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CatchMyPain Community and Pain Diary App to manage chronic illness


Feb 24, 2017 3:11 PM

Hey guys,

I was wondering....on this app I read about a lot of people with fibromyalgia, but are there also people with rheumatism? To start of with myself, I'm 28, I'm from the Netherlands, and I was diagnosed with psoriatic arthritis when I was 21. The psoriasis started when I was 3, but not diagnosed as such until the arthritis came along.

Feb 26, 2017 4:00 AM


Feb 26, 2017 10:27 AM

Hi Lynnes everyone on here are from all over the globe so are in different time zones and not everyone comes on here daily. Give it a little while and will come on and respond.
I myself haven't been dx with any sort of rheumatism my recent blood work came back with raised markers of imflammation but rheumatoid arthritis came back negative so I'm being sent to rhaumatology to see what they say.
I'm pretty certain there are people here with various forms of arthritis but I couldn't tell you who at this moment....fogginess is stopping me from thinking atm!!!
It is the weekend and there has been a lot of people in flares because of what the weather or life stresses.
I hope you're having a good pain free weekend x

Feb 26, 2017 10:27 AM

I think fibromyalgia is the common diagnosis because most doctors will throw that at someone when they don't know or are tired of looking. Personally I feel my fibro is the start of some sort of autoimmune disease that hasn't progressed far enough for doctors to be able to give a definite diagnosis.
So there might be some people that have similar but not diagnosed yet or miss diagnosed. Our someone who hasn't logged on yet. Most people don't check in every day or even every week. Some people are gone for months at a time

Feb 26, 2017 4:34 PM

I have been diagnosed with with osteoarthritis in my back and hips. My RA markers just recently came back positive. And I also have Sjogrens Syndrome and fibromyalgia like sensitivities brought on by the Sjogrens Syndrome.

Feb 26, 2017 5:54 PM

I have ankylosing spondylitis since 2010 (but they have supposed that only 4 years ago). So, I got rheumatism. Sometimes I ask to myself if they are sure of my diagnosis. They told me to be hla-b27 positive is a clear sign, but others says not... maybe many others funny rheumathings!

Feb 26, 2017 5:56 PM

I have arthritis. It's especially bad in my elbows, but it's basically everywhere.

Feb 26, 2017 7:49 PM

Have you seen a rheumatologist Lynnes?

Feb 28, 2017 6:29 AM

Yes, I've been seeiing a rheumatologist since the beginning. Currently on mtx (I don't know if that has the same name in english?)

Feb 28, 2017 4:08 PM

It's an autoimmune disease.

Feb 28, 2017 5:18 PM

Hey! I have RA (we believe it could be another variation too) so something along the same lines. I am 20 and from the US... Started dealing with this last year on my 20th birthday. Welcome to adulthood lol

Feb 28, 2017 5:39 PM

I believe that what many oldsters used to call "rheumatism" we now call fibromyalgia and has definite diagnosis criteria of symmetrical pain points all over the body, etc. Rheumatoid arthritis is a specific auto immune condition like many others where the immune system is attacking the joints in this case. Osteo arthritis (ankylosis spondylitis, and other forms of wear and tear) are the effects of aging on our skeletal structure. Kind of in a nutshell. I have fibro and Osteo (both spondylitis and degenerating discs as well as bone spurs). But my auto immunes take the form of uveitus (attacking my eyes and retinas) and Hashimoto's thyroditis (attacking my thyroid). I'm of the opinion that the distinctions between the auto immune disorders are pretty much a fallacy bred by what your immune system is attacking since that is the only way they can currently diagnose, but all know that they run in groups in families, run with fibro, and shows immune system malfunction. So gee, should be just labeled as an immune ststem disease that's genetic. But they think there may be an epigenetic trigger for which one you get, so WHICH way the DNA turns on based on your life style. My mom had Lupus and died from it. My sister has no auto immunes yet?

Feb 28, 2017 5:48 PM

I have lupus. Possibly RA they both attack more then just the joints. They can attack anything including the organs.
For me I have epilepsy because of it, I've lost my bladder from lupus caused IC. I've now got lung involvement, and signs of kidney involvement. Plus it's all in my joints as well.

Mar 01, 2017 12:40 PM

Yes, my mom lost various organs to Lupus. It's how she died from it. She eventually went into organ shut down after a stroke as the lupus took out organ after organ. Her RA was there as well.

Mar 01, 2017 3:37 PM

Funny ( if I may say so), I also have hypothyroidism besides psoriatic arthritis. I once asked my rheumatologist if the conditions are linked, because of them both (or actually 3 if you count the psoriasis separately) being auto-immune diseases. He was convinced they are not, but here I read about a lot of people who have multiple auto-immune diseases.

Mar 01, 2017 10:01 PM

My rheumatologist told me that autoimmune disease is a spectrome. Your diagnosis on the spectrome is determined by your current symptoms but does not exclude you from later developing another autoimmune disease. He also said that 80% of people with fibromyalgia also have an autoimmune disease.

Mar 03, 2017 11:21 PM

I've read of doctors swinging both ways on the issue, but I go to a teaching University hospital where they do research for a reason. I much prefer to have open minded doctors who I can remind that I have advanced degrees, am not an idiot, and try to keep up with research on my known issues. ;D

So some of them actually talk to me like, gasp, a person! LOL Especially when I give the younger pnes the "mom" look and look them in the eye and stare them down and start reciting facts, figures and medical history. My Primary care gets a chuckle I think when I pull it on his newer residents, and he backs me when other specialists try to diagnose long running issues as an aside. Like the the head of the OB-GYN who was giving me a pelvic and in the middle of the exam, while my feet were in the stirrups, told me she could get ride of my then 45 year history of migraines (the last 15 chronic DAILY migraines and CLUSTER headaches) she'd just take me off all the meds I was on!

Excuse me? (WTF!!! I didn't say a word because of what she was doing.. just let my primary know. HE said MANY words based on the steam comming from his ears when I told him.) As my husband always put it...next we're going to the proctologist to get our teeth worked on! LOL

Not all doctors want to see obvious connections, or think about things. Auto immunes are just that, the symptomes are vastly different and so for YEARS they have been being diagnosed by them. Wegners has been known about since the 1930's. Now they know that it's our immune system attacking various things. They are pretty sure it's genetic because it runs in families. But they don't know what triggers one member to get RA and another to get Lupus say. Or neither. And I'm not so sure that fibro is not on the same spectrum and they just aren't looking at it correctly. I think they all have Epigenetic triggers.

Mar 04, 2017 9:56 AM

So sorry you lost your mother to lupus. :(

Mar 04, 2017 6:24 PM

Thanks Gibber, she and Dad both went young. Too young based on past family history. But a cousin with Fibro and various others with heart problems convince me. :) I'm just thankful for what I have and that I still have my older sister here.

Mar 04, 2017 6:34 PM

How painful. I'm glad that you have your sister too. ❤

Mar 04, 2017 6:49 PM

You are right on and your theory period I in fact have all of those conditions that were mentioned in your review. I started out as a vegetarian for 20 years and six years ago was diagnosed with coeliac disorder, I don't mean disorder, rheumatoid arthritis, fibromyalgia. It took one year to get the final diagnosis. I've tried all types of alternative medicine,over the counter, prescribed mess, acupuncture, and chiropractic treatment. I've done yoga and water aerobics to discover no true relief. 4-years ago I had my first pre-cancer polyp removed and I had my wake up call excepting life being shorter and deciding to live. I gave up the vegetarian diet of 20 years to rediscover food and finally excepted that no matter how much I try to do the right thing it was not gonna matter in the end. You just have to live and be in the moment. I've tried and continue to use meditation and positivity as often as I can. Sometimes our use EFT tapping to take my mind off of the pressure When I'm not in the brain fog. As I get older I'm discovering that it's getting harder to control all of the episodes of pain and as a result my job has been an indicator i will have to start looking for work in a less demanding arena. Since 2015, I have changed jobs 3 times as I battle the saga.

Mar 04, 2017 6:53 PM

Looks like my msg was screwed up by the microphone- I referred to the celiac disorder/auto immune disorders...

Mar 05, 2017 12:57 PM

You mentioned EFT tapping? Not something I'm familiar with, at least not that acronym?

I'm sorry you've had to scale back on the work. I lost my career to the brain fog and cognitive problems years ago so you are still ahead of me! I hold out some hope that with some of the therapies maybe I'll find something I CAN do and have more tha an hour or two a day of good time😜!

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