Hi I asked if anyone had RSD here, but somehow lost all my stuff here until just recently. So I was not able to respond. So I would like to ask it again. Who has RSD and how did you get it? Please don't tell me its like a bad bee sting either......please
I have had several specialists think I have RSD/CRPS but the neurologist today thinks I might have something else. Whatever it is, it began in my wrists as a strange writer's cramp. I've never been able to hold a pencil correctly without extreme pain.
I have had RSD since 2009. I won't mislead you... it is extremely painful and frustrating. RSD stands for Reflex Sympathetic Dystrophy. It is also known as CRPS, Complex Regional Pain Syndrome. Biggest issues I have are with doctors who are clueless and treat you like a druggie looking for a fix and the same from family and friends, which hurts more than physical pain. What hurts most is the loss of your life as you know it. My personal experience that caused this was I had back surgery (spinal decompression with fusion) which went fine, but 6mos. later I broke my foot and after a month it was not healed, it was worse. I now have it in both legs and pretty much my entire body is affected. I don't know what kind of info you're looking for but if there is anything I can do to help you understand this and how to cope, I am more than happy to try to help.
Welcome Fletch2ya! I don't have the RSD but I have fibro and multiple chronic pain issues. Finding this community has been so helpful, with so many understanding and caring people. I hope you find the answers from others here with your condition. You're in my prayers! 🙏🌼
Fletch2ya, I agree, I live with RSD myself. It's not anything if wish on anyone, not even someone I didn't like. I hope your day is not too painful and that you get the support you need here with our group
Hi thanks everyone for posting, I just wanted to say Merry Christmas to you all, and I hope that your pain will be less so you can enjoy friend, family and loved ones ....... My thoughts and prayers are with you all.
Heya Fletch. I developed CRPS in my right knee when I was 16. As the result of riding into a parked gas van. I am now 40 and pretty much all of my body below my waist is riddled with CRPS. Right now I can't stop crying because pain so bad. I wrote another post here on a topic posted by someone else, please read it if you can so I as I can't figure out hot to copy and post it here. I'm really sorry. x 'New Here CRPS Diagnosed'
Hi sorry to hear you are having such a hard time.. I do understand as I have had this monster since 1999. Mine was from a dog bite..... Was hoping to find someone who just wants to talk.... And listen....... lol This get to be a pretty lonely world when most people around you have no understanding of what you are going through each and every day.
I'm just seeing this bc I joined a few months ago. I have RSD in my foot and have seen so many doctors. Pain management has been the most helpful so far. The pain is terrible, and you said it right, it's the loss of life you had before. Awful. I don't know anyone else personally who has RSD so I greatly appreciate the support here!!!