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Pregnancy and chronic pain

Oct 14, 2019 10:37 PM

I'm 9 months pregnant and in so much pain. I started my pregnancy with a flare up of severe neck and shoulder pain (ongoing but not treated since 2014) where I ended up in the Emergency Department. They wanted to do an Xray and Bone Scan and asked if I could be pregnant and I said possibly but I hadn't had a positive test yet. They confirmed my pregnancy and sent me home to talk to my family doctor. The first 3-4 months of my pregnancy were hell. I could only take tylenol and spent a small fortune on acupuncture and chiropractor visits. In the last 5 years I've seen countless physics, chiros, acupuncturists, osteopaths, sports doctors, neurologists. I've had ultrasounds, xrays, and MRIs and they all tell me different things. Finally a coworker recommended me to her physiotherapist who diagnosed me with "Non-specific / disputed" Thoracic Outlet Syndrome for which I have all the risk factors: extra cervical rib, history of car accidents, female, pregnant. She treated me and I had about 4 months pain free! I even stopped using this app to track tylenol use. Now in my last few weeks of pregnancy I had a severe flare up and the exercises aren't working. Add to this the pains of the end of pregnancy (sciatica, carpal tunnel, hip and low back pain) and anxiety about how the stress of child birth will affect the neck and shoulder pain and make it worse. I've been counting down the hours until I can take another tylenol (1.5 hours) and until I get in to see my physiotherapist (12 more hours). I haven't slept since it flared up 3 nights ago and just needed to vent and tell my story...

Oct 17, 2019 7:39 AM

TOS, Review your MRI reports your self. The disease have does not allow me to have epidural shots. That is the common pain relief in labour. the shots and meds they put into the spine causes nerve clumping also something they never tell you is that it is used off label and the companies have been warned by the FDA . Same with the contrast ib MRIs. There are cysts along the spine that can cause all your symptoms. Always ask for a hard copy of your images and reports.

Oct 17, 2019 8:36 PM

Zetarlov, thanks for the reply. How did you know about the cysts? Only from reviewing your own MRIs?

As an update, I went to the hospital today because my hand was swelling and discolored and blood clots are a risk with TOS. I had an ultrasound and thankfully no blood clots. I was given hydromorphone for the pain, just enough for the next few days until I'm induced. Once the baby arrives I can go back to taking other medications that aren't safe during pregnancy.

Oct 17, 2019 9:09 PM

Hi yod I’m Shore gl .... I have my back issues and tomorrow I’m getting a walker . I’m going through Rhyitzotomy on both right and left side.. my right side is five but sore and pinching and hurtful(. But I’m manage some how. If you need sone one to chat I’ll try and be here and check .
Hug gently ))))) I’m just a little apprehensive about the walker I’m only 49 ..... but if I need one I do my fiancé has been so helpful and ge has his own issues. I’ll pray for you every one here ...
Shore 🌈🙏🙏❤️🤗🤗

Oct 22, 2019 12:17 AM

TOS, A Neuro showed them to me as said they were nothing. I saw a fresh from school pain doc who told me they could cause my symptoms and he could do nothing to help me. That really pissed the Neuro off. So I did my own research and found it was a rare disease and few docs would even attempt to help you out much less help u u understand them. Also having those epidural during labor will increase your chance of spinal issues. The consensus in our support groups are to avoid any shots close to the spine. there are new warning out about them since they are used off lable.

Oct 22, 2019 2:46 AM

Thank you for the warning.

Oct 24, 2019 9:55 PM

Oh TOS, bless your heart! I was at my healthiest during my pregnancies, definitely before fibromyalgia and sjogrens & other chronic issues. Well thats ignoring the early 8 weeks morning sickness withboth babies that hospitalized me. But i remeber the misserable last 4-6 weeks of aching back pain, and my heart goes out to you for what youre dealing with while pregnant. Do you think getting a massage (in a massage chair) would help? I wish i knew anything else to suggest. Sending hugs love & prayers that youll soon have the baby and your pain will decrease!🙂💞❤🙏🌷

Nov 10, 2019 2:30 AM

TOS- I am so sorry for your discomfort and pain during your pregnancy. A pregnancy should be a pleasant experience. I wish I could offer some suggestions. I know at times having fibromyalgia for some massages aren't as pleasant because it can cause more pain unless you go to a Chiropractor who specializes in pain management as I do. Seek out help from a pain clinic. Try your best to relax and not to stress because your baby picks up on your stress. Maybe some warm bathes would help relax you. Try not to tense up. I'm praying for you and your baby.

Nov 10, 2019 11:46 PM

Hi everyone, I just wanted to update you all on how I'm doing. I really appreciate your responses. I gave birth to a beautiful baby boy on Oct 20. A few days before that I went to the hospital because I was in so much pain and my hand was hot, red and swollen and I was worried I had a blood clot (something I was told to watch out for with TOS). They did an ultrasound and ruled out blood clots and I was given hydromorphone for the pain. It didn't work very well and I was still in a lot of pain in those days. Once I started going in to labour the other pain nearly disappeared as I was so overcome with the labour pains. I did get the epidural and I'm glad I did because I could never have imagined the severity of pain I felt in labour!

Three weeks later, the neck and shoulder pain is still there but I'm able to manage a bit better now that I'm not pregnant. I have an appointment with my doctor to talk about cortisone shots going forward.

Nov 11, 2019 2:55 AM

Congrats and gl hug Shore 👍👍❤️🤗🤗👋

Nov 11, 2019 10:41 PM

Congratulations momma on the birth of your baby boy 👦.

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