I noticed today that I have always described my pain sensations as though they were sounds- buzzing (nerve stuff- I swear I sometimes imagine I hear it) bass (pulsing) , twanging muscle fascilations (I imagine them like guitar strings being plucked) and I wondered what strange metaphors or descriptions people have used in the past.
I just told my doc, "if my pain was a noise I would be humming". I feel a kazoo style buzz, vibration - ish thing. All of my skin also feels "numb" but it's not. Like I am covered in a stocking or film that reduces skin sensation overall...like cotton mouth of the skin. Idk, it's very difficult to describe. I also have a weakness in my hips and shoulders, like my hydraulics are broken. Stairs, rising from chair, overhead suffer like drying hair VERY DIFFICULT. I have a hard time accurately describing my symptoms.
I struggle to describe it too. It's like a constant heavy humming weight across my shoulders and top half of my back. My hands and fingers are numb but not if that makes sense. When I have what I call a flare up - when the pain is unmanageable and unbelievable - it's like fire that takes all my energy.
I hear a sole cello playing minor keys in bass. I see sad children in orphanages in Russia. My pain often has a depressive component. I change the music & picture to something happy & supportive. It helps.
Mine is like a heavy blanket I have to carry around. If I could lay it down and feel the sun or the touch of my husband's hand without pain it would be wonderful. It's like being covered in numb scratchy pain and will never go away and I have to carry all the time. Even when I sleep.
I have used word like earthquake for tremors I get and so much pressure that my bones feel like they are going to explode out of my body. Sunburnt all over my skin or I have told people imagine having a migraine headache but it's all over your whole body. Now I mostly say I have a chronic illness if I say anything at all. It's just too hard to explain to people. Most of the time i dont have the energy to try