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Question: Could this be RSD or CRPS? ⚡⚡

Aug 22, 2016 9:00 PM

I'm back on the Fentanyl patches, day 14 post op. The general surgery pain in the neck and shoulders has improved since reapplying the Fentanyl patch. But I had my hubby help me change the padding on the neck brace tonight because I broke out sweaty several times today; thanks to steroids. While cleaning the sweat from my neck I noticed that around the incision I'm actually numbn, which is great. But just along the low ridge of my jaw bone, from ear to center of chin, as I moved the cloth across it was painfully irritating. It was most painful the further forward I went, and it felt like being zapped by electric current. I've had similar feelings in odd places over my body for over 2 years. Once I couldn't shave my legs because of, which lasted over a month, went away, came back, and reoccurs randomly. Another time I couldn't tolerate my rings on fingers, which has only happened once. It's definitely overly sensitive & painful. I really am having a difficult time where my chin rests on the neck brace due to that pain. Does this sound like RSD or CRPS, to anyone who has it? I appreciate any suggestions, opinions, or help! Hugs love & prayers for a good 24 hours to all! Goodnight until tomorrow... I hope! 🙂💕🙏🌸

Aug 22, 2016 9:47 PM

Flappsy, that sucks that this is happening to you and yes, it sounds like it could be RSD. It can settle into areas where you've had surgery. I was diagnosed many years ago by a neurosurgeon and every surgery I've had has resulted in the spread of this insidious disease. I hope for your sake it's not.. Perhaps it's from the disruption of the nerves from the procedure. I'll keep my fingers crossed that it abates soon. {{{Hugs}}}💕

Aug 22, 2016 10:18 PM

Hey Flappsy... By the sound of it you may have the begging of RSD or CRPS. As Alwayz said it can be a result of the surgery. I was diagnosed 3 years ago and mine all came from surgery. All I can say is no matter how painful those spots feel keep touching them with different fabrics and things so that the area doesn't become so sensitized that you can't stand anything on it. I do desensitization to my affected area 5-8 times a day with just touching different things over it. I am so praying that this goes away for you...keep your chin up and keep smiling :)

Aug 22, 2016 10:45 PM

Flappy my friend I did not even want to put my two cents in but, you are a friend and I could not ignore you. I hope that it is just a bunch of really pissed nerve endings finding their proper connection. I fear that it is the beginnings of RSD. Is there anyway that you could talk to the anesthesiologist - could they have used a very long action local anesthetic? I know there are a few that you can inject and they do not wear off for 72+ hours. I know your surgery was earlier than that but we all process anesthesia differently. The actual record you want is the anesthesiologist. The oprotive report usually does not have everything that anesthesia pushes. But it never hurts to have both. You might call to see if this could be it. When you can talk give me a call or text me. I am happy to help

Aug 23, 2016 7:21 AM

Oh Flappy, it sounds like CRPS to me too.... at least the very beginnings of it. For your sake I hope it is just that your nerves were rattled by the surgery and are re-establishing those connections.

Aug 23, 2016 4:58 PM

Thanks everyone. I sort of thought it might be, just from reading yall's posts about the topic. It feels like my trigeminal neuralgia on the underside of the chin. B but from the jaw bone ridge up it is 10x worse!

LMB, I'll get my hubby to go get a copy of the records and see if he can talk to the anesthesiology doc. Thanks!

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