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Question about mobility aides

Jun 06, 2016 6:12 PM

Hey guys! So I have a couple of questions that I hope you can chime in on! Please know that I encourage all responses wether negative or positive, to help me out! I also really appreciate all of your responses!!

So I'm diagnosed with fibromyalgia and I'm awaiting a possible diagnosis of EDS Hypermobility. I have a lot of problems with weak and unstable joints, and lately it seems to be getting worse. About a year ago I got silver finger splints for almost all of my fingers, and that's helped a lot, but now other things are bothering me more. My worst problem is my right ankle. Both ankles roll in and make me flat footed (though I actually have high arches), though I have a problem with my right ankle doing it daily. It's causing a lot of pain and I often get too weak to prevent my ankle from suddenly rolling in and making me (sometimes) fall. Similar things happen with my knees as well, only they tend to snap backwards and trip me up. I often accidentally find myself standing with my knees hyperextended and if I do that for too long it makes them so stretched out that it's almost as though I can't control them. Sometimes doing this will make it so that I have to sit with my knees a little bent before I can stand or walk again.

So, my question is, do you guys know any good braces or stabilizers that I could get to help prevent these things from happening?? I've tried the ace stabilizers for both things, and in another brand I can't remember that starts with an m, but they don't actually work for what's happening. Thank you for your input!!!

Jun 06, 2016 9:07 PM

Sadly I know exactly what you are describing with your knees and feet too. I had to have custom insoles made for my shoes to keep my arches from collapsing so much. While they help with the foot pain, they don't help with the ankle or knee pain.

I haven't had any luck with bracing partly because doctors in my area don't believe in it and partly because I am quite a large woman so over the counter bracing just doesn't fit. Don Joy makes some great bracing from what I've read on some other forums.

I also used a cane when walking for years to take a little weight off my joints when walking and recently moved to walking crutches. They have made a huge difference in pain levels.

Jun 06, 2016 10:28 PM

I never even thought of Insoles! I'm also a bigger woman, and I've recently found that the one size braces don't quite fit me as well, so I understand that! But unfortunately I don't think canes would really help me because I have problems with my wrists and shoulders giving out or popping out of place as well. So putting weight on them when using canes and things isn't a very good idea for me. Thank you so much for the advice and such!

Jun 07, 2016 8:33 AM

This has been a problem for me for years. I have found very little success with braces because they don't fit well enough. I have found good support with Birkenstocks, and kt tape. I tape every day and change the tape depending on my need. There are many brands of kinesiology tape, not as expensive and more supportive. Lmk if I can help with specifics. Good luck!

Jun 07, 2016 9:29 AM

I also have rotten shoulders and wrists, but the cane and walking crutches have slowly strengthened them. The first year of using the cane was extremely painful for my shoulder, but gradually I was able to put more and more weight on that arm. Now that I am using the walking crutches they spread the weight out more on my arms and are much more stable than the cane. Good luck finding what works the best for you. :)

Jun 07, 2016 9:19 PM

Thank you all for all of your replies! Kt tape actually seems like a good option for me. I think I'm going to try that, and I suppose I could also try a cane. Hopefully I can find some good options!

Jun 07, 2016 9:21 PM

Oh, and I forgot to say, Invisiblepain28, do you have any Kt tape brand recommendations? Do you also have any recommendations for websites or books for taping instructions?

Jun 07, 2016 10:23 PM

YouTube for Kinesiology Taping!!

Jun 08, 2016 2:54 PM

Years ago I was sent to an Orthotics supplier to have specifically molded splints for my hands/wrists for CTS. Now they just have the generic one-size-fits-all, and it doesn't work as well. I do have special foot Orthotics, by Foot Solutions out of California. I'm on my third pair and won't ever wear store bought ones. Good luck finding items to help you! Hugs & prayers!🙂💕🙏🌼

Jun 09, 2016 12:43 AM

I have found 2 brands that I like, I order from Amazon: Fitdom Revive and Luxfit. The reason I like them is because they are more supportive and not as stretchy as KT tape pro. KT tape regular is pretty supportive but is expensive. Yes, you tube for taping instructions, and try out different ways on your own. They say they last for days but I don't find that. Still worth it, like having an extra tendon where I put the tape (often multiple strips). Good luck!

Jun 09, 2016 12:45 AM

Also, I use a cane-chair which is very helpful. I can put my weight on it while walking and sit whenever possible. I think it's also called a "cane seat".

Jun 09, 2016 1:27 PM

I have standard walking canes and a rollator with a seat and basic Walker. I need to check out that came chair!

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