Just curious how do you work with it in your hand, arm, and shoulder? Mine is now in the shoulder blade and I feel like I'm on fire all the time and my thumb and index finger feel like electricity is shooting out of them. ]my fingers try and cramp up. I want to work but I don't usually get to sleep until around 3-4 in the morning. Any advice would be greatly appreciated.
Grammy, What do you take for pain? I have it in my leg, foot, hip, and back , and the burning was constant despite being on drugs like oxy and even fentanyl until I started taking Amitryptaline. It's not commonly used for pain by itself, but it did wonders for me! Something non-narcotic, low "doped up" feeling, would maybe allow you to work even. Also, look into nortryptaline. My combo is 2x XS Tylenol, 2x 4mg Dilaudid, and 25mg Amitryptaline, 3-4 times a day depending on the pain. Mine is to the point where I can't even stand air from a fan going over my skin. I say that only to let you know that I know how horrendous RSD is, and am not making light by mentioning Tylenol. It is the. ONLY thing that has helped me, and from the research I've done on RSD,the nortryptaline and Amitryptaline are what docs are suggesting now. Good luck, I sincerely hope that you find something that will allow you to work.
Grammy01, Sounds just like me!! I started with the shoulder, then several surgeries and then my elbow and wrist and hands!! They don't know what to do with me any more!!! I had to stop working altogether because I never knew if I'd be able to function on any given day or if I'd be so anxious that I couldn't leave the house. I was dropped down from a salaried job (making over $43,000 annually) to working hourly. Then I was just so bad, I had to quit altogether. Keep in mind, I had horses at that time that I had to pay board, vet bills, dentist, farrier, etc.. Plus payments on a truck loan that was for 5 years and I was only a bit into the 3rd year of the loan. Thank God that the approval for my disability was instant but I came very close to losing my truck and horses because it was costing me ao much between those things and of course, rent, insurance, gas, groceries, etc... I pray that you are alright and able to get some relief and get things sorted out. I wish you the very best of luck with everything. Know you have a lot of support here so you're vice alone at any given time. You have an entire community behind you that's only a keystroke away.🌻🙏🏻
Thanks! I gets so emotional a lot I'm either crying, upset, or snapping at my husband. Between the pain, burning, headaches and lack of sleep and Drs that act stupid sometimes it just seems to much. I'm not on any meds either for my RSD but Motrin.
WOW, only Motrin?!?! That's pretty rough to not have something stronger when you need it. I get overwhelmed and emotional as well and find myself crying at the drop of a hat for what seems like no reason but it is a culmination of many things. Hang in there. I'm here for you when you need me.
I have CRPS in my right foot and now up in my hip area I was on lyrica but stopped taking it and now on tridural and morphin when needed on really bad days and on medical marijhuana witch helps me with my anxiety stress pain and keeps me from being nauseated. Iam off work right now but hope to go back hope everything goes well for you