Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

Putting their pain before my pain

Dec 29, 2016 7:01 PM

Recently my husband and I moved in with my elderly mother to take care of her daily needs instead of putting her in a nursing home. I have chronic pain in my back and hips that sometimes has me flat in bed. I was on pain meds for 23 years but had to stop because no matter what I took it did not work, or the 30 plus surgeries to fix bones.
It has been over a month of taking care of my mother and some nights after I get her in bed for the night I hurt so bad that I can barely crawl to my bed,as in really crawl. How can I juggle the pain I feel and take care of her needs? I gave up a career in a pharmacy to be with her and I would do it again in a heart beat but some days it is so overwhelming with my pain.
Can anyone recommend anything that has helped them with dealing with pain that is not med related or a meditation that has helped them? Biofeedback? Tens unit only helps some of the time. Willing to try anything......

Dec 29, 2016 7:47 PM

I wish I had an answer hun. I moved back home 6 years ago to help care for my mom. I also live with Chronic Pain. It's a really hard line to figure out where you give the care needed without upsetting your own balance. I also had a career in medical. A nurse and then home health.

For me - I have a great pain clinic doctor. We have done some major work on doing nerve blocks and radiofrequency .. I also have a NeuroStim Implant that's helped. Lately I am also involved in doing physical therapy. With that my therapist is also doing whats called Dry Needling. Its similar to Accupuncture. Am finding this has really helped me. Especially since I was in a car accident back in September.

And having people who do understand, at least to an extent, on what you are dealing with helps. That's why communities like this are so important. It helps to be able to talk about things instead of your getting lost in the daily struggle of being a care provider.

(((( gentle hugs ))))

Is your mom eligible for respite care where someone can come in maybe one afternoon or even two a week to give you a break? That may be something to look into.

Dec 30, 2016 12:12 PM

I was going to also suggest the Respite Care, or something new in our area comes through "Hospice-Plus" care, not just end of life care. They go into the home and help bathe and care for patients needing total assistance. Try to pace your activities with rest periods, so you can rest too. Hugs love & prayers! 🙂💕🙏🌸

Ready to start relieving your pain?

Join Community