I want to share my story in hopes that someone else might have advice or a similar experience.
So far in my 18 years of life I’ve been diagnosed with a scalp birthmark (birth), tethered spinal cord (birth), amblyopia (lazy eye) (birth), tongue tied (birth), lactose intolerance (birth), iron deficiency anemia (birth), a hippocampal brain tumour (age 10), asthma (age 13), migraines (age 12), allergies, accessory navicular bone (age 14), osteoarthritis (age 14), stroke-like symptoms (age 16) & a slipped T8 disc (age 17). Throughout my life I’ve been under constant medical supervision, have never been allowed to exercise & seem to get sick a lot.. When I was 10 my left calf started going numb at night time, I started having joint pain w/ swelling, I got tired easily & I began having severe menstrual cramping. In the past 6 years my asthma, migraines & joint pain have sent me to the ER over 200 times leading some doctors to label me as a drug seeker, anxious, hypochondriac or attention seeking. I’ve asked to be referred to a pain clinic since I was 14 which has been quickly met with “you’re a kid, you can’t have chronic pain.” I & my parents have been fighting for almost 6 years for any doctor to listen to my problems. My final straw came after I began having heart palpitations which my doctor chalked up to anxiety, but when blood work showed low ferritin I found that indeed low ferritin can cause heart palpitations. Every time I prove a doctor’s diagnosis to be wrong, it seems I only have to fight harder for other issues to be recognized. I’m at the point where I want to give up on ever finding answers, but what gives me hope is that my mother has fought a similar battle with doctors. I don’t know where else to turn but to this community. I’m looking for other people’s experience of fighting with the medical system, advice about what other testing I can ask a doctor for, as well as any idea of conditions that could be causing my symptoms.