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Scoliosis surgery & after..

Feb 17, 2015 7:14 PM

I've had scoliosis surgery about two and a half years ago.. I'm only seventeen and my surgeon has now suggested because I'm on max dosage medication and doing everything I possibly can such as exercise that one thing is left may be to take the rods and screws out.. I've had a 3D scan and he can't see anything so he's unsure what's causing this pain.. He said I may feel better I may not.. I don't know if I can go through surgery all over again๐Ÿ˜ข & there's a chance of blood clotting because I had a blood clot after the first operation!!
Has anyone had rods removed?
If I choose not to do it I'll never know.. If I choose to do it, it may not work.. Had decision
Can anyone help me out. ๐Ÿ˜“

Feb 17, 2015 8:28 PM

Harris, I'm so sorry you're dealing with this so young. Has your doctor discussed the pros & con's of doing the surgery as well as not doing it? Are the risks worth the gain, is something you need to weigh. Have you got a second opinion, or even a third? It sounds like pretty serious surgery, and getting other opinions from doctors may help you decide. Also, have you tried a pain specialist or used alternative medicine treatments? I guess I'm wanting you to make sure you dot all your I's & cross all your T's. I'm 53 and have had over 14 surgeries. I think back now and know if I'd have gotten second opinions I might not be in the physical mess I am today, partly being fibromyalgia from major mass surgery in 2010. I'll be praying for you. ๐Ÿ™๐ŸŒผ

Feb 17, 2015 8:50 PM

Harris, I agree with Flappy! I don't have any personal experience with the rods but I have had lots (too many) surgeries, something like 12 I think. For my neck surgery, I do wish I had gotten a second opinion. I had two in one year that threw me for a loop in that I had lots of trouble healing and progressing. I think your should get at least two other opinions as it is such a big operation and it's affects would impact you greatly. And it would be good for you to exhaust any other kind of pain relief methods available to you. I have learned that surgery is not necessarily a 'cure' to every problem. You do have youth on your side so that is great as you would heal and recover quicker than someone older. Do some research as to experts in your area and even if you would have a little traveling to do, it would be will worth the time and effort it takes to be real thorough prior to another surgery. As you now know what awful effects/pain that an illness or condition can result in, you also know that it is worth going the extra mile to avoid in choosing the wrong surgeon for your back if that is what you decide on.

Feb 17, 2015 9:09 PM

@Flappylady81 I haven't gone into full detail with him, but it was mentioned today & something serious to consider ๐Ÿ˜” I don't know if I would do it all again and then still be in pain.. It'd be like doing it for no reason. Yes, I have tried a lot of medications,exercises like swimming, Pilates, a heated pool. I've even tried creams and acupuncture, even a tens machine! still..nothing. Thank you so much for your opinion|reply. & thank you for the prayers, much appreciated. ๐ŸŒบ

Feb 17, 2015 9:11 PM

@sandibeach thank you also for your reply! I will look at another opinion,I've even been searching online to see if there's anyone to talk to or to read some reviews, It definitely is a major surgery ๐Ÿ˜” Just don't know if it will all be worth it in the end. Thanks again! ๐ŸŒบ

Feb 17, 2015 9:46 PM

You are very welcome! Some experts will even review a copy of your MRI's etc and give you their opinion without an official consultation. Just a thought. I figure the more opinions you get, the better. I wish the best for you. I an 52 and can't imagine being in your situation at such a young age๐Ÿ˜จ. Know that you are a strong, smart and very mature person just by going thru your health problems.

Feb 18, 2015 3:43 AM

Thank you very much, ๐Ÿ’•

Feb 18, 2015 11:09 AM

Having had scoliosis surgery I would get my rods out in a second. Unfortunately I did not know that was an option for me and now it has been too many years. I just feel like foreign materials in your body are not meant to stay forever. I know many of my problems are from the metal used. Good luck really hard decision. Is your surgeon sure that your spine is stable and will not sag and bend again? Look in orthopedic journals for surgeons that have done the surgery successfully and why they removed the hardware.

Feb 18, 2015 7:20 PM

Yes, he's sure, but it's hard because he'd prefer to do it after my hsc but then I'm 18 and he works in a children's hospital so they may not allow me to stay in there or even have it there and my family and I can't afford private hospital๐Ÿ˜” I agree with you about foreign materials.

Feb 18, 2015 7:31 PM

Harris, I agree with sandibeach & LMB both. You are strong & mature. I wish you & others your age weren't faced with such decisions. You've got a large support group here. I will keep praying. God can do more than we can, and He can open doors we don't know of. Good luck & God bless!

Feb 20, 2015 5:19 AM

Thank you very much @FlappysLady81 ๐Ÿ’ž

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