Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

scared, terrified, and lost!!!

Nov 16, 2016 10:04 AM

So by myself I caught disability for 9 years denial after denial kept on going.. After I got hurt at work and got even more sick I got a lawyer, we had one denial already we just appealed it, I went into a special program saw docs two rated me below level I truly needed disability. Even the case worker said one doc note alone should seal ur case!!! Now I get call from my attorney they are sending me to there own person because THEY NEED MORE fml really every doc they send me to I'm fine but every other doc in world says other wise I am giving up I just don't know what else they want from me I thought this was my saviour.. I gone 9 months no more ey cuz I can't work, had to start selling stuff I own to make money for medications.. And I'm at my last string I can't stop crying I just don't understand..... :/

Nov 16, 2016 10:17 AM

MizzMonroe, don't give up! I know how frustrating it can be. I'm awaiting my hearing in December and I'm nervous as all get out. We have to stay strong and believe that it will come through. I understand selling stuff because I've had to do the same. I sold jewelry I never wore and although it upset my hubby to have to do so, I stressed the practicality of it to him. I use to buy whatever I wanted whenever I wanted. But now it's only minimal and always necessity purchases. We will get through this, and we will win!!! Hugs love & prayers for courage and strength! 🙂💕🙏🌸

Nov 16, 2016 10:51 AM

Thank you I been fighting so fucking long just feel like I don't matter my Govt doesn't care about me but if I was foreign or prego or who knows every body gets benefits that don't need it and those who truly do get fucked!!! Every time I see there doc I'm fine but every other doc says other wise.. I just don't know what else to do money is so tight I can't even clean house... I'm trying to stay strong but it's reallllly hard right now... Hugz

Nov 16, 2016 11:02 AM

MizzMonroe don't you give up!!! Somehow things will work out. I can't imagine what you're dealing with. (I feel guilty many times because I got my disability approved before I even left the building) perhaps it's just that I was THAT fucked up at the time and it's only gotten worse. Things will turn around. I am sending good karma, positive vibes, extra spoons and whatever else I can to help you hold on. If you've run out of room, hold onto my rope.. (not much room there either) BUT.. it's there for you. {{{Hugs}}}💕😊

Nov 16, 2016 11:17 AM

Thank you so much that means world hugz... I'm really trying hard been almost a year with a lawyer and 9 without so I'm wearing thin... I just want then live in my shoes on a day like today or really bad bad day... Fml.. Thank u hugz

Nov 16, 2016 11:21 AM

I hear you loud and clear. Just know that no matter what happens, you have many people here to talk to. Sending you {{{Hugs}}} back and wishing you a better day. 💕

Nov 16, 2016 12:57 PM

Now listen up Mizzy you are a strong, wonderful and talented young lady and you won't give up!
These governments like to make our lives as difficult as possible....I know because mine is doing the same! I was on ESA (disability in the UK) for just over 2 years because of my anxiety and depression then they decided to take me off it after a work assessment appointment....do you know they even measured the distance from the waiting room to the interview room???? I couldn't believe it myself until I got the letter saying I could walk the 100 yards without any trouble!!! And because I can sit, stand and talk as well I'm fit for work nothing about how my trigeminal neuralgia for 4-5 days of the week keeps me almost bed bound.....tbh most days I'm so short of money where I should put Jo in a taxi I drive her (mornings are my best time if I haven't been awake for hours and hours tho!).....the only thing they did take into consideration was my social anxiety, I was shaking from head to toe soo much it was actually visible at the interview but nothing else was taken into account!! When I rung them to find out what I needed to do and to tell them that my anxiety and pain had gone up and my doctor advised me that I'm not in the right condition to work they just dismissed it saying that their assessment was different to the doctors and they think I can do some work.....no matter how it will impact on bot my mental and physical health!
I'm fighting mine and I'm having to spend money on getting reports from all the health professionals I've seen, I'm having to pay for a report of all the medications I've been on, when they were changed and all sorts like that plus this diary which not only documents my pain but my anxiety/stress levels and fatigue levels and I'm praying that I pass but they are making me jump thro hoops and keep changing the goal posts to make it as difficult as possible!
You my dear have had a very long hard battle and I know you have the strength to push on and you will get there in the end.....the only thing I can suggest is when you go to this next doctor dress how you normally dress and go in like your having one of your bad days (sorry I know I'm saying what you already know) and keep pushing at them.
I'm sure the people they hire for these assessments are the shittiest most unbelieving and uncaring people you can possibly find!!!!!
Keep your chin up and keep going, you will get there and until then you have us to lean on.
Sending you positive thoughts and vibes to keep you strong xx

Nov 17, 2016 8:36 AM

Thanks lady face I love your butt

Nov 17, 2016 9:53 AM

If I was closer I'd make us a cup of tea, have a good cry together ... Laugh then craft. I totally get it.
I was just saying to my friend I should just have my friends go into my tribunal thats a week and a half away ... And do their rants. All my friends are furios about this process .... It makes no sense.
I lived off my money from selling my home for a long time ... I'm my son's only parent. He is autistic and takes a bit more work ... i can't afford the four to eight weeks to try out a med that means I can't function since I'm too sick , drowsy or stoned ... These things needs to be consider .. I'm sure they would think my mom who's a senior should be helping aside from letting us live with her..
What they seem forget this isn't a choice. I did not choose this ...
You did not choose ...
Wishing you a better day ... Somehow ... Hugs

Nov 17, 2016 11:30 AM

I feel your pain. I had my hearing and my attorney said we'd be approved she just knew it. Got denied again. They admit right in the letter that I have chronic migraines that are severe. But because I don't fit into their category of disability I'm denied. Your in my prayers & thoughts. Don't give up!

Nov 17, 2016 1:57 PM

Don't give up sweetie. It was the disability psych doctor who was able to get me approved and I wasn't even claiming Psych issues. Between that doctor and the letter I wrote describing a normal day for me I won after the first denial.. They want you to jump through so many hoops that you do give up?

Where do you live? When I was helping to organize a Walk for Awareness in Washington DC I was lucky enough to meet a lawyer who specializes in disability for those with Chronic Pain. Scott Davis was his name. He had some great ideas. I also met Devin Starlanyl (so?) who was an ER doctor struggling with Fibromyalgia. She wrote several books on Fibromyalgia. Such as Fibromyalgia and myofasial pain syndrome - A Survivors Manual. (there's the 11st and 2nd additions. There is one about lawyers and FMS. Can't remember the name but it had some great tips. Jacob Teitlebaum was also there. I don't think I spelled his name right. :) anywho they all said to keep fighting. Keep focus on tomorrow and not the struggles of today or the past.

((((( hugs )))))

Nov 17, 2016 2:41 PM

I'm trying just keep praying so hard... Maybe I will write s letter n I'm have my or try n have my therapist write a letter... There sending me to there doc I'm just grrrr. But I'm go I have a lawyer I just Jeep saying that I have a lawyer, and longer they deny me the more money I get In the end from back pay do there stupid really.... Sigh... I need a miracle!!!! Hugz

Nov 17, 2016 3:34 PM

The letter really helped me. I am at the doctors office waiting for nerve blocks. (ye-haw!) but will private message you tomorrow and let you know some of the things I included in my letter. Hang in there hun. Its just another one of those darn speed boats life throws our way.

Ready to start relieving your pain?

Join Community