Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

School

Mar 22, 2016 3:40 PM

I have had chronic fatigue and arthralgia for about 4 years now. Teachers had gave me free periods and I have quite a lot of time of. I also dropped a subject so that I could catch up on other lessons. I'm always too tired to do homework or class work so I get a lot of catch ups and detentions after school which means I have to stay for extra hours. I sometimes fail tests because I can't concentrate or im in a lot of pain and I have to redo them. I have too much school work and homework but I'm just too tired and in loads of painπŸ˜’

Mar 22, 2016 4:48 PM

That's tough. Can you talk to the school, and make an arrangement for less homework, and not having detention. I'm guessing that would just be more stress and pain if you can't rest?
I had awhile when I couldn't really do school work, (my school is charter and already has a lot of things to help people with physical or learning disabilities) but I was only able to go to school a few hours at a time, and my concentration didn't really exist.
Catching up is hard, so maybe they can make there be less things to do. Good luck!

Mar 22, 2016 5:07 PM

I have tried to talk to the school about maybe giving me less work and detentions but most teachers don't understand and it's hard to explain to them. I think I am going through the same thing you went through with not being able to concentrate or go to school often. I will try and speak to the school again though, thank you for your advice!😊

Mar 22, 2016 7:25 PM

What grade are you in?

Mar 22, 2016 10:10 PM

You need to request an IEP (individual Education Plan) that way they cater your education based on your needs, limitations, etc. You are entitled to an IEP. I am sorry your instructors are insensitive to your medical problems. Perhaps you can get something from your physician outlining your diagnosis and the limitations it causes you to take to school. I am sorry you suffer with such a debilitating illness. I am even more sorry that your teachers choose to not show you compassion. πŸ“š πŸ“

Mar 23, 2016 10:34 AM

Teepainter, I'm in year 10 so I think that would be 9th grade.

Mar 23, 2016 10:44 AM

MySistersKeeper, I do have something from my doctors with my diagnosis on but lots of teachers haven't seen it because the school have put it on my file. I've had a look at IEPs and I'm going to request one. I think this will help a lot, thank you☺️

Mar 23, 2016 11:10 AM

Beth, there is also a 504 plan, which I started with until I got a more official diagnosis. My doctors all tried to send me somewhere else because they didn't want to diagnose something that they couldn't agree on. Anyway, I'm in 10th grade, so we're pretty close age wise.
At my school (don't know about yours, it's probably different?) we have attendance online and the IEPs and 504 plans all show up for each teacher with the student in roll. That way, it's easy to access so hopefully your teachers would have no reason to doubt you.
Some teachers haven't felt any pain, and figure teens are just dramatic. It really sucks. I have a few teachers who have pain, or a course friend who they take care of. It makes me feel more normal, because they don't think I'm weird for my pain, and understand it's not my (or your) choice.

Mar 23, 2016 11:52 AM

This also sounds like it could help, the arrangements would make things a lot better. I don't really see doctors often anymore because there isn't much they can do for me, I have tried pretty much everything (physio, occupational therapy, medicines etc). We also have online attendance so hopefully if I do get an IEP or 504 teachers will be able to see it. Some teachers are really nice and understanding but others want me to complete all the work/ homework they set.

Mar 23, 2016 12:44 PM

When I was in high school I was put on an iep and it helped for a long time. I went to school for 4 classes and was only there from 8am to 10:30am. I had a lot less homework and I also did a few online classes when ever I felt up to it (i needed to catch up on credits I Only had enough credits to be in 9th grade when I should have been in 11th) but it was really wonderful for awhile. Sadly it stop working for me due to some really personal problems at home and at school and ended up dropping out. But id definitely suggest asking for an iep. I was also close to my one teacher who was also my iep handler. And that helped a lot when it came to days that I couldn't come to school

Mar 23, 2016 1:29 PM

Awful teachers and unfeeling people, listen up. Learning is a lifelong process and formal education guarantees neither success nor failure. You guys already understand deeply, things they may never comprehend.

Mar 23, 2016 3:24 PM

JennaReimer, I think it would really help if I did less classes but sometimes it's hard because my parents both work so they can't pick me up from school. Were the online classes given to you by teachers? Thank you for the suggestion, I'll definitely ask for one.

Mar 23, 2016 3:28 PM

7autoimmunes, this so true but I wish some people were more understanding and supportive.

Mar 23, 2016 5:04 PM

Absolutely. I think teachers in particular could be accepting of students with medical problems and disabilities.

Mar 23, 2016 5:09 PM

Beth, I actually did this online class that was provided by the school it was called k-12 you work on one class at a time and you can basically either get through a while class in a semester and you can chose the classes you want to work on. But i believe it is only an Ohio thing but I'm sure there are other programs like that I also was in another type of online class called ombudsmen. But once again i dont know if that is just an Ohio thing. There's also ecot. I know many people who are on that due to disabilty. It was basically designed for people like us! It is amazing. And Its all online and you can do at home they give you a computer and free wifi if needed. And its all tuition free and there are always teachers able to help of needed even if it is at 3 in the morning which I imagine would be great for you because you probably have random times that you are awake. Id definitely look into it. I just remembered about it lol

Mar 23, 2016 6:10 PM

I know that CA, UT and TX have had a k-12 online. I have lived and taught homeschool in all. Check it out & Best of luck.
Smiles

Mar 25, 2016 8:01 AM

JennaReimer, 7autoimmunes, I've looked at these but I live in England. Something like this would be really good though, I'll try and look for something similar that I can use.

Mar 25, 2016 8:54 AM

Betholivia15, What about asking your doctor to write a short letter to the school, explaining your situation & needs. Maybe it could help. Hugs! πŸ™‚πŸ’•πŸ™πŸŒΌ

Mar 25, 2016 12:30 PM

Yeah I've asked my doctor for another one to give to the school Explaining everything, hopefully it will help aswell. Thanks!😊

Mar 25, 2016 6:58 PM

Contact the OPEN UNIVERSITY in England. Explain your situation and ask if they can help you with an online program. My friend finished her degree while her husband was stationed in Portugal. If they dont offer a program for you they should know who does.

Mar 25, 2016 8:09 PM

Are there any Outreach or storefront schools? Here in Canada I work at an Outreach as well as an online school. The Outreach is set up as a program students can learn at their own pace. With students that have medical issues preventing them from attending school they either do all their courses through us or we supplement the courses they are taking from the local high shool so they do not fall behind. For instance one of my students has been away for two weeks getting treatment for her Chrons. She does Math with the Outreach but English through the high school. I gave her access to the English while she's away so she doesn't fall behind. If you reach out to the school (your favourite teacher, counselor, or whomever), they may have a solution that you don't even know about. The important thing is to be honest with them and yourself with how much you can realistically do. I have a student that took 5 years to do high school. We paced her and did what was a realistic speed for her. Now in university she takes 3 courses a semester instead of 5. I hope you can figure something out with your school or find a school with a method that will work for you! Also, Khan Academy on the Internet is amazing! You can look up a lot of Math and science concepts on it. They have great videos that teach concepts and it is free! It could be a good resource for you :)

Mar 25, 2016 8:10 PM

Also sorry if my reply is super intimidating. I'm really passionate about school working for every student in their own way :)

Apr 06, 2016 8:51 AM

I've had a lot of problems with schools and am finally at one that cares. I went through year 10 and 11 with an attendance of below 20% and have had to decide to not take this year until this September coming (like a gap year for medical reasons). Please private message me if you are having any trouble, I might be able to help

Ready to start relieving your pain?

Join Community