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PT/OT... A small lifeline of hope

Oct 16, 2015 8:01 AM

I went to college and got my 2 yr degree then passed the credentialing test for a RHIT (registered health information technician). I worked from 2003 to 2010 making good money as a coder. I haven't been able to afford to do the continuing education credits every year to keep my credentials. If I had I may have been able to work from home, at least for a little longer. When I became ill and unable to work in 2010, I thought "no problem, I'll be back at it next year." Not so, and I'm no longer able to recall how to even code med records anymore.

I've always between a very structured person, "a place for everything, and everything has its place.". My hubby said I'm OCD, but I haven't been diagnosed. Now I do good to keep up with finding my phone or remembering how to cook recipes I use to know by heart. I do good if i remember to put eating utensils in the proper drawer, or my clothes in the dresser drawers. Fibro fog has affected my memory for my household functions and my career. I finally accepted it last year, that I won't be able to work. And this month my PCP stated I'm unable to work any job.

I had to drive to an appt yesterday, a 2 hour round-trip. I noticed while driving that every bump I hit in the road (grading for new paving) caused the steering wheel to rock quickly back and forth in my hands, the car was also back & forth in the land (small but still noticeable). I then tightened my grip to forcefully retain control of the car. I'm almost positive that forcefulness is the cause of my back hurting (neck to tailbone), and the sciatic pain that occurred late yesterday afternoon. I'm still hurting this morning, just not as bad. I'm having to take smaller steps and move slower just to prevent what I feel would be a complete muscle lockdown (bedridden 3-5+ days). You all know what I mean? Anyway my hubby has been doing most of the driving, except short 15-30 minute rides or when he was unable to drive me to the appointments.

I'm wondering now if the ortho doc is going to say it's no longer safe for me to drive? I see him Monday. I'm almost 54 (next month), and if my PCP doc is right I may be wheelchair bound in another 5-10 years (if my PT/OT doesn't help me regain strength & function). But I hope he's wrong and I'll at least be able to walk through big stores instead of riding a cart. I hope they can give me upper body strength without hurting my spine discs, causing more disc problems, headaches. Regardless, I still feel blessed because I can still see, walk (assisted as it may be), talk and think for myself; I'm not in a personal care home; I can still enjoy little snippets of fun life (with rest periods); I'm not on an O2 tank; I can still write and feed myself; I can bathe myself; not fighting Alzheimer's or cancer; I can speak and hear... So many little things I'm blessed to do on a daily basis. Even if iI do lose the right to drive or end up in a wheelchair, I'm thankful for my daily blessings. Praise God! 🙏🌼

Oct 17, 2015 8:59 AM

Flappsy, I know that you won't ever end up in a wheelchair and I'm going to tell you why... First and foremost, you're connected to me... LOL!! You are very strong and have a level head. Second, because you have a strong faith in God and he will not let you down. I KNOW in my heart that you are a fighter and that you will do everything possible to not end up that way. Besides, I know that when I am at my lowest, I still fight even though I don't think there's any fight left. {{{{Hugs}}}} love and prayers to you my friend. From my heart, always.. 💕🙏🏻🌻

Oct 17, 2015 6:52 PM

Thank you AlwayZ. I've missed you the last few days. I've made so many wonderful close connections, friends on here, but you and I have what I'd call a sister bond. I now we joke about being separated at birth, but it would be funny if it turned out to be true!

Trust me, when I say I use to be the scared shy sibling who ran from everything, it was severe. It took standing up to family for what I knew wasn't right, standing up for compassion to all, even if it caused an argument; standing for right over wrong at the expense of lost relationships. And losing my mom, having to step in and take control of everything, that was the tipping point.

I am strong minded (resistant as the doctors say) to what I will or will not do. You know doctors do not like that in a patient! But I'm nobody's puppet! But sometimes it takes hearing others thoughts to know I'm in the right place. That's why I'm so glad I can count on all of you! Like you said, this is a God-sent app of compassionate & new friends. Hugs, love & a prayer you'll feel much better next week! 🙏🌼

Oct 18, 2015 11:39 AM

Flappsy, I am so glad that you feel the same way.. I agree, we do have a sister bond. We will ALWAYS have a sister bond and I will always be here for you and all of the other folks that I have gotten to know and have become so find of. You're right, you're nobody's puppet and there is t anyone who can fortel your future but God himself. You have the will to fight and you have the support system you need to lean on. I'm glad I was able to help you realize that the fight is still there. You're a special lady, Flappsy, and I am glad that you are part of my life. Love, {{{{Hugs}}}} and prayers.💕🙏🏻🌻

Oct 18, 2015 8:51 PM

I'm feeling like the bashful lion on Wizard of Oz right now!😳 Lol thanks AlwayZ! 🙏🌼

Oct 19, 2015 9:39 PM

Saw my Ortho doc today. He sent an order for PT and OT and I start tomorrow. He also examined my right shoulder blade address; been giving me fits. He started it was likely being caused by the C4-5 discs and I needed to return to my pain specialist for more nerve blocks (headaches, sciatica, and now spondylosis-shoulder blade). Then he added, "And you really don't need to come back to see us because there's nothing we can do for you.". Well that's been obvious since the first visit there! Geez! I'll be scheduling another nerve block soon. I guessed it could have been worse... He could have refused and said I had to go back to Mayo for therapy. 🙏🌼

Oct 19, 2015 10:20 PM

Flappsy Your are such a stronge lady . You will get through this, we will pray that PT/OT will be able to strengthen your body where you will not need a wheelchair.We have become close I feel like you and Alwayz are both sisters. I just love it when Dr's say that they can't do anything for us, not. Will be praying for you starting your visits with the terrorists of pain. Sending you hugs.

Oct 20, 2015 2:45 AM

Flappsy, I am really glad that this doctor gave you the order for ot/pt and that you're starting right away. It sucks that you have to have more nerve blocks. However, if they help relieve some of your pain then it's worth it. I am sending loved {{{Hugs}}} and prayers your way as always my friend. You're going to do great!!💕🙏🏻🌻

Oct 21, 2015 9:26 AM

Weezie, I feel the same closeness! If not sisters by blood we are sisters & brothers in Christ. And friends, so many I can't name all of you. Watch me call one of my blood siblings by one of your names... That will be shoot! Lol

I don't know why I expected things to be good with the Ortho place. I got to my first session yesterday and was informed the doc only write an order for PT, and he gave her there diagnoses. But she told me I had to pick one address to work on. What?!?! When I got home and shoot an email to the doc. Well see if it does any good on Friday, my next visit. And she's only scheduled 4 visit through 11-6.

I told my hubby is too late for me to go to Mayo now, because in an 8 weeks therapy for my pelvic floor issues. I have a bad feeling not much is going to be accomplished with this therapy from the Ortho group. Sigh... 🙏🌼

Oct 21, 2015 9:28 PM

Update: I emailed the doc asking about the conversation we had regarding PT & OT, and his nurse responded, "The order was written for PT only at this time.". Duh? I can't wait for the new year... Going to fire those docs! 🙏🌼

Nov 01, 2015 11:09 AM

I love my OT friend, she always tells me. "If you want to get better, you got to do the therapy" good luck

Nov 01, 2015 1:21 PM

My friend also tells me that, therapy is very important in the healing of the injured area.

Nov 01, 2015 1:39 PM

First Flapsy, I can no longer ride casually in a car either. Wonder why? The vibrations. I even got an electric car but I think luxury might be better 😉 great excuse at least. I put pillows around and under and it helps.
Second, I have been fired from 2 Pt for not advancing. One was Aqua therapy! Remember you might not respond today but might later. Do you have a warm aquatic pool you could walk in at any local pt? It might be easier on you.
I have been in and out of my wheelchair for three years w 3 children and it sucks! I walk and stretch all I can multiple times a day but light and I can't walk far just bed to kitchen and back maybe but you want to keep strength.
I hope you feel better as weather stabilizes too. 😊

Nov 01, 2015 2:46 PM

Good luck Flappys

Nov 01, 2015 3:06 PM

Flappy, I am sorry that you ate discouraged over all that you have to go through. I am glad that the docs are going to give the nerve blocks though. I am sure they will help. They have to relieve some pain. I know your story of your life was not a pleasant one with the things that you have had to go through, But it was nice to get to know you better. It was nice to see how strong of a person that you are and how you have stood up for things that are right even if it has caused you harm. I really respect people like that. I have had to do that in my life several times. I have been a very unpopular person many times because of standing up for what I believed was right. Weh the surrounding people realized you did the right thing. It gives you relief even though they never say you did the right thing. They just start shutting up. But that is another story.

i know it is hard to drive on the road. I think this is a common problem that we don't mention here in our group. I think we shoud take up a petition and use some disabilty act from the government and insist that all roads have no bumps. Our cars should be fitted for a device. Every bump or rivet we hit gives us a discount on any medicine used to control our pain. What do you think of that idea. I know it needs work. I just thought of it. ha ha.

I know you are concerned about being in a wheelchair. I am sure if that happens that will be a while if it happens at all. You are a strong willed person. Just thing of all the things you have stood up for. Think of all the strength you impart on this group.There is a lot of strength there. You will use that strength to resist that wheelchair as long as you can. But if that time does come and you do have to use a wheelchair, you will be strong and like everythingn else, you will deal with it and you will come out victorious. Because it won't just be about you. You turn things that are about you and you use them in this group. You share your experiences. Your will help someone else deal with a similar situation and help them get through it . You probably don't want to hear this part now. I just wanted to know in the end positive things will happen. But my wishes to you are that it doesn't happen.

In Romans 5:3 it says "Let us rejoice while in tribulation since tribulation produces endurance." I use to think that this scripture was silly. Like I am going to rejoice because I am going through bad things. I would ralther rejoice that I am not going through bad things. Funny people don't do that. It takes something bad to happen to realize how great life really is. But the scripture was saying to rejoice that that after we go through these things we can be happy because we can see that we can endure expecially with God's help. That the endurance shows what kind of people we are and what we are made of. You Flappy are made of some solid material. You are strong because you have endured some very big events and set backs in your life.

Take care my friend. I hope my post wasn't depressing. I never know how someone can take what I say. I just say what I feel and sometimes don't worry about the consequesnce. But I say it from my heart. Take care my dear friend. Best wishes. The 🏜✌

Nov 01, 2015 3:10 PM

Hi FlappysLady81. My name's Mandi, I'm the Occupational therapist that just joined The group, I just want to say good luck

Nov 01, 2015 8:10 PM

Flappy. I thought about my post and I thought maybe it was't as encouraging as I wanted it to be. I am sorry that I messed up.

Nov 01, 2015 8:28 PM

I want to first day thank you to reach and every one of you! The therapist is working with me to gain mobility in my neck, because due to the fusions (and continued degeneration) I can't turn to look behind me when driving. Oh man do the exercise moves hurt! But I think it's actually limbered up just a tad on the right side. She's also helping me with my legs and lower back, and using stretch bands for the arms. On Friday she did a backwards stretch on my left leg because the muscles have been so tight I was limping. I've not had any sciatic pain since... Woohoo! Of course I had to ice the SI joint that night, but it was worth getting rid of the sciatica.

Lill, I think the therapy is working for me at least a little right now. But I've got a long way to go. I'm not sure if she's scheduling 1, 2, or 3x a week after this week.

Amanda, I am going to change doctors the first of the year. If for no other reason than finding one closer to home. Having to drive 40 miles one way is rough when I'm having bad tremors.

Crps, I don't think my insurance will pay for pool therapy. I know it's going to take determination and effort on my part. I also know it will probably take me months of exercise to regain half the strength I use to have. My goal is not to lose any more strength. Like you, I can't walk far at one time but I hope I can improve. I'm so sorry you're having to use a wheelchair raising 3 children.

Profiler, thank you so very much. I can always count on you to say something uplifting, or to remind me of God's promises. You quoted one of my favorite verses. Of course when we're feeling our worst it's hard to bring uplifting verses to mind. Thank you for your compliments to, though I don't feel very strong many times. Your idea of road bump discounts.. go for it! I'd love to get some type of discount, or something for the pain those bumps cause. Lol. It is very hard to stand for what's right. My kids say they're glad I stood firm on the rules now... not so much back then. Lol. As for the future, only God knows, but if I do end up in a wheelchair I still don't want to be weak as a baby. I don't like the hard lessons. But I think it does make us stronger. I share personal experiences hoping it can help someone else. But sometimes I think, "maybe I share tmi." Your post was not depressing. You never are. You write very deep and eloquently many times, and heart felt always. I thank you for becoming one of my dearest friends! I've gained so many here is hard to count. Thanks to each and every one of you!

MandiL, welcome! Unfortunately for me, what my doctor agreed to in his office isn't what he ordered. I'm getting PT but not OT. I think it will be as good if not better than Mayo's program. I was shocked to see how very small their PT/OT room was. Where I'm at is 3x the size with 2-3x the equipment. I've had OT once before on my hand after CTS surgery. That's where I learned to massage the scar tissue. I hope you enjoy this app. It's been such a wonderful blessing, with so many people & various knowledge.

Wishing everyone a very peaceful night! Hugs & prayers for all. 🙏🌼

Nov 06, 2015 12:38 PM

That's good that you exsperensened hand therapy, at least once, that's what I am. I'm a CHT, keep going.

Nov 06, 2015 9:17 PM

MandiL, She worked me hard today. I same home and fell asleep. But I can tell my legs aren't as weak. 🙏🌼

Nov 06, 2015 9:26 PM

That's awesome Flappsy!! I pray you have continued success with the therapy.💕🙏🏻🌻😊

Nov 07, 2015 11:45 AM

Me to, and that's coming from an Occupational therapist

Nov 07, 2015 12:35 PM

Praise God with you! I love your optimism and your recognition of your blessings. Praying that you will feel better very soon!

Nov 07, 2015 5:16 PM

That's my dear friend, Flappsy!! Always so uplifting and positive. She is always willing to come here and help others feel welcome and feel better. She is a gem and was one of the first that came to welcome me when I found this zany, wonderful, loving and tight knit community family. I feel right at home here and always prefer to help my peeps know that things will work out and that there is always someone here to help when you reach out. I'm happy to call her Friend and I also send gentle {{{Hugs}}} and prayers that the therapy continues to be a positive experience. 💕🙏🏻🌻😊

Nov 08, 2015 8:12 PM

The same can be said of you AlwayZ; the material of what makes a dear friend! Hugs & thanks to you all! 🙏🌼

Nov 08, 2015 8:25 PM

Flappsy I am so glad that your Therapy is helping. You are a strong person,your faith in God is a blessing to see. My Granddaughter has been getting OT for her neck, and left side weakness. She is making progress she can now turn her head side to side, she is starting to sit up for small amts of time, she is turning over from her stomach to back more than bac k to stomach. She found her toes and feet today for the first time. Her Therapist said it was because she was in the brace for so long it has thrown her off. She wants to walk so bad she will all of a sudden stand straight up then falls face first.

Nov 09, 2015 4:43 PM

Thanks Weezie. Bella will catch up the stronger she gets. I'm so thrilled to hear of her improvement! 🙏🌼

Nov 10, 2015 8:22 AM

Weezie, I am happy to hear that your Grandaugter has shown improvement. That's wonderful. Sending {{{Hugs}}} to all.🌻🙏🏻

Nov 12, 2015 3:36 PM

Hi again Flappys, How's PT going? MandiL

Nov 12, 2015 7:43 PM

Hey MandiL, It's slow building my strength, but I can tell it's helping. It's getting easier to do without stopping in the middle due to leg cramps or muscle spasms. And she increased my #of repetitions today. I was short of breath today after each series, which concerned her and me. I told her I'd have to keep watch on my asthma.

But then I went to the ENT after PT. I have sinus drainage going on big time causing my cough. And I had thrush all down the back of my throat... Lovely! But it likely explains the SOB and cough. And at least I know it wasn't the physical exertion causing it! 🙏🌼

Nov 13, 2015 8:43 PM

Awe Flappys. I'm so sorry that that happend to you😥. Me being a therapist, I feel so bad that, that happend to you at therapy.

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