I wrote this tonight because I couldn’t stop thinking about how it affects me and my family being only 14 and have having it for 7 years now.
What is CRPS?
It’s laying in bed crying because the pain is unbearable it’s telling people you sprained your ankle badly when you know dam well that it’s just your crps
It’s telling your mom you can’t ride your horse or go to cheer practice because it will be to pain full
It’s spending endless hours in the emergency room crying telling the nurse that the meds won’t or are no helping
CRPS is not the enemy it’s your own brain
It’s your brain telling you that you broke a bone or you sprained your ankle,wrist or even that you broke your back when you know it’s not true
CRPS is asking your mom to look into getting a service dog to help you when you have a flare up but in reality you just have to wait it out
Crps is your Mom looking sad because she doesn’t want to see you in pain anymore and your dad having a breakdown because he wants to help you but he can’t it’s your stepdad asking if your okay and you say yes and smile but on the inside it feels like someone is stabbing you
It’s your sister and her boyfriend coming over to sit on the couch with you or they take you to your doctor appointment when it’s not thier job
Crps is your stepmom sitting next to you until you fall asleep because she wants you to be okay
It’s your stepsister bring you food and watching you while your parents work
Crps affects everyone in my life but complex regional pain syndrome will not control it!