Trying this out to help me get better at describing my pain. Apparently I have a pretty high pain tolerance, so I've had trouble relating what is happening with my body & probably held out longer than most before seeing a doctor for my pain. I've been searching for answers for at least 5 years (actively) & was finally given a diagnosis of Spondylitis (with a note questioning Ankylosing Spondylitis next to it) in the past year. I have all of the classic symptoms & I am HLA-B27 positive. But last imaging (MRI about a year ago) showed no fusion in SI joints, which I guess is why there's still a "question" there. I have quite a bit of degenerative damage in my lumbar & SI areas, which contributes to pretty severe sciatica running all the way down my left leg. No imaging done yet on thoracic or cervical spine, despite pretty severe pain in the cervical area. Also have joints affected in arms, hands, feet, ankles, & knees.
Anyone else here with AS?