Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

Prescription Drug Free?

Sep 08, 2016 9:39 PM

After taking Multiple medications for years, and regularly hearing when I went to the doctor "how do you feel in the morning" I decided to just use supplements. I felt that I had so many side affects that I really didn't know how I felt.

So since January I have been eating clean, veggies fruit and lean proteins. Taking vitamins and supplements and going to Accupuncture. I want to believe that the brain fog will go away. The last month or so I am so fatigued, feel a lot of pain and am not finding a lot of relief.

Have any of you taken this path? If so what has been successful? I have lupus, fibromyalgia and RA. I have a high tolerance for pain, but there has to be something anything better than this.

Sep 08, 2016 9:58 PM

I'm trying the same currently. Stopped smoking 2 years ago, I have sugar cravings, and still addicted to my diet coke. I've stopped coffee. Taking supplements, protein drink, I also trying to add organic, non gmo fruit, vegetables and products when i can afford it. I do alot of reading on pintrest of what foods are good for and am trying to add them to my diet. I have a Nutri bullet my daughter gave to me for xmas. I've used alovera juice which helped my irritable bowl cyndrom. Started turmic tablets as well as added avocados and spinach to my diet past couple of months.

Sep 09, 2016 12:18 AM

Hi nana ⚘
What difference has this madeπŸ€”, to how u feel onπŸ€— a day to day basis?πŸ˜™ And what are ur pain levels like now that u have a better cleaner diet?
😚 Sending best wishes for the weekend aheaf πŸ€—

Sep 09, 2016 8:39 AM

I have fibro and other autoimmune inflammatory conditions. I am down to one prescription medication. I am weening off of it because I am nauseated all of the time. So- here's what I'm doing instead:

Bio-identical hormone replacement therapy. Turns out my systems are (not surprisingly) Under a lot of stress. While I do have to get these hormones from a doctor, they are naturally occurring. I've seen a lot of improvement with this treatment protocol, though it did take a few months to feel it. I've also lost some pounds. Bonus!

Exercise. I'm still looking for my ideal level of movement, but no doubt this is hugely critical to long term success.

Supplements. They help. I take several. My favorite are D-ribose and magnesium.

Alternative treatments. Massage is my favorite. Be sure the oil they use is noninflammatory. I've been thinking of trying acupuncture. I also use essential oils.

Diet. This one is my biggest success or failure story. Here's what I've done. I cut out all animal proteins including meat and dairy. My body reacts to these proteins much like it would to a germ. My immune system surrounds and attack the proteins making them so large that they get stuck in my joints and cause inflammation. Dairy is also highly mucus forming, ridding my body of that extra mucus helps with pain and asthma. I cut out all processed foods including sugar and flour. Organic and nonGMO are a good goal, but for me, not as important as avoiding chemicals, & processed foods. Sugar triggers pain and migraines, white flour triggers body pain....etc, etc...

If you're determined (as I am) to stay this course, I'd recommend finding a doctor who is as dedicated to this course of treatment as you are. He or she can tell you which supplements and vitamins are high quality and which are junk. Good luck and keep us updated on your successes. I'd be interested to hear what works for you.

Sep 09, 2016 9:45 AM

I've tried it. It made no for me either. Those with lupus the meds used to treat it are in part to slow down the damage of it. It's not good to be off them even if they do make you feel crappy. Also supplements can major issues going on so be careful with that. Garlic, alfalfa sprouts, anything that builds your immune system is bad for Lupies.

Sep 28, 2016 9:12 PM

Lulabel. , I beleve everything I've done has helped it's like baby steps. The biggest problem is my sleep 12 plus every day still. As well as my mental wellness when I overdo it. I still can't deal with stress for long periods watching my 2 year old grandson. I started the turmeric tablets and felt my headache get a little worse for a day then better as well as my ears are improving alot compared to a year ago. I always improve in the fall with my adult allergys. So next summer is always my test for all my changes. I have not been eating my salads as much and stopping for diet coke and hamburgers this past week my daughter is getting married Saturday so helping her alot this past month.

Sep 28, 2016 10:27 PM

I tried going that way.. But for some reason when I take supplements I get really shakey. Similar to what I feel when I have to do Asthma Inhalers or Updrafts. No one can figure out why. Couldn't live that way. Ugh!

But am so hoping it works for you. I wish I could remember the name of that medication that was given to me for fatigue. I know it had prescription strength of Folic Acid. :( I need to find that. (going to look now).

Sep 28, 2016 10:45 PM

Am going to have to call pharmacy tomorrow to get the name. I have been off it for a month .. But need to order more. Darn brain fog. Here is a website that explains our need for Folic Acid. My rheumatologist said that the ones you buy OTC don't get absorbed correctly which is why the rx one was important.


Sep 28, 2016 11:08 PM

Ok. Here is what I was taking. Rheumate. Its a medical food product. Its initial use was to manage the metabolic effects of Methotrexate. Many doctors now are prescribing it for Chronic Fatigue. There are very few side effects.. I'm fact none are listed on the fact sheet.

It contains:
Methylcobalamin (B12)
Curcuminoid Turmerone Complex

For me it really helped with the side effects. Unfortunately it isn't covered by insurance and the cost averages out to about a dollar a pill. I had an RX for 60. It costs a little over 60.00. Instead of taking 2 a day I cut it back to one so it lasted 2 months. The reason I cut it back was because my insurance finally chose to cover my prescription for Nuvigil.

Sorry for rambling on. Hope you are having a good evening.

Sep 28, 2016 11:27 PM

Mimikay what about Feosal? Iron supplement for Anemia? You can get it OTC and it's only $2.87 I take it for Anemia and GBP. For those going such naturals' don't forget your dark green veggies like spinach in your salads etc.

Sep 28, 2016 11:39 PM

Not sure..I know he said the Folic Acid and others combined would help with Chronic Fatigue. I take Iron for anemia...

Ready to start relieving your pain?

Join Community