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Rheumatic pains

Oct 12, 2015 5:46 PM

So I went the specialist today for my MS and MR.
He's referring me to rheumatology thinks I may have rheumatoid arthritis.
Anyone know. What tests rheumatology do. I'm already immunosuppressive and on steroids

Oct 12, 2015 5:46 PM

Should say MS and MG

Oct 12, 2015 7:28 PM

Mels when I went to my rheumy doc she did a long list of land from blood and urines. She also did a physical exam. Good luck! 🙏🌼

Oct 12, 2015 9:34 PM

Thanks flappys

Oct 13, 2015 10:36 PM

Mels I would recommend taking in all you blood test results you have the more the better. I was able to skip a lot of testing because I carry my health records with me in a binder. The Rheumatologist was able to go through it see history and patterns. Also I asked for the blood work order to be printed and took it back to my PCP and had the tests from both doctors done at once. Also, have they did a blood test for your sed rate? If so be sure to have those.

Oct 14, 2015 8:47 AM

I've been on prednisone and pyridostigmine for months and have had any bloods done until yesterday he has checked my left u&e crp esr and other blood. My neuro said it's fibromygia but I possibly may have rheumatoid arthritis as well as my myasthenia gratis, Ms and fibromygia. I'm in agony and cos of my MG I get weak really quick. I need help and analgesia. I can't get copy.of my results from my gp/neuro because we have to request medical record by writing and there is a charge otherwise I would have mine in a free too!!

Oct 14, 2015 11:10 AM

Where do you live? Here the doctor office give records to me for free as it was for my continuing health care. I even have free discs of my x-rays and all 3 MRIs.

The great thing about this app is there are people here who understand and relate. I am learning a lot about different issues; pain, life, medical and doctors.

As I lie here in bed unable to be up for long i get it. My story started with hashimotos thyroid, then a bunch of "smaller" stuff, fibro, spinal arthritis and so on and so forth up to the recent super bad flu feeling. I am waiting for my new rheumatologist appointment and told my husband I wouldn't be surprised if my arthritis is RA.

Oct 14, 2015 11:33 AM

Ah bless u. I am in the UK so we don't get records here xx

Oct 14, 2015 11:50 AM

Mels I hope your appointment goes well. Remember to post an update.

Oct 14, 2015 12:29 PM

I will do I'll let u all know just for the date for the 9/11/15 at 13.30 so not too long a wait. Quite surprised to be honest. X

Oct 17, 2015 9:25 AM

Hi mels - I'm sorry to hear all that you are dealing with and I hope the rhematologist can help you.

I was diagnosed with Rheumatoid Arthritis about 5 years ago. I went in for fibro came out with RA (both actually) lol. They will likey do an assortment of blood tests to check for inflammation markers in your body which can indicate some type of auto immune disease including Rheumatoid Factor (RF), ESR (aka SED rate), anti-ccp and ANA.

They may also do xrays on your hands/wrists, feet/ankles and possibly a dexa scan which checks for bone density.

Here is a link to a really great breakdown of the different types of blood tests they might perform

http://www.arthritis.org/living-with-arthritis/tools-resources/lab-test-guide.php

I
wish you the best and hope the information helps!

Linda

Oct 17, 2015 9:27 AM

His Lindale,

Thank you so much for your help. I suffer myasthenia gravid an ms as well so I'm in agony 23/7 what pain relief do u have as what I have now isn't helping at all x

Oct 17, 2015 10:00 AM

Hi Mels - I currently take 800 mg of ibuprofen (with an acid controller named famotidine 20mg) 4x daily on managable days and percocet 7.5 -325 on unmanageable days. It helps but RA flares are unrelenting . It doesn't just affect one thing or area. It moves everywhere and is very hard to get under control once it has spun out of control.

Some people don't show positive tests results for RA.. I was one of them so by the time I was sent to my rheumy it was pretty severe.

If they determine you have RA the most important thing that with help with the pain will be finding the right treatment. It took a long time for me to find some better days. It's only been a recent occurrence. I started Orencia about 7 months ago and I never thought I would be able to say something was really making a difference. . A real difference so there is hope. It hasn't eliminated all of my pain and I still have painful days but I also have great days. I didn't think great days would be part of my vocabulary again lol

If you don't mind me asking.. how long have you been on prednisone?

Oct 17, 2015 10:02 AM

I've been using prednisone since December last year 50mg a day x

Oct 17, 2015 10:19 AM

Are you taking it for one of your other conditions or why did they put you on it? When they first put you on it did it help at all?

I ask for 2 reasons. My diagnosis wasn't as much a result of my blood tests as it was my rheumy listening to my symptoms and before she dxd me she put me on prednisone. . I was on it for about six months and initially it helped quite a bit and I was so happy because it was the first time in years I felt some kind of relief but it was short lived.

After a month or so it started causing other problems like swelling and weight gain.. then it stopped helping all together and started making the pain worse due to the side effects and it caused severe muscle pain on top of everything else so I asked my doc to take me off of it.

I occasionally take it in short high dose rounds when a joint flares to the point I can't use it or the pain is so out of control my pain meds don't even take the edge off. For me that has been the best course with prednisone. Taken long term (for me anyway) in the has caused more pain than it helped.

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