Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

Scared and terrified

May 23, 2019 2:37 PM

Ok, so yesterday I saw my neurosurgeon and we discussed my lumbar fusion (7 months post op- the best thing I’ve ever done!!!!) and my potential cervical fusion. Even though I have severe central stenosis on three levels, they are making me go through the usual stages, even though we all know that I will sooner rather than later need the surgery. So because I cannot tolerate steroids, they are skipping the epidurals and want me to go for ablation. Frankly, that absolutely terrifies me!!! Has anybody had any experiance with it? I read anout it and it said it kills your nerves!! I’d rather they move what presses onto the nerve than kill the nerve. That sound so horrendous! Not to mention painful !! Does this procedure work? Anybody has any input? Any comment woud be much appreciated. Thanks.

May 23, 2019 2:45 PM

Hi I’m not going through that but I’ll keep you and everyone here in my prayers . Hug gently to you . If you ever need to chat let me know .Shore πŸ™πŸ™πŸŒˆπŸŒˆ

May 23, 2019 6:12 PM

I've done it. It helped my lower back. Nerves grow back.

May 23, 2019 6:24 PM

Hi animal have a nice evening ShoreπŸ€—πŸ€—πŸŒˆπŸŒˆ

May 24, 2019 12:03 AM

Thanks AnimaLover2. It’s reassuring to know that somebody had a succesful procedure and that they were happy with it. Thanks to you I feel a bit better about proceeding with it when they schedule me in for it.

May 24, 2019 3:50 PM

Hey ATanyaR. I've not had it done but the doc is planning to treat me at a C facet due to nerve encroachment & inflammation that's causing cervicogenic headaches, when I'm able to do it. Reading about it freaked me out too. Lol. But AnimalLover2's experience, along with a few others, have all had successful results. If I'm able to later this year I may go ahead with mine. Unfortunately I'm only 10 days post op on my hip. Keep us posted on how you do. Hugs love and prayers it's feet successful for you! πŸ™‚β€πŸ™πŸŒΌ

May 26, 2019 8:59 AM

I had abkations done for 12 years and it was the best thing in the world for me. It kept me oain free and off medication. I remained ab li e to work. However, when they stopped working, it was immediate, no results. Back on meds, yadda, yadda, yadda. There is no pain involved as you are under deep sedation. You leave the surgery center groggy but able to resume normal activities the next day as tolerated.

May 26, 2019 2:27 PM

I have had it done on my knee and I can't wait to have it done on my back the pain relief I received after they did my knee was amazing. The nerves do grow back over time in the knee I am not sure about the back but I fig it is the same. But any lowering of my pain level is worth it. I hope that helps you keep your head up and pick a great doctor

May 27, 2019 3:32 PM

Thanks ladies, your comments are very helpful. Am I right to assume that they do this procedure under local anestetic?

May 27, 2019 9:23 PM

Hi ATanyaR, you mention ablation, are you referring to Hydrothermal Ablation? If you are, there is nothing to worry about at all. A bit of post-op pain (only to be expected) but it doesn't last long and is nothing compared to the pain you must be feeling now. Not all nerves grow back but over time most do. I have recently had a right hip replacement and have lost all sensation around the wound site, down my leg and rather worryingly, between my legs, but I'm not frightened as I know All Will Be Well and a bit of loss of sensation is nothing for me to get into a flap about. Remember, all this horrendous pain and discomfort we are going through now - I also have fibromyalgia, Osteomyelitis and Chronic Fatigue Syndrome - will be put to good use in the future to help someone else. I know the Lord listens, I know He understands my pain and I know He is the one that calls me by name. He will use this experience in the future and I will be right next to someone who needs my experience to listen, comfort and remove fear. None of your pain will go to waste. Try not to be afraid, I know it's difficult. Have a look at Julian of Norwich, a medieval Anchoress who walled herself up in a little church in Norwich. She had a bed, table, Bible and a small garden but relied completely on the kindness of strangers to be fed and watered. She suffered tremendously, but made it one of her many ambitions never to be afraid. She knew who she was and she knew she was being carried in the palm of Christ's hand. Even if you have no faith, working on your fear can make such a big difference. Try and get out of yourself and try to do things for other people, even if it's just writing a proper letter to an old friend or telephoning someone you know who is lonely. You will get there. Share your love, be generous and kind. I am thinking of you πŸŒžβœοΈπŸŒΈπŸ‡¬πŸ‡§x

May 27, 2019 9:38 PM

Hi fibropen. I liked
what you just said because , I want to give up sometime but my fiancΓ© says this to me β€˜ you know when you feel like that you are being carried , you know the foot prints one .
What you said reminded me of that ))
Thanks ))) I also write letters to my fiancΓ© and it sure does help me a lot .. I hope that everyone here is have a good day today. Hug πŸ™πŸ™πŸŒˆπŸŒˆπŸŒΉπŸŒΉπŸ‡ΊπŸ‡Έ

Jun 01, 2019 1:26 PM

Thank you weddinfshore200 your reply made complete sense. It helped me to see things more clearly. Acceptance and patience that's what I have to work on. Thank you again. ✝️

Jun 01, 2019 2:09 PM

Hi fibropen I just shared and showed this to my fiancΓ© . He said now doesn’t that make you feel good that your helping others out as well.
I said it sure does I’m learning to one around and out of my pain and sad stuff. I want to be happier and live my life .
I hope that you have a nice day hug to you all Shore πŸ™πŸ™πŸ™πŸ™β€οΈβ€οΈπŸŒˆπŸŒˆty

Jun 01, 2019 4:50 PM

Hi fibropen, thanks for your detailed comments and all your encouragement. As far as I’m aware my abation would be performed by Radiofrequency method and not Hydrothermal. It will be done at Mayo Clinic where I had all my surgeries so I trust them 100 %. I’ve been in pain for decades, and I’m truly tired of being in pain. My back fusion has given my a new lease of life and in a way I’d love to get rid of my neck pain to the same degree if possible. If ablation can give me that, I’m all for it but that doesn’t mean that I’m not going to be scared of the procedure. I’m just a big coward who hates pain... πŸ˜”πŸ˜’.

Jun 02, 2019 12:31 PM

ATanyaR, I don't think you are being a coward just because you have some fear of the unknown. I faced my hip surgery with fear too, because I had no idea what they were doing, or if my pain would be worse, or if the procedure would actually work & be successful. And I've done this with every surgery I've ever faced, even simple colonoscopy and EGDs. And trust me, after over 20 different ones you'd think I'd face them without a care in the world. Not so because I know things can go wrong, & procedures can be unsuccessful. Just make sure to follow your doctors instructions to the letter and you should do just fine. Hugs love & prayers it is very successful! πŸ™‚β€πŸ™πŸŒΌ

Jun 02, 2019 5:29 PM

This all makes such good sense. Weddinfshore200' I'm truly delighted that I have been able to help, now pass it forward, and help someone tomorrow, even in a small way. Take some flowers to an elderly person who lives alone, or telephone if you can't get out. What a lovely way to finish my day. Thank you. πŸ™πŸ»β€οΈβœοΈπŸ‡¬πŸ‡§πŸ˜Š

Ready to start relieving your pain?

Join Community