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RSD again....

Jun 23, 2015 10:00 PM

Hi I asked if anyone had RSD here, but somehow lost all my stuff here until just recently. So I was not able to respond. So I would like to ask it again. Who has RSD and how did you get it? Please don't tell me its like a bad bee sting either......please

Jun 24, 2015 12:04 AM

Welcome fletch2ya can you tell me what R SD is my memory is terrible . There is probably someone here that has it and can help with it.

Jun 24, 2015 1:04 AM

I have had several specialists think I have RSD/CRPS but the neurologist today thinks I might have something else. Whatever it is, it began in my wrists as a strange writer's cramp. I've never been able to hold a pencil correctly without extreme pain.

Jun 24, 2015 11:14 AM

I have had RSD since 2009. I won't mislead you... it is extremely painful and frustrating. RSD stands for Reflex Sympathetic Dystrophy. It is also known as CRPS, Complex Regional Pain Syndrome. Biggest issues I have are with doctors who are clueless and treat you like a druggie looking for a fix and the same from family and friends, which hurts more than physical pain. What hurts most is the loss of your life as you know it. My personal experience that caused this was I had back surgery (spinal decompression with fusion) which went fine, but 6mos. later I broke my foot and after a month it was not healed, it was worse. I now have it in both legs and pretty much my entire body is affected. I don't know what kind of info you're looking for but if there is anything I can do to help you understand this and how to cope, I am more than happy to try to help.

Jun 24, 2015 10:01 PM

Welcome Fletch2ya! I don't have the RSD but I have fibro and multiple chronic pain issues. Finding this community has been so helpful, with so many understanding and caring people. I hope you find the answers from others here with your condition. You're in my prayers! πŸ™πŸŒΌ

Jul 07, 2015 9:43 PM

Hi. I have had RSD since1999. Terrible stuff. Would not wish it on anyone.,thanks for the responses

Jul 08, 2015 12:50 PM

Fletch2ya, I agree, I live with RSD myself. It's not anything if wish on anyone, not even someone I didn't like. I hope your day is not too painful and that you get the support you need here with our group

Nov 08, 2015 10:52 AM

I have had RSD since 2002 that I know for sure, I was diagnosed with a ton of other things but RSD IS EXTREMELY Painful. Flutterby420 said it perfectly.

Nov 08, 2015 12:24 PM

I have RSD in my foot and was diagnosed with it after I had an accident involving my right ankle/foot.

Nov 08, 2015 1:53 PM

I have RSD in my entire body and enternally. I got it in 2007-08 not sure really. It started in my right foot after a fall when I was at recess.

Dec 24, 2015 8:55 AM

Hi thanks everyone for posting, I just wanted to say
Merry Christmas to you all, and I hope that your pain will be less so you can enjoy friend, family and loved ones ....... My thoughts and prayers are with you all.


Dec 24, 2015 9:03 AM

Merry Christmas blessings to you too Fletch2ya! πŸ™‚πŸ™πŸŒΌπŸŽ„

Dec 24, 2015 9:39 AM

Merry Christmas Fletch2ya!! I hope that your day is peaceful and that your pain levels are manageable.πŸŒ»πŸ™πŸ»

Jul 05, 2016 7:57 PM

Heya Fletch. I developed CRPS in my right knee when I was 16. As the result of riding into a parked gas van. I am now 40 and pretty much all of my body below my waist is riddled with CRPS. Right now I can't stop crying because pain so bad. I wrote another post here on a topic posted by someone else, please read it if you can so I as I can't figure out hot to copy and post it here. I'm really sorry. x 'New Here CRPS Diagnosed'

Jul 21, 2016 1:23 PM

Hi sorry to hear you are having such a hard time.. I do understand as I have had this monster since 1999. Mine was from a dog bite.....
Was hoping to find someone who just wants to talk.... And listen....... lol
This get to be a pretty lonely world when most people around you have no understanding of what you are going through each and every day.

Jul 23, 2016 11:46 PM

I'm just seeing this bc I joined a few months ago. I have RSD in my foot and have seen so many doctors. Pain management has been the most helpful so far. The pain is terrible, and you said it right, it's the loss of life you had before. Awful. I don't know anyone else personally who has RSD so I greatly appreciate the support here!!!

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