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Post herpetic neuralgia

Aug 16, 2014 4:04 AM

Still with me after 10 months
Any suggestions?

Aug 19, 2014 8:40 AM

are you taking anything for your nerves? Neurontin? Lyrica? Those may help....

Aug 25, 2014 4:20 PM

Thank you,yes I am taking these and others,they help a little .

May 03, 2015 7:10 PM

How are you doing? Do you still have PHN? Ihave had it x 4 years and it is still going strong. :(

May 03, 2015 9:29 PM

Unfortunately, post herpatic neuralgia can last up 5-10 years after a shingles episode. I know it is a horribly painful thing to deal with. My very best friend's Mom, who is now 98, had shingles when she was 85 and still has some flare ups of PHN. I hope the doctor can find a medication that helps you feel better. I'll say a prayer for you that it doesn't last much longer and you begin to feel it leaving your body.

May 04, 2015 6:59 AM

Thank you so much for your kind words. It is nice to have this area to write to others that share my concerns/feelings. Maybe something has worked for them that Icould try!
Unfortunately, my PHN is chronic and constant. It can wax and wane, but has not gone away yet. Have seen so many MDs. One wants to try Botox in the area, which may or may not help, and I cannot imagine a needle going into the area of pain! It is in T6 level of spine that wraps around the trunk on the R side. Oddly enough, it goes down the ulnar side of my R arm when it is really bad. Does not make a lot of sense, unless there were lesions on my spinal cord that did not come out on the skin...

Jul 25, 2015 8:03 AM

New here, I've been suffering from the PHN for the past 8 years with flair ups of pain on a daily basis. Some days worse than others. When the real bad days hit I'm usually followed by a bad migraine. It's like they work hand and hand. I've tried so many medications. Starting a new one this week, so we will see. My dr.s have told me this is it, I will have this the rest of my lifr, I'm currently only 43.

Jul 25, 2015 6:31 PM

Oh no! I am so sorry. I have heard so many different things. From--"it will burn itself out" to "you could have it forever". I choose to believe that it will burn it self out. I feel that gives me a little hope. I have tried so many meds also. I am still trying. Right now Tegretol seems to be the best, but Idon't like its side effects. I am also looking into radio frequency ablation, a spinal cord stimulator, or a pain pump. All of them kind of scare me. I also get migraines/headaches when the pain is bad. I have asked the mds if the shingles is causing the headaches, but they say that they are seperate. They don't seem seperate to me. It is good to talk to someone who (unfortunately) is suffering like me.

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