18 PM

I agree!! If there were advertising I wouldn't be here.

Dec 08, 2014 7:37 PM

Thank you so much for creating an official policy! We greatly appreciate you protecting our space!

Dec 09, 2014 2:30 AM

Yes it is reasonable!

Dec 09, 2014 5:38 PM

Understandable. Thanks for caring enough to make that clear.

Dec 11, 2014 9:53 AM

Thank you all for your understanding.
If you feel one posting shouldn't be in our community - please make use of our new "report" function (so far available on Android and Desktop-version, coming soon on iOS as well), see therefore the flag on the right.

Dec 13, 2014 7:33 PM

Well said. Every person is different and there is no magic pill. What is posted is just one portion of a very complex issue. While we may share several issues that are the same, we do not know each others entire medical history.

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