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Really need a hand...might be long

Sep 01, 2017 9:20 PM

So it starts with my GODsister calling a wanted me to come over for a late dinner. At first thought no issue. However quick back story....( last time I went over as soon as she saw me she snatched my came out of my hand and began shaking and"praying " over me. So needless to say I've Breen back over in several months.
The conversation was short and awkward. Once that was over mom and began to reflect on the fact. That it's its heartbreaking that someone of my age 38 is in bed at 8pm. And it's true unless I get advance notice before 6pm and if I'm not in a active flare I might can plan for something after 8 but if not I've already taken my night meds and that's a wrap for me.
I remember a time where is just be coming in at 8pm I missed that life. And as for my GODsister..id love to be able to spend time with her but I don't trust her. And now that I have a hand brace I'm sure shr would loss her mind to see me with a cane and a brace.
I quess my point is I'm feeling a bit hurt from not being able to live normal.

Sep 01, 2017 9:31 PM

I'm going through this right now! I am having that sinking feeling of I just want to be normal again but I know that it will pass and I will come to accept that this is my new normal, I can completely understand why you would be apprehensive to see your GODsister again! I would feel uncomfortable after that too πŸ€” I will be thinking of you and if you ever need me please message me β€οΈπŸ’•β€οΈ

Sep 01, 2017 9:31 PM

Awe Hang in there πŸ€—πŸ€— Family can be tricky . I'm sorry your Godsister hasn't been nice to you. 😐 There are times I am in bed by 8 if not before. So I understand. Thankfully my daughter is old enough to take care of herself. (Around that time she should be in bed anyways 😊) I hope you feel better soon

Sending prayers your way ((Gentle hugs))

Sep 01, 2017 9:33 PM

Normal is overrated 😊😊😊😊

Sep 01, 2017 9:43 PM

@newfibrogirl2. Just remember everyone's normal is different. Even if it doesn't seem like it . 😊😊

Sep 02, 2017 11:14 AM

I get it...i hate limitations😟

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