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Really? -.-

Feb 18, 2016 7:13 PM

So today the pt lady came today, but it was a new lady who doesn't even know what crps is. And she asked about what medicines work for me and I said nothing helps me at this point and she then decides to ask
"Well have you tried ib profen" -.-
I honestly didn't want to be rude but I told her if I've been getting strong opiods that would knock a normal person out, why would you think ib profen help me. I realize I probably sounded rude but still, I was talking to my mom about it because I thought it was Just ridiculous and she said that what I said wasn't too rude and I had a right to say it, so that makes me feel better lol. But Im just amazed that she was asked something like that.

Feb 18, 2016 7:27 PM

That's crazy! But this is kinda a joke in the military that ibuprofen cures everything ;) haha
I would've said the same thing though if the person wasn't obviously in the military

Feb 18, 2016 8:00 PM

Jenna, you were not rude at all. If it were me I'd call the place that sent the therapist out, and request they not send her again since she is not familiar with CRPS, nor apparently has knowledge of medications very well. 🙂💕🙏🌼

Feb 18, 2016 8:08 PM

Seems to me that you were not respected by her and whoever sent her. Your needs are their reason for doing the job

Feb 18, 2016 8:19 PM

Thank you Jenna for being real. I laugh with you, adding a sarcastic eye role and I shake my head. Good for you girl!

Now excuse me I need to go take some ibuprofen :p Not really, might as well take a tictac.
Beets.

Feb 19, 2016 1:29 AM

Jenna, it's funny that I get this puzzled look or a look like "oh I know what that is" when clearly they don't have a clue. I get tired of explaining when it's obvious some people do not care. So.. In my purse I carry a short sheet from my doctor office with my diagnosis and the symptoms. I hand it to some people... Not everyone because you know everyone doesn't care. That way if they really care they can read up on my illness. I can be short or change the subject to take the focus off me when I know some people do not care and are just asking to what they think is being kind. It is like how people say "Hi how are you?" And at times I will say a zombie just bit me and they say " oh good to hear that". They didn't care nor were they listening. That therapist lost you and you didn't get the most nor best out of her visit because of her lack of knowledge and ignorance (ignorant because she lacked information and knowledge of who she was treating). So very sorry...she lacked professionalism. Blessings!

Feb 19, 2016 2:03 PM

Seriously?? I would definitely ask for a new PT. I asked for a new OT when then one they gave me had NO clue and NO willingness to work with me. If you don't understand CRPS - you'd better listen to me, go away, or learn fast!

Feb 19, 2016 2:48 PM

Well the pt lady that came basically told me that she doesn't plan on coming back. And kind of rudely the way she said it. So I'm glad she isn't coming back. Plus I'm not even doing anything PHYSICAL, I'm doing grated motor imagery I'm just look at pictures basically, because I can't handle being touched at all, and she was all like "well then your never going to walk again of you don't cooperate" like I am cooperating, with my actual pt lady. I didn't even ask to being doing gmi, she was just a rude person, and when I kept telling her that she can't touch my legs she would just tell me that I'm over reacting, I just don't understand why she would be in the field she is if she clearing doesn't care about the patients. She even would "accident my" bump her arm into my legs, like she was testing me or something.

Feb 19, 2016 3:17 PM

A lot of health care practiononers don't have the experience that you need all the time.. I am sure she was referring to the anti inflammatory properties in Ibuprofen. And I bet ya she goes home and investigates what your disease processes are all about. I am sorry you were upset.. Maybe she was new , and only had experience with a certain few areas.. I support you Jenna, I think you know I do.. But I do want to remind people that just because we are health care providers does not mean we know everything about certains medical problems..I just think she meant well as most people try too..especially when they really don't know how to respond not it or care for it. I love u lil sweetie, and of course this is ONLY my opinion. Much Love,Terri

Feb 19, 2016 3:20 PM

Meant he kept referring to him as a She.and good I am glad that he recognized he lack experience.. Sorry he was not more humble about it.write a complaint to the PT department head..that will help!love ya,Terri

Feb 19, 2016 7:23 PM

Jenna, I'm really glad she isn't coming back, especially since she seemed to be of the "no pain no gain" mindset. And to bump you was totally disrespectful, especially if it was more than once!

Is there a way your mom can print off some basic info on CRPS with links added, so you could give it to anyone else that comes. At least that way the person (s) could take time to learn about something new. Who knows, you may be the patient that redirects them in to a new field of practice, to really learn how to help CRPS patients. Wouldn't that be awesome! Hugs, love, & prayers you have a nice weekend! 🙂💕🙏🌼

Feb 19, 2016 8:31 PM

Don't we wish something like ibuprofen would help lol I'm sorry you had that kind of experience. It is so hard to find people who understand, or want to understand, CRPS. I would call the company and explain your concerns. Hopefully they have someone familiar that they could send out. Gentle hugs and prayers for you!

Feb 19, 2016 9:58 PM

I had my mom call them lol, I might be 18 but I still have her do all of my appointment making and everything that has to do with this, my social anxiety is so horrible I swear. But my normal pt lady is coming back And she actually specializes in crps pt, she just couldn't make it yesterday (was it yesterday? I'm my memory is gone)i basically just show everything the video
Feel this pain:CRPS by Ken mckin on youtube, he explains it soooo great. I personally think everyone should watch it even if you have CRPS because Its just very informative. He even has videos for a lot of chronic illnesses probably everyone's illness Thats on here he has a video describe what type of pain that illness causes for their daily life. I really recommend his youtube channel.

Feb 19, 2016 10:41 PM

I will! I want to know everything I can about this horrible illness. How long have you had it? Is it just in your legs?

Feb 19, 2016 10:43 PM

I just looked him up. I have watched one of his videos shortly after I got diagnosed I just didn't remember his name. He is good.

Feb 20, 2016 7:23 AM

I'm so glad to hear that Jenna. And don't feel bad about getting your mom to do those things at 18. I did it, and so did my girls. I think it was about age 20, after I married, that I began having to do for myself. There more I did it the more comfortable I became. I had also taken a job as a bank teller, having to speak to customers all at, and that helped a lot. Then in college, at age 40, I had to take public speech and that was hard, but it also helped. It just takes experiences and age to get comfortable dealing with people, friendly & not friendly ones. Keep us posted. Hugs, love, & prayers you have a very good weekend! 🙂💕🙏🌼

Feb 20, 2016 1:12 PM

Crpssux I have it from thighs down along with it in my stomach and its spreading to my left arm as well. How about you? And his videos are so great. Like I have watched every video on his channel (i have a lot of free time lol) so I have learned a lot about a bunch of chronic illnesses now.
Flappys I'm glad I'm not the only one lol. When I was living with my boyfriend (i was living there from about 16-18) I basically had him do all the calling for me once I turned 18 untill I came home lol.

Feb 20, 2016 1:32 PM

I think I would have slapped the shit out of her then told her she was a dumb bitch. But always follow that with a "Oh I am so sorry , it must have been my torrets syndrome". She deserved it. Sorry she totally lacks compassion and a brain.

Feb 20, 2016 2:07 PM

Omg lmb that honestly sounds like something I say on a daily basis (not to the actual person but I say it to my friends after lol)

Feb 20, 2016 3:42 PM

Lately my 'filter' has been removed and lost. Sometimes life just forces me to just let it out. I have always been the friend that you knew if you asked me for my opinion, you would get it. Do these jeans make my butt look big? No, your butt makes your butt look big. Oddly, I am the person my friends ask to help them pick out bathing suits, lol. My home is not PC. The last free place you can really say what you feel. But without being mean. Mean people suck.

Feb 21, 2016 8:12 PM

I agree with Terri about not knowing about all conditions. The only thing that would have bothered me about that is that after you had just told me the medicines you tried have not worked so far. In may experience, most everyone who suffers from chronic pain has taken the basic over the counter meds or their presciption strengths. I would imagine all of us have tried ibuprofen unless we can't. So it just seemed like a silly question. But we are entitled to silly questions. Everyone makes mistakes. I would have been a little sarcastic if I was annoyed but I would have gotten over it as long as I knew she could be competent to give the care she was suppose to give. I am not saying that you didn't do this. Best wishes to you Jenna. I am sorry about your situation. You do néed someone who can give you specialized care.

Feb 21, 2016 9:44 PM

The pain free un-medicated can be so ignorant most of the time.
One question I like to ask anytime I see a new nurse/PA/Dr. is 'do they suffer from any chronic pain or ever had issues that call for opiates?' That way I know how empathic they can be & how to best communicate to them. I'm sure most of us have had to educate one or two in our time.
Just sigh and speak slowly to them..,

Feb 27, 2016 12:43 AM

Ooh! That is a super great idea. I'm going to do that, with a number of people.
My father is 93 going on 40, given his active lifestyle, and he never ever understood anyone's chronic pain until he drove into a ditch recently and hurt his back. I'm not glad about that-but I am glad he's more empathetic.

Feb 27, 2016 10:01 AM

Jeez, even my friend's 4 year old daughter understood to not touch my arm where the fibro pain is constant, and we only explained it one time!!
Arg, the Ibu. As if it does much more than hurt your stomach, and make you deaf over years of daily use!!
One PT told me to take whatever worked for my pain every day for inflammation. But then what would I use for a headache or cramps on top of that? Too much Ibu or whatever makes me ill!
I'm glad your mom called about that person's lack of professionalism. They aren't your doctor, they just need to assist with the exercises and then get out.

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