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Psoriatic Arthritis

Nov 09, 2014 11:13 AM

I am 35 and have just recently been diagnosed with PsA, how ever I have had this since I was 19. Right now my PsA is the worst it has ever been and I've been in a flare for just over a year. I am on meds but I am not yet responding to treatment.
I feel very isolated and alone a lot of the time. my husband is very supportive but he really has no idea how I am feeling, no one dose. Everyone in my life was very supportive while I was going through my diagnoses but now most have disappeared , with the exception of my husband. People think if your on medication then your better, end of story. No one understands why I'm not getting better and actually getting worse and they all get sick of hearing me say I'm in pain so I don't say anything any more.
I'm trying to stay optimistic and posative and not let myself sink to far down but it's getting hard managing all this alone. hoping all of you on here may be able to understand me...........

Nov 09, 2014 12:29 PM

Yes, we do understand! All too well! I've stopped telling people how I feel as well. People want to be surrounded by positive people, not people who are bringing them down. So I put on my mask and play the role. And every once in a while I tell them that I don't feel better, that I'm just coping.

Nov 09, 2014 1:17 PM

thank you iathompson!!!!!!!

Aug 22, 2015 2:32 PM

Hi! I am 17 and I was diagnosed with juvenile psoriatic arthritis half a year ago. I completely understand what you're going through! Are you on humira and methotrexate? I am on both and I don't think either is working! I know it's frustrating because you can't do what you once did and people think you're just being whiny. I've found it's weeded out the good and bad people who will support you. You'll get stronger from this and I hope you get the right treatment soon! Also, since I am pretty young I have been forced to go to a therapist for this. I actually do think it is helping me manage this awfulness she also reccomened a pain management specialist if nothing else works so those are two other options!

Aug 22, 2015 9:49 PM

We may not all share the same diagnoses, but we all understand chronic pain! I have osteoarthritis, fibromyalgia, hypothyroidism, & sjogrens, plus many others. My rheumy doc put me on Plaquenil for the sjogrens, and its helped lower my pain from 7-9 level to a 3-4 level daily. When she was telling me about the Plaquenil she said it's also used for lupus and RA. KimW many spouses can't understand. It took my hubby being chewed out by 2 different docs & then they educated him about my conditions, and now he's my biggest advocate. I'll keep you in my prayers. 🙏🌼

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