Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

"*insert name here* is in pain and they can work!"

Oct 03, 2016 12:14 PM

My dad's girlfriend compares my tumor filled body to that of her son's. He has bad joints but still goes to work. He's also 36 years old. He'd be in some sort of pain without his medical issues. I am 20 years old and I can barely leave my bed to go the the bathroom. But she makes me feel useless because "her son can do it!"

Oct 03, 2016 12:26 PM

I hate all those types of people who never went to medical school but damn their smart as a doctor! I have chronic pain all the time and my family is just the same way

Oct 03, 2016 12:30 PM

Exactly! She thinks because she can use Google she knows more about my medical issues than I do.

Oct 03, 2016 1:13 PM

My family's like that. At this point I don't give a damn what they think. I'm in a different province and have no contact with them. I remove toxic people out of my life for my own health and sanity. My family is very toxic.

Oct 03, 2016 1:23 PM

Screw 'em!!

Only you will ever truly know how you feel...

There are some decent genuine empathetic people out there, so dont get angry or frustrated or upset due to someones ignorance...rise above it and find people who believe you :)

Oct 03, 2016 1:39 PM

First of all she can shut her mouth. I also have tumors ravaging my bidy and I feel like dealth warmed over daily. The pain is worse the anyone can imagine. My mom is thst way thst she feels I should be able or willing to give her a roll call of what hurts and where and for how long whenever she wants. I'm sorry you too deal with this.

Oct 03, 2016 4:19 PM

So sorry to hear about all the crap you're getting! Just makes the pain worse! Unfortunately, some people are know it all's & that's not going to change.

All I can suggest is: not talking about your pain with non-supportive people, journaling so you can find a pattern, maybe eliminating foods to see if you're allergic or sensitive to them, find a good doctor/pain clinic, try to take time every day to do some SLOW deep breathing, & last, but definitely not least, letting God carry your burdens. Doesn't mean you won't go through junk, get frustrated, etc, but it really does help!

Hang in there!

Oct 05, 2016 9:13 AM

Frailfairy ! Hey first of all you need to remember that it is not a competition! You do not need to prove to anyone how bad your pain is! If he can go to work good for him! It has nothing to do with you or your situation. It's like comparing apples to oranges. Nobody can understand the struggles you face daily unless they have walked in your shoes and even then we all deal with pain differently! Stop trying to make non fibromites understand our struggle it's like hitting your head on a brick wall! Lol! You are strong and battle everyday! Don't need to prove that to anyone! I know it's hard but you just don't need that BS in your life! Hang in there!

Oct 05, 2016 4:19 PM

You tell her- my pain is not his pain, my illness is not his illness, it's like comparing apples and pencils. Sorry you're going through this

Ready to start relieving your pain?

Join Community