Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

Prayers, positive thoughts please

Sep 07, 2018 12:05 PM

Hi guys,

I have just found out that my dad may have cancer. I'm still in shock at the moment, my dad has always been my superhero. He had some symptoms and the hospital performed a scan which showed a large lesion in his bladder. He's also lost a lot of weight. So as a family we're terrified. He is seeing the consultant tomorrow, anyone in the UK will know seeing a consultant on a Saturday is nigh on impossible. I work for the NHS so I'm more than aware of the potential impact this will have.

2018 has been the worst year of my life. First I was diagnosed with fibromyalgia, then hospitalised with DDD and cauda equina, my grandfather in law was then diagnosed with Parkinson's disease. Now this.

Thanks for listening, I just needed to clear my head.

Sep 07, 2018 1:19 PM

You and your family are in my prayers.

Sep 07, 2018 6:12 PM

Thank you AnimalLover2. The report shows a lesion in his bladder, I think the next step will be a biopsy to determine if it is malignant or benign. He seems in good spirits considering; would you believe it's his 60th birthday Monday.

Hope you're okay.

Love Hayley x

Sep 08, 2018 3:21 PM

Kew2012, your family is my prayers. I'm here to talk if you ever need to talk. I'm on a similar situation with my dad, we have a 2 week wait for his results to come in, I found out 2 day's ago when my Mom called to tell me.

Also, my Aunt had been diagnosed with Parkinson's when I was just a child and she is still with us. Hang in there, I am always here to talk. I don't post much if hardly ever now, but I am always checking in on the app daily. I don't post much anymore because my teenager's keep me busy. Hug's and Prayers.


Sep 08, 2018 3:58 PM

Thank you Moparmom, we had it confirmed today that it is cancer. He has to undergo a TURBT with a dose of chemotherapy. If that does not work the next option is a higher concentration of chemotherapy possibly radiotherapy depending I imagine on the results. He's okay (ish). I think he is still in shock tbh. I'm sorry to hear about your dad and aunt. I hope you and your family receive good news. I'll keep you all in my prayers and thoughts.

Take care
Hayley x

Sep 13, 2018 2:26 PM

Kew2012, you are in my thoughts and prayers. My dad had five types of cancer in five locations over 30+ years and died from Alzheimer's in May. His sister, my aunt, died from pancreatic cancer 2 months after her diagnosis of stage 4 aggressive cancer. My father in law suffered symptoms for nearly a year before going to a doctor or telling anyone he felt sick, and he died 5 weeks after diagnosis. My brother in law lived nearly 4 years after going through both chemo & radiation for pancreatic cancer. So a lot has to do with the stage and type of cancer, as well as option & choice of treatment. I'll be praying for your Dad to have a very good outcome (preferably benign), and strength for your whole family.

@Moparmom, your family is in my prayers too! You've had a few though years yourself.

Hugs love & prayers to you both! 🙂❤🙏🌼

Sep 13, 2018 4:37 PM

Thanks FlappysLady81, my dad has also waited 12 months before seeing a Dr so now the concern is that it has spread. He has a CT scan booked to check for secondaries. The crazy thing is my granddad (my dad's dad) had bladder cancer at the exact same age.

He had his pre-op today, all was well so he will be having the TURBT procedure 21st September.

Hope you're okay.

Take care

Love Hayley x

Sep 13, 2018 4:57 PM

Hi Harley,
I am sorry to hear about your Fibromyalgia and your fathers cancer! I have fibro and a friend of mine have breast

Sep 13, 2018 5:01 PM

Sorry.. i posted by accident too early. I just wanted to ask you ig you or your father have been suggested or informed about LDN (Low Dose Naltrexone)?? It works very well with Fibro and some types of cancer. Maybe you could google it or go to you tube where many doctors explain how it works! Wishing you and your father all the best! 🙏🏼

Sep 13, 2018 5:02 PM

Ooh I never finished the first message. My friend has breast cancer and we both take LDN and have great effect from it!

Sep 13, 2018 5:10 PM

Thanks Jeamaria I will definitely ask about that next time I see my rheumatologist.

Thank you for your prayers, hopefully all goes well, I'll keep everyone posted.

Take care

Love Hayley x

Sep 20, 2018 6:14 PM

Hi guy's my dad is having surgery today and the round of chemo. He'll be in hospital for at least 4 days.

We still haven't got the result of his CT scan, fingers crossed that it has not spread 🙏

Thank you for your support and love.

Hayley 🌹

Sep 21, 2018 8:36 AM

Haley, you're both in my prayers. And I'm sending your virtual hugs! 🙂❤🙏🌼

Sep 21, 2018 5:59 PM

Thanks FlappysLady81, the surgery was a success. They have removed the tumour completely. His CT scan was also normal thank goodness, so it hasn't spread. He had a dose of chemo also today.

He's in surprisingly good spirits when I saw him earlier. Things look positive right now.

Thank you to everyone who sent their love and prayers 🤗🙏🌹

Sep 22, 2018 10:03 AM

Thank God, this is great news! I'm so happy for you and your family. Keep us updated to how he's doing now & then. Have a blessed day! 🙂❤🙏🌼

Sep 23, 2018 9:07 AM

Hi guy's just a quick update...

My dad is now home, he tolerated the chemo well. A bit sore but otherwise well. His consultant has said the next step is to grade the cancer. Depending on what stage it is will determine the next round of treatment.

I've told him to take stock now and look after his mental health, the last 2 weeks have been a whirlwind, now he has 2-3 weeks before seeing the Dr again I'm worried it might hit him hard - cancer is a mental fight as well as a physical one.

Thank you so much for all your love and prayers 🤗

Hayley 🌹

Sep 26, 2018 12:27 AM

Sorry it's taken me so long to get back on here, but i have been praying for you and your family and pray that things continue to go well with your dad's treatments. I will continue to check in to see how he is doing and see how you are doing as well. Prayers for a better tomorrow! MoparMom 💖

Sep 26, 2018 2:36 AM

Thank you so much Moparmom, that means a lot to me and my family.

I hope you're okay 🌹

Love and prayers 🤗🙏

Hayley x

Ready to start relieving your pain?

Join Community