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Sad and Homebound; anyone?

Sep 01, 2014 1:15 AM

I almost never leave my house anymore, sometimes I don't even leave my bed. I'm in pain, medicated, tired from the pain, and/or tired from the medicine. I'm starting to feel isolated, depressed and worthless as a participant in my family. I don't see that there is much I can do about my situation right now. I am regularly seeing several doctors, taking all my Rxs, and doing daily physical therapy. it's HARD to be sick all the time, in pain all the time, alone most of the time, left to my own thoughts most of the time. I think I need to start a friendship group online. Has anyone experienced how I feel? How do you cope? Any ideas for online social groups? Thanks!

Sep 01, 2014 2:01 AM

I think about an online social group too. I have no family. I moved to be near better docs but now my friends are all long distance. I don't have a car and I can't qualify for a power chair. And I don't like meeting new people because they all say "You are too young to have Arthitis Fibro Chronic Pain.". So then I have to become Educator Edna! UGH.

I mostly do crafts as much as possible. And photography and reading. Talk on phone. Watch any movie.

I have decided that I will live for me. After I see the Rheumatologist that will be it. No more docs. I can only take Naproxen so I will go once a year for my check up and the rest of the time I will LIVE.

PatientsLikeMe.com has online groups and support forums for all different medical conditions. Their Arthritis Fibro group is pretty good.

There are also online interest groups mostly Google+ and YahooGroups. Facebook has social groups for dogs or flowers or photography or books or anything.

Google what interests you and see what turns up. Best Wishes. :)

Sep 01, 2014 2:02 AM

I think about an online social group too. I have no family. I moved to be near better docs but now my friends are all long distance. I don't have a car and I can't qualify for a power chair. And I don't like meeting new people because they all say "You are too young to have Arthitis Fibro Chronic Pain.". So then I have to become Educator Edna! UGH.

I mostly do crafts as much as possible. And photography and reading. Talk on phone. Watch any movie.

I have decided that I will live for me. After I see the Rheumatologist that will be it. No more docs. I can only take Naproxen so I will go once a year for my check up and the rest of the time I will LIVE.

PatientsLikeMe.com has online groups and support forums for all different medical conditions. Their Arthritis Fibro group is pretty good.

There are also online interest groups mostly Google+ and YahooGroups. Facebook has social groups for dogs or flowers or photography or books or anything.

Google what interests you and see what turns up. Best Wishes. :)

Sep 03, 2014 7:50 PM

Definitelt www.patientslikeme.com has a wonderful support group set up. It is free to join. They have helped mw a lot!!!

Sep 03, 2014 10:32 PM

martitprpl, I totally understand how you feel and painful it can be being alone, in constant pain, now not having the urge to want to go out. as you guessed my name is Rich. I am going on 38 and over the last 10 3/4 years I have become a recluse. I TRY to build models again but my shaking makes it hard! if you would like to talk privately my email is ROdierno76@cfl.rr.com. I am sure there are things you want to say but sometimes you feel uncomfortable posting them on a message board like this! I can relate! you and Louise are more than welcomed to email me privately!!!

Sep 04, 2014 12:44 AM

Hi again. Rich you make a very good observation about maybe not wanting to say some things on a message board or in a forum. I find it difficult enough to connect to a live person sometimes. LOL. Sorry to hear of your pain. It is good that some folks like you take the time to reach out "in person".

Sep 04, 2014 8:41 AM

Tell your doctor about your depression and demand that he/she send you to a psychiatrist or psychologist and get into a mental health group therapy sessions that specialize with helping people who are in chronic pain. I go to one called NeuroNova, which is covered by insurance except for the course materials which was $120. I was hesitant to do that course and didn't think I would get much out of it. It hasn't cured me but it is helping me help myself, especially when I am in agonizing pain. It teaches you to not concentrate on the pain and think about happy things, also breathing exercises that help you to not concentrate on the pain. Like I said, its not a cure but it helps and gets me out of the house and meet people once a week.

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