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RSD/CRPS

Oct 20, 2014 10:03 PM

How is your daily schedule? How has these conditions affected you life both personal and social?
How do you deal with the constant symptoms that we live with daily!

Oct 21, 2014 1:37 AM

first, I am sorry for your situation. I, too, have RSD and Fibromyalgia, among other things. my symptoms are severe and constant. I no longer attend social events and I've lost friends who just don't understand what I go through. I also do not like being around large groups of people(even family) because I feel like I'm ruining other people's time. I do rest as much as I can and I do what I can, when I can. do the best you can.... I'm in here every couple of days so I ell check up on you or you can just chat with me when you need help.

Oct 21, 2014 9:45 AM

I feel like kathy.

Oct 27, 2014 4:09 PM

hi Moon,
I'm sorry you are feeling the way I do. with all of the medical breakthroughs, there should be no reason for anyone to be in excruciating pain, all day, every day!! medicine, just like all else is a business. if they give you meds, and you don't ask for help and tests, you won't be giving,.,.

Nov 04, 2014 8:37 PM

It is awful to have this. I was diagnosed with crps when I was 17 and three years later Im still in constant pain. some days are better than others but for the most part I feel rather stuck. i have had fights with my parents and loved ones who say it is all in my head. I have lost many friends because of my pain and I constantly am turing down invites to do things I used to love because of my pain. hopefully it gets better

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