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Port or PICC line

Dec 28, 2015 11:58 AM

Hi guys,
Here is the back story behind this post. I am basically immunocomprimised from an unknown reason. I also have MRSA on top of that. I have been getting IV antibiotics this past week and it has not been going well. Have been stuck at least daily for the nurses to get access on my veins. I think at this point that longer term IV access would be a godsend, and I'm going back to the surgeon tomorrow. The only hang up that I'm having at this point is what type of access is needed? The nurse in the infusion suite told me that they don't typically leave PICC lines in place long term, but he did recommend me asking about getting a port placed. Kind of Leary about that because of my risk of infection.
What do you guys think? Just trying to get some ideas for this conversation tomorrow.

Dec 28, 2015 2:13 PM

Amanda I understand how horrible having to be stuck numerous times every day can be not to mention your stress level must be off the charts. If it was me I think I would request a permanent port of some kind to bring down your stress level due to having an IV started. Your veins may just be worn out from all the IV'S started on you over the last year. Bless your heart you have been through the wringer this year. It would sure make things simpler for you, just getting one stick , just make sure they flush before and after each infusion, to keep it open. Good luck, prayers,love,and hugs.

Dec 28, 2015 3:49 PM

Weezie, Christmas Day was horrible. She stuck me 3 times and was going for a 4th time. I looked at her and said, "nope, that's it. No more." Both arms look like they have been bitten by a dog and they aren't feeling that great either.

Dec 28, 2015 4:14 PM

It's true... Poor Amanda.. They made a MESS!!!😒

Dec 28, 2015 4:56 PM

And what made it worse was when I got home, I absolutely just let loose in front of my mom. I've tried to be so strong but emotionally it gets to me. I had asked her to consider it several weeks ago but she wouldn't until she saw what happened that day. I just can't deal with it anymore, and in reality it's not fair to me.

Dec 28, 2015 5:20 PM

Amanda, first, I am do sorry you have had to deal with all you have already. You have every right to loose it, in front of your mom is okay...we mom's like to be there for our children and would love to take the pain away from you.

Dec 28, 2015 6:42 PM

Amanda your better then me. I was having iv infusions every three months and for my last one I was stuck seven times by three nurses.. By the time they got a vein I was in tears. And the other patients were all pray openly for me. Not to mention getting mad at the nurses.

Dec 28, 2015 7:36 PM

New, at least this time I wasn't screeching "Take a break already." That's why the port or PICC can't come soon enough.

Dec 28, 2015 7:37 PM

Yes the suggested I get one too after that infusion. But I've not gone back to discuss it.

Dec 28, 2015 7:54 PM

Yeah they did for me as well. I feel like I always end up getting tortured with it. It was traumatizing to say the least.

Dec 29, 2015 5:50 AM

Okay today is the big day. Hoping I can get through to my surgeon that what we are doing is NOT working!!!!!! Maybe I can just show him my arms and let him decide from there.

Dec 29, 2015 5:52 AM

All blessing to you. It's all gonna work out.

Dec 29, 2015 1:19 PM

New, just spoke to the surgeon this morning. They will not put in a port at this point in time, but they asked me to speak to the infectious disease specialist ASAP and see if he would consider referring me over to the hospital for PICC line placement.

Dec 29, 2015 5:02 PM

Praying for you in this situation Amanda! πŸ™‚πŸŒΌπŸ™πŸ˜·

Dec 29, 2015 6:02 PM

Thanks Flappys, I think that the best decision has been made at this point between the information we got from the surgeon and the reading that mom and I have both done. It was even obvious to the surgeon that my veins are getting fried by chronic needle sticks. No needle sticks would be awesome and the fact they can draw blood from it as well is a plus. I'm also grateful that she took time to speak with me this afternoon even though I wasn't even supposed to see her this morning. It was just a tech appointment but it was worth it.

Dec 30, 2015 11:07 PM

Amanda I am so happy for you. I know it can't happen soon enough for you, but it will be so much better for you. Just make sure they flush it before and after your infusions to keep it open. You won't have to be so stressed when you go now for you meds. Praying, love and hugs.

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