While I do not have POTS I have had alot of experience working with patients that suffer from it. Have you tried wearing TEDS hose? I know they are not attractive but neither is busting your face on the pavement. Also sodium tablets have helped many. Have you tried finding an electrophysiology specialist? I believe that will be your best bet. Good luck and PM me if you need more info.
My doc dx orthostatic hypotension two years ago. I've been having symptoms like you described, along with swollen legs. I passed out on an ER doc once. At first they thought it was just medication related (cold & allergy meds). But last year they dx veinous reflux in my lower right leg, which they think is related to the pelvic congested veins dx in 2011. I've been in knee high compression stockings since last year and I have to be careful about using decongestant meds. I also have to be careful not to rise from sitting or laying too fast, as well as turning. Some of my dizziness & imbalance is related to a cranial 8 nerve issue. Haven't seen a specialist on that yet. Lol. Too much else going on to find time. Hugs & prayers you can find ways to reduce your symptoms soon! 🙂💕🙏🌼
Yay! I've been searching for someone with POTS for appis long. I constantly have tachycardic and hypotension and forever lightheaded, nauseous,dizzy, and feel like I am going to pass out. The neurologist said clinically I probably have POTS but waiting on tilt table results. It is the worst when I'm sick, like in an now. I just crave salt and water endlessly