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Rough day

Feb 06, 2016 10:23 PM

I couldn't get comfortable today. My joints felt close to an 8/9 and my skin was so tight! The mega headache today brought me nausea. & now I can't sleep. There has got to be stronger medications to help me with my pain & my sleep.

Feb 06, 2016 11:59 PM

So sorry you had a bad day. I felt like that for most of this week. I am on a lot of medication and still have pain and sleep problems. Just keep communicating with your doctor. I wish I could take both our pain away and everyone else in this misery. I hope you get some relief soon.

Feb 07, 2016 3:52 AM

Iam trying hard to go to bed at regular times. Went to bed at midnight friday and stayed there until 4pm. My sinus feel infected and i have a migraine on top of the allover body ache from the fibro. I wish they had a fibro patch that could be applied weekly and be enough to let us sleep comfortably and allow us to wake feeling refreshed. I have not woken up without pain in over 4years.

Feb 07, 2016 1:53 PM

I don't have fibro although my sister does... I have CREST syndrome disease, which has no particular medication. They use me as a Guinea pig with meds from fibro & lupus... I'm exhausted & depressed every day with my ongoing pain. CREST affects my hands & my wrists mostly... Can't work without fatigue - pain - discouragement -in just over an hour... My husband thinks I am makin it all up. So frustrated!

Feb 07, 2016 2:42 PM

I am so sorry my friend that you are struggling. I understand completely. I hope you can rest and do whatever you can to alleviate your symptoms. Much love and Blessings, TERRI

Feb 07, 2016 2:43 PM

Thank you Terri! It's rough anyways but without support from my husband - it makes it just that much worse.

Feb 07, 2016 2:48 PM

It must feel horrible to not have the support and understanding of your husband. Maybe he will come around in the future, I am sure you have tried to explain the disease processes to him. Maybe he feels inadequate to help and thus tends to shy away from you when you need him most. Men are fixers they want to be able to fix a problem.. When they can't it is very frustrating for them and they don't react to what we really need.. Just love and understanding. You are not alone, please remember this, we are here for you. Terri

Feb 08, 2016 3:11 PM

Thank you Terri! My therapist told me today that I am doing all the right things. Everyday he asks me if I am ok. My new normal is NO. Some days are worse than others, however they all suck. These past couple of months have been really bad, so it's just impossible to do anything normally. His response to my NO, is a lifting of the eyebrows & leaving the room. I asked him yesterday, why do you ask me everyday, when you know the answer? He said... Cause I am hoping you will lie to me.

Feb 08, 2016 5:37 PM

Autoimmunerrrrr- I'm just reading about your therapist- I think you need a new therapist IMMEDIATELY!! I am *not* a doctor, therapist, or medical provider! But I work w many. I an horrified that he would walk out of the room! How disrespectful! How unethical? How on earth does that support you, help you, teach you??? And then to hope you'll lie to him? That is NOT appropriate therapy! I would definitely consider a new therapist- and reporting him for unethical conduct. If he is doing this to you, he is doing it to others. He should be asking why you are not OK, what can help you get to Ok, even assessing you to ensure you are not depressed or suicidal. Therapy can be challenging but you should always feel supported and respected.

Feb 08, 2016 5:42 PM

Gardener she's talking about her husband. Her therapist said she is doing the right things.

Feb 08, 2016 5:43 PM

Oops sorry then!! My apologies!

Feb 08, 2016 6:13 PM

Just wanted to let you know... ☺

Feb 08, 2016 6:49 PM

Thank you for looking out for me lady's! WE do this together - I do it alone.... 😉

Feb 08, 2016 6:52 PM

Bwhahahhahaaha!!! That could still apply to my husband tho!

Feb 08, 2016 7:45 PM

Lol! That's true!!!! 😉 We are here to look out for each other because we understand each other and how hard it can be!!!

Feb 08, 2016 10:08 PM

Sorry autoimmunerrrrrr I have had a lot of days like that. Here lately I have been listening to meditation music before bed and I have a friend that wants me to use essential oils,but have not done it yet. Hugs and prayers for you.

Feb 09, 2016 9:48 AM

Jnutsch- I have a meditation cd given to be by my alt. med. doc... Maybe i will try that... Thanks!
I have a friend as well with the essential oils... I am just leary of it...

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