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Recurrent chest pain & more (Please Help!) My cry for help.

May 16, 2017 7:40 PM

I have no idea what is going on within my body. Everyday seems different. One day I'm in no pain at all and the next is like a train hit me. I've been ruling out disorders and diseases that causes pains everywhere. I do not have extreme flexibility in my joints but have soft like velvet and firm skin. In fact, they are strong. My joints hurt so much for no good reason. I'm tired of this and trying to find a doctor or have my mother to understand me. I'm 17 years old right now. I've been diagnosed with POTS, NCS, IBS, MDD, anxiety and trying to fight what's not diagnosed. I'm not in my depressive episodes that causes "pain" in my body like my counselor and children's psychiatrist told me. I'm in my better moods, and the pain hasn't gone away. I've been having tachycardia issues (140 while sitting and doing nothing) which kept me out of school. My chest pains are sharp but recurring off and on. An echo showed I have a slightly larger aorta artery for my height (5ft 1in). My fingers aren't long and weird I not are my toes. They are normal for my tiny figure. My muscles and joints never stops. I have strong fatigue that limits my day. 20 minutes worth of clothes shopping flares up my legs and arms and neck plus my back like crazy... I'm nearsighted and wear strong glasses. My vision started going blurry in second grade maybe even before. My vision is worse and worse from last year. I change four clicks (I know there's no real unit for the eye sight machine) this year from my vision last year. My concentration is poor. My memory is crap. My motor skills are a little off. I'm tired of this. I'm tired of being exhausted and in pain all the time no matter what my activities are. What should I do? What's putting me through this awful pain? How do I get my doctor's attention on this? How do I explain this to my mom? She's 57 and conceived me at 40. She's old and says I'm not in real pain.

May 18, 2017 7:24 AM

SpoonieRosie, welcome to the group. I am sorry you have to go through this pain and all the diseases. I'm not sure what some of your "alphabet" diseases are.

One of the most frustrating part for all of us who suffer is that people can't believe we're in as much as we are. But, if you look at everyone of us and our pain figures, you'd see one like yours. Which is a good thing because you're not alone. Some of us "old timers" feel the way you do (unfortunately). Trying to get a doc to listen is bad enough then add in the other peoples attitudes while trying to function is quite debilitating.

Unfortunately, you're not in control of other's feelings or actions...some others here might have other suggestions they have used and we do have younger people as well and maybe they can offer more insight.

If you don't do now may be you can start a "pain" journal . But not your typical list at days end; but, more about pain and how it's starting to control your life, the impact socially, concentration etc.
This app has the smiley face at beginning with a spot for notes, stick figures to "see" the pain.

For chest pain, there are some here that deal with it. There was a forum for rib pain you might be to read for help too.

At least here you can vent, ask questions and maybe even laugh.
You can private message anyone too for help.

Good luck darlin'. I pray you get some relief and listened to.

Big hugs...all my best 🦋

May 18, 2017 7:27 AM

Sorry hun! I think we all feel your pain, literally. That's what it's like. That's why this app is here. We'll help you get through!

May 18, 2017 9:24 PM

My mother had Fibromyalgia. She had a cream her doctor prescribed her and used it on one of my wrists. It worked. I guess that's what is happening.

May 18, 2017 9:43 PM

Have you had tests done for inflammation or fibromyalgia? A rheumatologist can usually run a bunch of tests that deal with pain. Things like arthritis, ms, and lupus.

May 18, 2017 9:45 PM

No. We are going to start looking into a lot. It'll be a good while until we will know 100%

May 18, 2017 9:47 PM

I had all sorts of doctors do tests and the one who helped the most was the rheumatologist since they specialize in finding the cause of pain and inflammation in the body. I got results fairly quickly. Good luck to you.

May 19, 2017 11:08 AM

Thanks. I was supposed to return to school today. Last night, my body was flaring and sweating so bad like I was in a lake of my sweat. I hardly got sleep. I bet I disturbed my boyfriend's sleep too. We like to be in an all night call​ with each other. I was whining​, whimpering and crying so much. He was worried about me and tried to calm me down. I wished he was actually there, holding me through this. I got off and on sleep and a estimation of 3 or 4 hours total. Mom came in at 6 am to wake me for school like she always does. I cried while telling her about my horrible night and sleep. She kept me home and made me breakfast. I don't know what my day at school would of been if she forced me to go anyways. I'm blessed to be home today. Maybe my boyfriend will come over and cheer me up in a few hours, when school lets out. I also want him to spend time with his friends and best friend. I'll leave that decision up to him without telling him about it. I'm also blessed with a kind hearted and strong, healthy man, who loves me even when I'm limited. He is my life support.

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