May 04, 2015 6:59 AM
Thank you so much for your kind words. It is nice to have this area to write to others that share my concerns/feelings. Maybe something has worked for them that Icould try!
Unfortunately, my PHN is chronic and constant. It can wax and wane, but has not gone away yet. Have seen so many MDs. One wants to try Botox in the area, which may or may not help, and I cannot imagine a needle going into the area of pain! It is in T6 level of spine that wraps around the trunk on the R side. Oddly enough, it goes down the ulnar side of my R arm when it is really bad. Does not make a lot of sense, unless there were lesions on my spinal cord that did not come out on the skin...