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CatchMyPain Community and Pain Diary App to manage chronic illness

RSD Suffers

Sep 25, 2015 8:52 PM

I have been diagnosed with RSD for 15 years now ,and find it Very difficult to find a PM Dr who knows how to treat this condition without making me feel like I am trying to get Drugs. I truly feel that this is due to their lack of knowledge as this is a rare disease but I would rather be referred elsewhere then made to feel that I am trying to con them. Some feedback please Frank D ny save

Sep 26, 2015 8:46 AM

FrankNY, I am sorry you were diagnosed with RSD. I have it as well. I've been in pain for 22 years have had 29 surgeries and I also have several other conditions that cause chronic pain. I don't know where you are in NY but I am also in NY and have a pain management doctor I've been going to for 20 years. They are wonderful there and go the extra mile to get you to the correct doctors to help you feel better. Unfortunately, after all these years the only thing I can do is take meds and supplements, eat clean and try to move around as much as I can. I hope that this app and this wonderful community of amazing people can give you the advice and support you need. There is always someone here and it's a breath of fresh air to speak to folks that understand. I hope that you find a good doctor (or team of doctors) that will help you with your pain and possibly even make it easier to bear. Good luck and welcome to the group. I'll keep you in my prayers. 🌻🙏🏻

Sep 26, 2015 11:31 AM

I just joined this community this week and must say that the heart felt warmth and welcoming. Truly the greatest healer of them all an ear that listens and someone who understands I would like to thank you all those that need strength and those who listen and give empowerment

Sep 26, 2015 11:23 PM

Frank NY welcome to our chronic pain family. There are lots of caring and compassionate here that will listen, and give advise with you. Someone is always on here if you need to talk. I joined a yr and half ago and it was a God sent. You can rant and rave all you want this is a no judgment zone. We all have and probably will again. We talk about evert hing our health, our familys, what ever is bothering you. I have met several people and have formed close bonds with them. I am here if you need to talk. Sending prayers and hugs.

Sep 29, 2015 5:30 PM

I too have RSD, since 2003. I had a few years until I found a doc who listened and then referred me to the right Dr. It's frustrating and hurtful to be made to feel like we're imagining it all.

Now I've just been diagnosed with fibromyalgia as well. So I'm a diabetic, hypertensive nurse with not only RSD and Fibromyalgia. I feel your pain and frustration. Keep advocating for yourself.

I found help from all manner of people, from a naturopath, homeopath and western medicine. I can honestly say no one simple thing works for everyone. Our biggest challenge is dealing with a healthcare system that discounts its patients reports on their own issues.

Good luck to you.

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