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Aug 21, 2014 9:06 PM

Hi everyone, I'm new on here.. I've had M.E/CFS for 6 years now I believe, (im 18) and my pain has got increasingly worse, my legs, arms and specifically shins, knees and fingers are absolutely unbearably agonising.. I had blood tests from my doctors and he referred me to a rheumatologist as I had levels of inflammation of my muscles/joints or something (brain fog lol sorry!) my appointment has come through and I have it in a weeks time, I'm petrified though, I don't know why.. I just find appointments so scary, you think I'd be used to it by now huh? I just don't know what to expect, I'm quite overweight since being sick and have been unable to lose any due to lack of excercise due to my agonising pain and lethargy. so I'm worried he will try to blame it on my weight and I just can't handle being disheartened at the moment, I hope you lovely people understand and don't just think I'm being silly lol. I'm concerned it could be arthritis, has anyone had the same experience? please tell me what to expect at the appointment and what this could be, sorry for the essay! sending good health to all of you. xxx

Aug 21, 2014 11:09 PM

don't worry, if he knows what your problem, he will give you medcine and your pain will disappear. a bout weight, it's understandable , don't blame your self. best luck

Aug 21, 2014 11:34 PM

Thankyou, I hope so.. x

Aug 22, 2014 11:12 PM

I have a good Rheumatologist. It helps to be able to talk to someone that has hopefully more of an idea of your experience, than local GP or friends and family. I wouldn't worry. It's more the chore of getting dressed and to the appointment, than being there. Good luck

Aug 23, 2014 8:36 AM

oh really? good, hopefully it won't be as daunting as I think it will lol. I second that, Thankyou x

Aug 23, 2014 8:36 AM

oh really? good, hopefully it won't be as daunting as I think it will lol. I second that, Thankyou x

Aug 23, 2014 11:44 AM

my rheumatologist has been the best source of pain relief and speedy treatment I have received

Aug 23, 2014 12:13 PM

I was dreading my upcoming appointment with a Rheumatologist in Sept. But I read a very good article in recent Arthritis Today about meds and tests that these docs can do. Now I am not so anxious. This will be Dr. #8. I still don't have accurate diagnosis. Can't take pain meds due to horrid side effects. So I'm overweight too because sugar and buttered toast are my comforts. best wishes for a good experience. Can anyone go with you and help take notes? I'm taking the magazine article and a list of all my past injuries since I believe I have Overuse Syndrome and Fibromyalgia and maybe Connective Tissue Syndrome.

Aug 23, 2014 6:25 PM

Thankyou all. you've made me feel abit better, I hope I can get the help I need x

Aug 25, 2014 8:51 PM

i take my ipad and record the whole conversation. i totally agree with Louise, you need to have some way of going over what was said. Keep the faith!

Aug 25, 2014 9:49 PM

I was over weight when I was going through doctors to find what's wrong with me. I had one doctor tell me that if I lost weight things would get better! Thankfully I found a doctor that saved my life. my advise to you is to not give up and if a doctor tells you just to lose weight, smack them. lol Actually, don't do that just lightly say that they don't know what their talking about.Hope things get better!

Aug 26, 2014 4:30 AM

Hi again. MrsJoeJ reminded me that I take my iPad and I have my meds and a lot of my hospital records on it. Now I'll have Catch My Pain too. I'm also working on a list of my injuries. And I'm trying to contact all my previous Physio Therapists to try to get records. I take all of my Paper and DVD records in a folder. No one can say I'm not prepared! Ha! :)

Sep 13, 2014 9:55 PM

Hi there. I'm 23 with ME, Fibro and Psoriatic Arthritis - all diagnosed by a rheumatoid doctor. They all tend to be very understanding, good listeners and don't fob you off with "your fat, loose the weight and you'll be tip top" ... I've been over weight since I was 13 when all this started. My max weigh was 16 st 10lbs - I'm now 13 st 10lbs. Never in the 5 years that I've been seeing my rheumatoid doctor have they told me that my problems are due to my weight. If anything it's the weight due to the problems. Obviously all our problems would be less painful if we were all a couple of lbs lighter but the problems will still be there - think about it, if being 'fat' caused arthritis, ME, Fibro etc... then why do 'skinny' people get it to? I hope your appointment went okay and you've got some tests coming up or even a diagnosis... or some advice at least.

Sep 30, 2014 10:12 PM

Thankyou for your comforting words. I went to the rheumatologist, she checked me over and asked me to explain my symptoms and gave me a urine test, which showed protein in my urine. she didn't mention any specific diagnosis but sent me off for ALOT of blood tests at which I'm awaiting results, I'm due another appointment with her in 6-8 weeks time, she has also referred me to a gland specialist (I can't remember the actual name) because of abnormal thyroid levels in previous bloods, I also had a raised ESR inflammation level. but what I did see on the notes part of my file which I don't think I was meant to was 'possible lupus' and after googling my symptoms (I know it's bad, I know! haha) it sounds right to me, and I know it sounds awful because it's an awful disease, but I'm sort of hoping I get that diagnosis, just so I can finally have some more understanding and concrete evidence of the way I've been feeling for many years. Thankyou again for your words xx

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