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"Just live with it."

Feb 01, 2017 11:13 PM

I hate when people tell us chronic sufferers to "just live with it." It is so incredibly frustrating.

In the last 5 days, my LOWEST pain intensity level was a 5.3. And that was a REALLY good day for me.

But at the same time, how is that living? How are we supposed to live with it, when it is ALL we can do to just barely function? That's not living, that's existing. They don't understand why we never feel good, but that's because they can't see that we are literally fighting against our bodies every single day of our lives. So no, I'm not going to just live with it, and never say anything. I'm going to be vocal, I'm going to share all the gory little details, and I'm going to make sure that my voice is heard. I won't give up, and just live with it. I'm going to fight through it. And I'm not backing down.

Feb 02, 2017 3:58 AM

I really hate when people say that or "just push thro the pain" they both make me want to scream at them and say you try living with the pain, depression, anxiety and coping to function for my kids! Especially when it's family that says it. Most of my family are really good and try to be understanding but a couple....like my dad....tell me to carry on living with it and push thro it.....I lost my temper with my dad the other month and said to him how the fuck am I meant to carry on living a normal life when it causes me to hit the brick wall where I can't do anything but lay in bed and sleep thro the pain, where just vacuuming my living room takes everything out of me....let's just say I left my mum and dads very soon after that argument!!!

Good luck and I hope your voice is heard and that people listen so they can realise that we don't want to live like this but we have no choice 😢😷😥😢

Feb 02, 2017 6:06 AM

Hi guys n gals how do u monitor your pain scales x

Feb 02, 2017 9:09 AM

Sallysidebob I use this app to monitor my pain, anxiety (stress) and fatigue. I try to log at least once a day but prefer 2 or 3 times but that's not always possible with life or a flare or normally just my bad memory and fogginess!
I bring my phone into my doctors appointments and she looks at the chart and some of my logs and she sees how everything is interlinked.
I personally can't afford to print the reports but most times I'm in too much pain to even work it out how to do it plus my GP doesn't have the time to be reading thro all the paperwork.....it's just easier to show her my phone!

Feb 03, 2017 7:27 AM

I grew up with a grandpa that way, always told me i just needed a good swift kick in the ass lol

Feb 10, 2017 4:51 PM

Happytoseethesunrise that's hysterical. My grandpa used to ask me when I was younger "what could you possibly have to be upset about?" He thought because I was a kid, I couldn't suffer like anyone else.. My Mother always said to me "if you're looking for sympathy, it's between shit and syphillis in the dictionary!!😂😂😂

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