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School with Fibromyalgia

Feb 21, 2015 11:49 PM

Hello, I'm in highschool and recently diagnosed with fibromyalgia. It's impossible for me to make it through the 8 hour school day with 6 hours of class. I've been looking into alternative options than your average high school (less hours, more work at home.) I was wondering if there are any other people out there willing to share a solution they've found for schooling and chronic pain. Thanks

Feb 22, 2015 12:11 AM

I went through the same thing. I talked to my teachers about it and most of them were pretty understanding and let me take stuff home. I was able to sign myself out of school when I turned 18 and go home when I needed to but I'm not sure if you could do that or not. I also took less classes in my last couple semesters of high school so I only took three in the morning. Once again not sure if you could do this or not but thought I'd mention it anyway. Hope you find something that will help. ☺

Feb 22, 2015 12:53 AM

I'm sorry I don't have personal experience as I am much older than you but I do know that in our community there are options for students other than the traditional high school. There are schools it is more like self study. Maybe you can contact the school district and find out if there are any alternatives for you. They might need a doctors note to accommodate you but they should be able to work something out fir you. The best of luck!

Feb 22, 2015 7:48 AM

Sandi I agree. I am a counselor and work with a few adolescents with chronic pain. I want them to have a good understanding doctor who is willing to talk to the school. In my state if kids have physical disabilities it is your right and the schools responsibility to accommodate you. Let us know how it's going. Also, are your parents/guardians supportive?

Feb 22, 2015 10:14 AM

Sandibeach & jesswoo are right. The school districts are suppose to accommodate your needs.

Feb 22, 2015 3:45 PM

Thanks for your replies. I suppose with my new diagnosis the school will be willing to work with me in finding a modified schedule. And to Jesswoo, I have a great support team around me. It is a big decision to take time off/drop classes/switch schools as it makes me less desirable to colleges but health is most important to me right now. I just need to keep reminding myself of that.

Feb 22, 2015 8:31 PM

When I was in high school I had a major depressive episode and could not mentally handle going to regular school. My school provided home schooling for me. All of my teachers sent my work home for me and a tutor came to my house several days a week. I know now the district offers alternative options such as online school. Go talk to the counselor/administration and I am sure they will work with you. Good luck!!!

Feb 23, 2015 3:39 AM

Which country are you in? I All this because due to my school not being helpful (in fact being the opposite) i have done a lot of research into the laws surrounding this both UK and UN/International

Feb 23, 2015 1:35 PM

I'm from Upstate NY. My situation was a little bit different in high school. Chronic UTI's started at age 7, less than a year later an increasingly worse stomach pain and sensitive bowel. Because I had the UTI's which had become just about untreatable elementary school teachers were extremely understanding and accommodating (all except one). Once I was in middle school the UTI's had stopped but the stomach pain and digestive issues got worse, I developed migraines, back pain/spasms, joint/muscle pain, sensitivity to sound and light, nausea, fatigue and with no diagnosis I was deemed many things; a liar, I wanted attention, I had my mom wrapped around my little finger, it was in my head, I'm depressed, anxious... on and on. My mom was in and out of meetings with them every week where instead of trying to figure out a plan to help me they would pretty much just bash me, and give my mom a list of what was expected of me. I ended up withdrawing into independent studies/ home school and later went on to get my GED. Not optimal, but I have limited resources and couldn't pay for online classes.

As I'm 21 now, I understand not all schools, teachers, and faculty are like that. Given that you have a diagnosis, your doctor should be able to write them a note with a description of your limitations and what steps may be necessary to accommodate those limitations. I'm not sure what your limitations are but perhaps half days, and/or a tutor. Keeping good communication with your teachers is also important - see if they mind keeping in touch over email if you have questions or if you've had a particularly hard week keep them posted and sometimes they'll be a little more lenient about due dates. As many benefits as there are to homeschool, for me it really stunk not getting the high school experience. Everyone tells me I didn't miss me much but it doesn't feel that way.

I hope everything works out well, best of wishes to you!

Feb 23, 2015 3:01 PM

Juneapplebee, sounds a lot like my situation. In and out of meetings, lying, deceiving, missing out on the high school experience etc. I'm talking with my school now about a part time sort of plan. I am reluctant about falling behind, procrastinating and not communicating. I am a good student, but most high schoolers would slack off when given the opportunity. I know everything will find a way of sorting itself out, but this has been a long, tough process. Thank you for your advice, very helpful.

Feb 23, 2015 4:22 PM

By the UN laws no person, regardless of sex, race, sexuality, disability etc. Can be discriminated against
I can't remember all the details but if you two them that by the laws of the UN and the United States of America they cannot discriminate against you sure to you condition/fissile type and anything else that comes with that and that if they continue they can be held to account by any court all the way up to (if you chose to) the Supreme Court of the United States of America.

That hopefully will make them more helpful :)

Feb 26, 2015 5:41 PM

I'm 16 years old.I had a leukemia.Now my knees are destructing because of AVN.I'm studying at home.

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