So I got some really good news from my eye doc this afternoon. I have been on hold for a corneal transplant for the past 9 months (wow). As promised, my neurologist did speak with my eye doc, and it was decided that I am in enough of a remission to allow for transplant. Consult appointment is on the 11th. I am so overwhelmed with emotions right now, it's not even funny. Have run the plank from ecstatic to sadness. I'm sure the hormone mess doesn't help matters either. I just feel like I've been walking around in a dream this afternoon, trying to pinch myself to see if it's actually real. Kind of makes all the hell from the last year worth it now.
I was talking to my mom this afternoon and I absolutely lost it. My uncle died at a very young age from a brain aneurysm and my grandparents donated his corneas so that others might have that precious gift of sight. I guess the bond between us extends far beyond the veil. Now, I have that chance to receive the same precious gift of sight. 😢
And after thinking about it deeply, I've decided to hold off on moving forward right now with it. Primarily for 2 reasons. I still have unanswered questions that I need to touch base with my own eye doc about and secondly, because I need to get feedback from my infectious disease doc as well. I don't want to have a rejection episode post-transplant because of MRSA. It's not worth the risk at this point to me.